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Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia

Our Mission: CDH International was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness.

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby’s diaphragm (a thin sheet of muscle that separates the abdomen from the chest) fails to fully form, allowing abdominal organs to enter the chest cavity and prevent lung growth.

CDH occurs in approximately 1 in 2500 births, with over 1600 babies diagnosed each year in the United States alone. There is currently no known cause, but studies have suggested that it is likely due to a number of genetic and environmental factors.

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CDH International at the Global Initiative for Children’s Surgery

CDHi President, Dawn Ireland, once again spoke that the Global Initiative for Children’s Surgery (GICS) event. This happens only every 2 years. Also in attendance where CDHi Medical Advisors, Dr Henry Rice and Naomi Wright, as well as former Advisor, Dr. Neema Kasaje. This year, the event was in Johannasburg, South Africa and attended by …

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Featured Fundraisers For The Week of January 27, 2020

Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: **Please note, these are the fundraisers that have raised $50 or more. Any personal fundraiser that has not reached $50, due to Facebook guidelines, it does not appear in our fundraiser list on the Facebook page to be able to share …

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Featured Cherub of The Week: Jeremy Shane Torrence

February marks CDH International’s 25th Anniversary! The next two weeks we will be looking back on two cherubs that were the reason for the creation of the charity, 25 years ago. Featured cherub of the week is Jeremy Shane Torrence, “Shane.”  Shane was born with left-sided CDH and multiple birth defects and passed away at …

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LAST CHANCE – University of Toronto CDH Study on Older Patients

Deadline to participate in this study is midnight EST on February 7th! CDHi is currently working on a research study with the University of Toronto Sick Kids Hospital on the long-term effects of Congenital Diaphragmatic Hernia and requests that all survivors over 13-years-old participate in this important work. It is also equally important that all …

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Research: Chest CT scoring for evaluation of lung sequelae in congenital diaphragmatic hernia survivors.

Pediatr Pulmonol. 2020 Jan 16. doi: 10.1002/ppul.24645. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31945271 Chest CT scoring for evaluation of lung sequelae in congenital diaphragmatic hernia survivors. Beel E1, Aukland SM2,3, Boon M4, Vermeulen F4, Debeer A5, Proesmans M4. Author information Abstract OBJECTIVES: Data on long-term structural lung abnormalities in survivors of congenital diaphragmatic hernia (CDH) is scarce. The purpose of this study was to develop a …

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Research: Symptomatic congenital Morgagni hernia presenting as a chest pain: a case report.

J Med Case Rep. 2020 Jan 18;14(1):13. doi: 10.1186/s13256-019-2336-9. https://www.ncbi.nlm.nih.gov/pubmed/31952551 Symptomatic congenital Morgagni hernia presenting as a chest pain: a case report. Mohamed M1, Al-Hillan A2, Shah J2, Zurkovsky E2, Asif A2, Hossain M2. Author information Abstract BACKGROUND: Morgagni hernia is a rare form of congenital diaphragmatic hernia with a prevalence of 2-3%. It occurs due to a defect on the anterior part of the diaphragm, which allows abdominal …

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Research: Drug Treatment of Pulmonary Hypertension in Children.

Paediatr Drugs. 2020 Jan 21. doi: 10.1007/s40272-019-00374-2. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31960361 Drug Treatment of Pulmonary Hypertension in Children. Avitabile CM1, Vorhies EE2, Ivy DD3. Author information Abstract Pulmonary arterial hypertension (PAH) is a rare disease in infants and children that is associated with significant morbidity and mortality. The disease is characterized by progressive pulmonary vascular functional and …

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Research: Tatton-Brown-Rahman syndrome: Six individuals with novel features.

Am J Med Genet A. 2020 Jan 21. doi: 10.1002/ajmg.a.61475. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31961069 Tatton-Brown-Rahman syndrome: Six individuals with novel features. Balci TB1, Strong A2, Kalish JM2, Zackai E2, Maris JM3, Reilly A3, Surrey LF4, Wertheim GB4, Marcadier JL5, Graham GE1, Carter MT1. Author information Abstract Tatton-Brown Rahman syndrome (TBRS) is an overgrowth-intellectual disability syndrome caused by heterozygous variants in DNMT3A. Seventy-eight individuals have been …

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Featured Cherub of The Week: Ian McCormick

Featured cherub of the week is CDH survivor Ian McCormick. Ian’s family had the following to share about Ian: “Ian is 7 years old.   He was born at All Children’s Hospital in St Pete, FL. He has DonniaBorrow Syndrome and was born with a CDH along with other complications.    Ian was born and placed …

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Featured Fundraisers For The Week of January 20, 2020

Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: **Please note, these are the fundraisers that have raised $50 or more. Any personal fundraiser that has not reached $50, due to Facebook guidelines, it does not appear in our fundraiser list on the Facebook page to be able to share …

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Take The #SnowAngelChallenge for CDH

To try to raise Congenital Diaphragmatic Hernia Awareness and research funds, and in celebration of our 25th year, we have created the #snowangelchallenge to help #savethecherubs Please take the challenge and make angels in snow, sand, dirt, whatever you have available and challenge your family and friends to either make snow angels too and/or donate …

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2020 CDHi Toronto Blue Jays Get Together – July 22nd

The 2020 CDH Conference and CDHi 25th Anniversary will be held in Toronto, Ontario, Canada, just over the border to bring all our North American families together for the biggest CDH event ever, July 22 – July 25, 2020! Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for …

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