Congenital Diaphragmatic Hernia is not just a hole! Help to raise CDH Awareness around the world!
CDH is a birth defect that occurs when a baby’s diaphragm (a thin sheet of muscle that separates the abdomen from the chest) fails to fully form, allowing abdominal organs to enter the chest cavity and prevent lung growth. CDH occurs in approximately 1 in 2500 births, with over 1600 babies diagnosed each year in the United States alone. There is currently no known cause.
84 Countries, Dozens of CDH Charities and 1000’s of CDH Families, Friends and Researchers unite to raise Congenital Diaphragmatic Hernia Awareness
Congenital Diaphragmatic Hernia Awareness Day is April 19th and recognized by patients, hospitals, charities and governments around the world! Click here to learn why this day was chosen.
Go see light ups, participate in fundraisers, hold your own event and more by clicking the button below!
In 2025, we celebrate 30 years of serving the Congenital Diaphragmatic Hernia patients!
From the first CDH charity in the US (and 2nd in the world), to the first CDH patient natural history research registry.... from parades and the Global CDH Awareness Day, to supporting 1000's of patients and families in 84 countries, CDH International built the Congenital Diaphragmatic Hernia community!
Every year, states, provinces and towns proclaim April as “Congenital Diaphragmatic Hernia Awareness Month”. The United States Senate has proclaimed April as “Congenital Diaphragmatic Hernia Awareness Month" many times!
View the list of 2025 proclamations and learn how you can ask your mayor to write one as well.
Every year we post the names of all the CDH patients who are members of CDH International and who give permission to be listed. Scroll through the 1000's of names and donate $5 to add an addition ribbon by the name of someone you love born with Congenital Diaphragmatic Hernia to help us serve more patient families in their time of need.
CDH is one of the most expensive and least funded birth defects. Funding is needed for research, awareness efforts, family support services, patient expenses, funerals, scholarships and more.
CDHi is a registered charity in the US, UK, Canada, Switzerland, Netherlands, Hong Kong and Singapore.
CDH International is a registered 501c3 non-profit organization,
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