CDH International is proud to announce a partnership with the National Institutes of Health, National Institutes of Child Health and Disease and the Gabriella Miller Kid’s Fund to coordinate research of Congenital Diaphragmatic Hernia.
This partnership will allow more CDH researchers access to the Kids First Database, more funding options and will also alleviate some of the stress on the staff of the NICHD by working directly with researchers to involve them in this project, helping to approve grant applications and finding other forms of research funding for those who are not funded by NIH.
CDH International is one of only a few nonprofits involved in the Kids First initiative, with our President, Dawn Ireland, the advocate liaison for structural birth defects and one of our Medical Advisors, Dr. Wendy Chung, the medical liaison. Ms. Ireland has been working with NICHD and the database engineers at the Children’s Hospital of Philadelphia for 3 years on this project, along with other leaders such as the March of Dimes, the American Academy of Pediatrics and more.
Long term, this will bring about more push at NIH for CDH, more research, more patient involvement in research and a better future for children born with Congenital Diaphragmatic Hernia.