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Featured Cherub of The Week: Preston Carr Montague

February marks CDH International’s 25th Anniversary! CHERUBS is founded in memory of, and named for, Preston Montague and Andrea Jones, two very special CDH babies that were Shane Torrence’s hospital roommates (please see Shane’s feature last week), and for all CDH babies that do not survive. CHERUBS, now CDH International is truly a grassroots organization, created …

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Featured Fundraisers For The Week of February 3, 2020

Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: **Please note, these are the fundraisers that have raised $50 or more. Any personal fundraiser that has not reached $50, due to Facebook guidelines, it does not appear in our fundraiser list on the Facebook page to be able to share …

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Research: Jarcho-Levin Syndrome and Concomitant Carotid Glomus Tumor: First Reported Case.

World Neurosurg. 2019 Dec;132:236-238. doi: 10.1016/j.wneu.2019.08.179. Epub 2019 Aug 31. https://www.ncbi.nlm.nih.gov/pubmed/31479788 Jarcho-Levin Syndrome and Concomitant Carotid Glomus Tumor: First Reported Case. Satis S1, Tuna M2, Alparslan N2, Dere O3. Author information Abstract BACKGROUND: Jarcho-Levin syndrome (JLS) is a rare congenital disorder characterized by different clinical and radiologic findings. The disease was first reported by Jarcho and Levin in 1938, and it …

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Research: Oculo-auriculo-vertebral spectrum with radial defects, a bifid condyle and taurodontism: A case report.

Dent Med Probl. 2019 Oct-Dec;56(4):427-431. doi: 10.17219/dmp/110234. Oculo-auriculo-vertebral spectrum with radial defects, a bifid condyle and taurodontism: A case report. Desai V1. Author information Abstract Goldenhar syndrome (GS) is a rare congenital anomaly involving the first and second branchial arches. It is an autosomal dominant genetic disorder in which there is abnormal prenatal development of the head and …

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Research: Congenital diaphragmatic eventration and hernia sac compared to CDH with true defects: a retrospective cohort study.

Eur J Pediatr. 2020 Jan 22. doi: 10.1007/s00431-020-03576-w. [Epub ahead of print] Congenital diaphragmatic eventration and hernia sac compared to CDH with true defects: a retrospective cohort study. Heiwegen K1, van Heijst AF2, Daniels-Scharbatke H3, van Peperstraten MC3, de Blaauw I3, Botden SM3. Author information Abstract Congenital diaphragmatic eventration (CDE) and congenital diaphragmatic hernia (CDH) with or without hernia sac are three different types of congenital diaphragmatic malformations, which this study evaluates. All surgically …

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Research: More than just a cough: Late presentation of congenital diaphragmatic hernia.

J Paediatr Child Health. 2020 Jan 23. doi: 10.1111/jpc.14768. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31971284 More than just a cough: Late presentation of congenital diaphragmatic hernia. Close O1. Author information PMID: 31971284 DOI: 10.1111/jpc.14768

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Research: Comparison of mediastinal shift angles obtained with ultrasound and magnetic resonance imaging in fetuses with isolated left sided congenital diaphragmatic hernia.

J Matern Fetal Neonatal Med. 2020 Jan 23:1-6. doi: 10.1080/14767058.2020.1716714. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31973612 Comparison of mediastinal shift angles obtained with ultrasound and magnetic resonance imaging in fetuses with isolated left sided congenital diaphragmatic hernia. Romiti A1, Viggiano M1, Savelli S2, Salvi S1,3, Vicario R1, Vassallo C1,3, Valfrè L4, Tomà P2, Bonito M5, Lanzone A3,6, Bagolan P1,4, Caforio L1. Author information Abstract Objectives: To compare ultrasound (US) and …

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Research: Educational level and socioeconomic status in patients born with congenital diaphragmatic hernia: A population-based study.

J Pediatr Surg. 2020 Jan 9. pii: S0022-3468(19)30928-5. doi: 10.1016/j.jpedsurg.2019.12.018. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/31982090 Educational level and socioeconomic status in patients born with congenital diaphragmatic hernia: A population-based study. Mesas Burgos C1, Öst E2, Ehrén H2, Frenckner B2. Author information Abstract BACKGROUND: Neurodevelopmental dysfunction is one of the most disabling outcomes for congenital diaphragmatic hernia (CDH) survivors and may have a …

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CDH International at the Global Initiative for Children’s Surgery

CDHi President, Dawn Ireland, once again spoke that the Global Initiative for Children’s Surgery (GICS) event. This happens only every 2 years. Also in attendance where CDHi Medical Advisors, Dr Henry Rice and Naomi Wright, as well as former Advisor, Dr. Neema Kasaje. This year, the event was in Johannasburg, South Africa and attended by …

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Featured Fundraisers For The Week of January 27, 2020

Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: **Please note, these are the fundraisers that have raised $50 or more. Any personal fundraiser that has not reached $50, due to Facebook guidelines, it does not appear in our fundraiser list on the Facebook page to be able to share …

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Featured Cherub of The Week: Jeremy Shane Torrence

February marks CDH International’s 25th Anniversary! The next two weeks we will be looking back on two cherubs that were the reason for the creation of the charity, 25 years ago. Featured cherub of the week is Jeremy Shane Torrence, “Shane.”  Shane was born with left-sided CDH and multiple birth defects and passed away at …