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Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia

Our Mission: CDH International was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness.

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby’s diaphragm (a thin sheet of muscle that separates the abdomen from the chest) fails to fully form, allowing abdominal organs to enter the chest cavity and prevent lung growth.

CDH occurs in approximately 1 in 2500 births, with over 1600 babies diagnosed each year in the United States alone. There is currently no known cause, but studies have suggested that it is likely due to a number of genetic and environmental factors.

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Featured CDHi Maine Ambassador Carly Dudley

Featured CDH International Maine’s Ambassador is Carly Dudley. Carly is the mom to CDH survivor Jasmine. Carly is a stay at home mom to five children and recently started an Arbonne business at home. She started this business because she loves helping others achieve their goals and feel amazing.      Carly’s children are her …

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Research: Thoracoscopic repair of congenital diaphragmatic hernia: a new anatomical reconstructive concept for tension dispersal at primary closure.

Surg Endosc. 2020 Jul 2. doi: 10.1007/s00464-020-07764-5. [Epub ahead of print] https://pmlegacy.ncbi.nlm.nih.gov/pubmed/32617656 Thoracoscopic repair of congenital diaphragmatic hernia: a new anatomical reconstructive concept for tension dispersal at primary closure. Elbarbay MM1, Fares AE2, Marei MM1, Seleim HM3. Author information Abstract BACKGROUND: Several measures were implemented among authors striving to tail off recurrence rates of thoracoscopic congenital diaphragmatic hernia repair. In the presented …

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Research: Re-ECMO for congenital diaphragmatic hernia: Is it worth the effort?

J Pediatr Surg. 2020 Apr 19. pii: S0022-3468(20)30265-7. doi: 10.1016/j.jpedsurg.2020.04.005. [Epub ahead of print] https://pmlegacy.ncbi.nlm.nih.gov/pubmed/32620266 Re-ECMO for congenital diaphragmatic hernia: Is it worth the effort? Mesas Burgos C1, Öst E2, Frenckner B3. Author information Abstract AIM: To evaluate the results in CDH patients subjected to a second course of ECMO at a single institution. MATERIAL AND METHODS: Retrospective review …

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Research: Nutrition Interventions Associated With Favorable Growth in Infants With Congenital Diaphragmatic Hernia.

Nutr Clin Pract. 2020 Jul 4. doi: 10.1002/ncp.10547. [Epub ahead of print] https://pmlegacy.ncbi.nlm.nih.gov/pubmed/32621640 Nutrition Interventions Associated With Favorable Growth in Infants With Congenital Diaphragmatic Hernia. Bathgate JR1, Rigassio Radler D2, Zelig R2, Lagoski M3, Murthy K3. Author information Abstract Nutrition complications are common in survivors of congenital diaphragmatic hernia (CDH). Infants diagnosed with CDH may demonstrate poor growth despite receiving enteral tube feedings …

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Research: [How I do… an ultrasound scan of a fetus with a congenital diaphragmatic hernia?]

Gynecol Obstet Fertil Senol. 2020 Jul 1. pii: S2468-7189(20)30213-0. doi: 10.1016/j.gofs.2020.06.009. [Epub ahead of print] https://pmlegacy.ncbi.nlm.nih.gov/pubmed/32622010 [How I do… an ultrasound scan of a fetus with a congenital diaphragmatic hernia?] [Article in French]Bouchghoul H1, Saada J2, Etienne M3, Cordier AG4, Benachi A2. Author information KEYWORDS: Congenital diaphragmatic hernia; Hernie de coupole diaphragmatique; diagnostic prénatal; lung-to-head ratio; prenatal diagnosis; prognosis; pronosticPMID: 32622010 DOI: 10.1016/j.gofs.2020.06.009

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Research: Long-Term Health-Related Quality of Life in Survivors of Congenital Diaphragmatic Hernia.

Eur J Pediatr Surg. 2020 Jun;30(3):273-278. doi: 10.1055/s-0040-1713423. Epub 2020 Jul 6. https://pmlegacy.ncbi.nlm.nih.gov/pubmed/32629497 Long-Term Health-Related Quality of Life in Survivors of Congenital Diaphragmatic Hernia. Derraugh G1, Lum Min SA1, Keijzer R1. Author information Abstract The health-related quality of life (HRQoL) of survivors of congenital diaphragmatic hernia (CDH) is presently unknown. Literature prior to 2015 suggests that CDH survivors have worse HRQoL …

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Research: Health-Related Quality of Life in Biliary Atresia Patients with Native Liver or Transplantation.

Eur J Pediatr Surg. 2020 Jun;30(3):261-272. doi: 10.1055/s-0040-1712932. Epub 2020 Jul 6. https://pmlegacy.ncbi.nlm.nih.gov/pubmed/32629498 Health-Related Quality of Life in Biliary Atresia Patients with Native Liver or Transplantation. Rodijk LH1, Schins EMW1, Witvliet MJ2, Verkade HJ3, de Kleine RH4, Hulscher JBF1, Bruggink JLM1. Author information Abstract INTRODUCTION:  We aimed to assess health-related quality of life (HrQoL) in biliary atresia (BA) patients, based on original …

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