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Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia

Our Mission: CDH International was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness.

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby’s diaphragm (a thin sheet of muscle that separates the abdomen from the chest) fails to fully form, allowing abdominal organs to enter the chest cavity and prevent lung growth.

CDH occurs in approximately 1 in 2500 births, with over 1600 babies diagnosed each year in the United States alone. There is currently no known cause, but studies have suggested that it is likely due to a number of genetic and environmental factors.

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Research: Resuscitation before cord clamping: the maternal experience.

Arch Dis Child Fetal Neonatal Ed. 2019 Dec 5. pii: fetalneonatal-2019-318190. doi: 10.1136/archdischild-2019-318190. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31806665 Resuscitation before cord clamping: the maternal experience. Guttmann K1, Martin A2, Chaudhary A3, Cole J4, Foglia EE5. Author information KEYWORDS: congenital diaphragmatic hernia; intubation; perspectives; stress; umbilical cord clampingPMID: 31806665 DOI: 10.1136/archdischild-2019-318190

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Research: Early parenteral nutrition in neonates with congenital diaphragmatic hernia.

Pediatr Int. 2019 Dec 6. doi: 10.1111/ped.14083. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31811685 Early parenteral nutrition in neonates with congenital diaphragmatic hernia. Yoshida T1, Goya H1, Iida N1, Arakaki M2, Sanabe N3, Nakanishi K2. Author information Abstract BACKGROUND: The ideal nutritive strategy for neonate with congenital diaphragmatic hernia (CDH) has not been elucidated. The purpose of this study was to investigate the efficacy of early …

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Research: Left Ventricular Dysfunction and Persistent Perfusion Abnormalities in Infants with Congenital Diaphragmatic Hernia.

J Pediatr. 2019 Dec 4. pii: S0022-3476(19)31521-5. doi: 10.1016/j.jpeds.2019.11.013. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31812295 Left Ventricular Dysfunction and Persistent Perfusion Abnormalities in Infants with Congenital Diaphragmatic Hernia. Mandell EW1, Kinsella JP2. Author information PMID: 31812295 DOI: 10.1016/j.jpeds.2019.11.013

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Research: Discordant prenatal ultrasound and fetal MRI in CDH: wherein lies the truth?

J Pediatr Surg. 2019 Nov 26. pii: S0022-3468(19)30840-1. doi: 10.1016/j.jpedsurg.2019.11.007. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31813580 Discordant prenatal ultrasound and fetal MRI in CDH: wherein lies the truth? Kim AG1, Norwitz G2, Karmakar M2, Ladino-Torres M3, Berman DR4, Kreutzman J1, Treadwell MC4, Mychaliska GB1, Perrone EE5. Author information Abstract PURPOSE: Prenatal risk assessment of congenital diaphragmatic hernia (CDH) relies on prenatal ultrasound (U/S) and fetal magnetic resonance …

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Research: A prenatally diagnosed case of Donnai-Barrow syndrome: Highlighting the importance of whole exome sequencing in cases of consanguinity.

Am J Med Genet A. 2019 Dec 10. doi: 10.1002/ajmg.a.61428. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31821692 A prenatally diagnosed case of Donnai-Barrow syndrome: Highlighting the importance of whole exome sequencing in cases of consanguinity. Ozdemir H1, Plamondon J1, Gaskin P2, Asoglu MR1, Turan S1. Author information Abstract Donnai-Barrow syndrome (DBS) is an autosomal recessive disorder characterized by typical craniofacial features, vision …

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Research: Endothelial Progenitor and Mesenchymal Stromal Cells in Newborns With Congenital Diaphragmatic Hernia Undergoing Extracorporeal Membrane Oxygenation.

Front Pediatr. 2019 Nov 22;7:490. doi: 10.3389/fped.2019.00490. eCollection 2019. https://www.ncbi.nlm.nih.gov/pubmed/31824902 Endothelial Progenitor and Mesenchymal Stromal Cells in Newborns With Congenital Diaphragmatic Hernia Undergoing Extracorporeal Membrane Oxygenation. Rafat N1,2,3, Patry C2, Sabet U2, Viergutz T4, Weiss C5, Tönshoff B2, Beck G6, Schaible T1. Author information Abstract Background: Endothelial progenitor (EPC) and mesenchymal stromal cells (MSC) can regenerate damaged endothelium and thereby improve pulmonary endothelial dysfunction. We do …

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Featured Cherub of The Week: Allie Reaves

Featured cherub of the week is CDH survivor Allie Reaves. Allie is the daughter of Mellissa and Kevin Reaves. Mellissa had this to share about her precious daughter: “This is CHERUB Allie. She was born at Vanderbilt in Nashville, TN with left sided CDH and was diagnosed at 20 weeks gestation. She was given less …

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A global initiative to fight CDH

Just shy of 25 years since the world’s largest Congenital Diaphragmatic Hernia charity was founded in 1995, CDH International has reached patients and researchers around the world. Mapping by Mapline We have provided free services to 1000’s of patient families including NICU care packages, educational materials, scholarships, financial grants, conferences, local events and more. We …

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Featured Fundraisers For The Week of December 9th

Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: **Please note, these are the fundraisers that have raised $50 or more. Any personal fundraiser that has not reached $50, due to Facebook guidelines, it does not appear in our fundraiser list on the Facebook page to be able to share …

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Featured Doctor: Dr. Robert Fleming

CDH International would like to thank Dr. Robert Fleming with Cardinal Glennon Children’s Hospital for bringing hope to so many CDH families. Brittaney Dalton, mom to cherub Athena, had this to share about Dr. Fleming: “After Athena had her appointments we went to visit the NICU. Luckily we ran into her primary Neonatologist, Dr. Fleming. …

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Research: Asymptomatic adult intrapericardial diaphragmatic hernia detected on cardiac SPECT CT.

J Nucl Cardiol. 2018 Oct;25(5):1875-1878. doi: 10.1007/s12350-017-1129-z. Epub 2017 Nov 16. https://www.ncbi.nlm.nih.gov/pubmed/29147830 Asymptomatic adult intrapericardial diaphragmatic hernia detected on cardiac SPECT CT. Adeel MY1, Sikanderkhel S2, Shahab Z2, Oliva I2, Gerber J2. Author information Abstract An 83-year-old man underwent exercise stress test with single photon emission computed tomography (SPECT) myocardial perfusion imaging for new electrocardiogram (EKG) changes. The stress EKG did not show …

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