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CDH International in the news
07 November, 2018

This past weekend at the 2018 AAP Conference in Orlando, CDHi debuted our brand new “Giving Wings to CDH Awareness” banner, which is adorned with the names of all of our Cherubs, both surviving and non-surviving. This is a new awareness campaign banner that will…

07 November, 2018

Congenital diaphragmatic hernia (CDH) and associated pulmonary hypoplasia (PH) are thought to be caused by a malformation of the diaphragmatic and pulmonary mesenchyme. Dispatched RND transporter family member 1 (Disp-1) encodes a transmembrane protein that regulates the release of cholesterol and palmitoyl, which is critical…

07 November, 2018

Overgrowth syndromes are rare genetic disorders characterized by excessive pre- and postnatal growth accompanied by dysmorphic features and developmental disorders. In addition to other health hazards, the life expectancy of affected children may be compromised due to an increased risk of developing tumors. To demonstrate…

07 November, 2018

This week’s featured volunteer is Michele Sengsourya. Michele is the mommy of Cherub Einya Elizabeth Sengsourya, who was born on October 23, 2012 and passed away on November 17, 2012. Michele has been volunteering with us for years and most recently helped us with our…

07 November, 2018

Featured cherub of the week is Liz Plakholm. Liz is a 16 year old survivor of CDH. On June 18, 2018, Liz held her 6th Annual Walk for CHERUBS.  It was a huge success! She has raised more than $14,525 in total over those 6…

07 November, 2018

This week we want to thank Dr Wendy Chung, MD, PhD, with Columbia University and DHREAMS for Bringing Hope Around the World to our CDH Families. She is a superhero in our CDH community and to many other rare disease communities and organizations. She’s a…