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CDHi Medical Advisor and Trustee Appointed to World Health Organization

Our newest CDHi Medical Advisors and CDHi Trustee in the UK had to officially step down today from both our charities because she has been named Head of Surgery at the World Health Organization! Congratulations, Neema. We look forward to working with you at the WHO to help so many children.

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New products, Black Friday and Angel Club discounts in the CDH Awareness Shop

We have added over 100 new Congenital Diaphragmatic Hernia Awareness products in the CDH Awareness Shop in the last month. Black Friday and Cyber Monday sales will be at 10%. The charity makes little off of each item so we can’t offer large discounts or we’d lose all profit. Angel Club Members will get 20% …

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Meet Cherub Emma – Featuring The Colorado Fetal Care Center

At the Colorado Fetal Care Center at Children’s Hospital Colorado, they specialize in a multidisciplinary, groundbreaking approach to diagnosing and treating congenital diaphragmatic hernia (CDH). They have consistently delivered some of the best outcomes in the nation for treating babies with CDH, babies just like cherub Emma. To watch Emma’s story and hear more from …

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Featured Fundraisers for The Week of November 4, 2019

Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: Jennifer’s Birthday Fundraiser Christina’s Birthday Fundraiser Christina’s Birthday Fundraiser Keara’s Birthday Fundraiser Keith’s Birthday Fundraiser Nicki’s Birthday Fundraiser Andrea’s Birthday Fundraiser Jamison’s Birthday Fundraiser Debbie’s Birthday Fundraiser Mitch’s Birthday Fundraiser Jessica and Stefan’s Birthday Fundraiser for CDH International Yankee Candle Fundraiser …

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Research: Hypercalciuria and nephrolithiasis: Expanding the renal phenotype of Donnai-Barrow syndrome.

Clin Genet. 2018 Jul;94(1):187-188. doi: 10.1111/cge.13242. Epub 2018 Mar 13. https://www.ncbi.nlm.nih.gov/pubmed/29532936 Hypercalciuria and nephrolithiasis: Expanding the renal phenotype of Donnai-Barrow syndrome. Anglani F1, Terrin L1, Brugnara M2, Battista M3, Cantaluppi V3, Ceol M1, Bertoldi L4, Valle G4, Joy MP5, Pober BR5, Longoni M5. Author information Abstract Whole exome sequencing detected novel likely pathogenic variants in LRP2 gene in 2 patients presenting with hearing and vision loss, …

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Research: Time versus treatment: interpreting longitudinal data analysis of treprostinil

J Pediatr. 2019 Mar;206:304-305. doi: 10.1016/j.jpeds.2018.11.034. Epub 2018 Dec 14. https://www.ncbi.nlm.nih.gov/pubmed/30559020 Time versus treatment: interpreting longitudinal data analysis of treprostinil. Madenci AL1, Baer HJ2, Vitali SH3, Zalieckas JM3, Arnold JH3, Weldon CB3. Author information Comment in Reply. [J Pediatr. 2019] Comment on Treprostinil Improves Persistent Pulmonary Hypertension Associated with Congenital Diaphragmatic Hernia. [J Pediatr. 2018] PMID: 30559020 DOI: 10.1016/j.jpeds.2018.11.034[Indexed for MEDLINE]

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CDH International To Help Others Create New Congenital Diaphragmatic Hernia Charities

Starting in 2020, CDH International will begin to fiscally sponsor new charities through use of our Tax ID, experience and resources. Many new CDH groups and non-profits are popping up without any guidance, often crashing before the 2 year mark, unable to navigate the complicated world of 501(C)III laws, state laws, insurance coverage, boards, fundraising, …

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Research: Survival trends and outcomes among preterm infants with congenital diaphragmatic hernia.

J Perinatol. 2019 Oct 17. doi: 10.1038/s41372-019-0523-6. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31624324 Survival trends and outcomes among preterm infants with congenital diaphragmatic hernia. Peluso AM1, Othman HF2, Elsamny EM2, Sammour I2, Yeaney NK2, Aly H2. Author information Abstract OBJECTIVE: The objective of this study was to use current national data to evaluate the characteristics and survival trends of preterm infants born with …

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Research: Study of abdominal wall muscle innervation applied to large-defect closure in congenital diaphragmatic hernia.

Clin Anat. 2019 Oct 17. doi: 10.1002/ca.23503. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31625184 Study of abdominal wall muscle innervation applied to large-defect closure in congenital diaphragmatic hernia. Cruz ES1,2, Rabattu PY1,3, Todesco A4, Bellier A1, Chaffanjon PC1,5, Faguet R3, Piolat C3, Robert Y1,3. Author information Abstract INTRODUCTION: In large congenital diaphragmatic hernias (CDHs), direct suture of the diaphragm is impossible. Surgeons can use a triangular internal oblique …

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Research: Congenital diaphragmatic hernia: 25 years of shared knowledge; what about survival?

J Pediatr (Rio J). 2019 Oct 17. pii: S0021-7557(19)30591-1. doi: 10.1016/j.jped.2019.10.002. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31629706 Congenital diaphragmatic hernia: 25 years of shared knowledge; what about survival? Satyan L1, Payam V2. Author information PMID: 31629706 DOI: 10.1016/j.jped.2019.10.002Free full text