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Research: “Rate and Risk Factors Associated with Autism Spectrum Disorder in Congenital Diaphragmatic Hernia”

To determine the rate and predictors of autism spectrum disorder (ASD) in congenital diaphragmatic hernia (CDH). Between 06/2004 and 09/2015 a total of 110 CDH survivors underwent neurodevelopmental (ND) testing and screening for ASD, followed by a full autism diagnostic evaluation if indicated at our institution. We found a 9 time higher rate of ASD …

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Research: “Characteristics of Infants With Congenital Diaphragmatic Hernia Who Need Follow-Up of Pulmonary Hypertension”

Pulmonary hypertension is one of the main causes of mortality and morbidity in patients with congenital diaphragmatic hernia. Currently, it is unknown whether pulmonary hypertension persists or recurs during the first year of life. Pulmonary hypertension was measured using echocardiography and electrocardiography at 6 and 12 months old. Characteristics of patients with persistent pulmonary hypertension were compared …

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CHERUBS Toronto Blue Jays Game and Family Gathering

Our wonderful Canada International Representive, Amanda Plakholm, organized a CHERUBS Get Together for families at the Toronto Blue Jays game last month that was a huge success! This was the 4th annual Cherubs Blue Jays Game gathering, where CDH families and friends are able to come together to raise CDH Awareness. Everyone enjoyed getting together …

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CDHi Lobbies in DC with Families and Board Members

The CDHi team, along with some of our beloved CHERUBS members, took on Washington DC at the end of April to lobby in Congress for an inquiry to the NIH in reference to the funding given for Congenital Diaphragmatic Hernia. We met with state and local representatives from North Carolina, Ohio, New York, Virginia, Utah, …

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CDHi Attends National Nurse Networking Event in DC

CDHi had the pleasure of attending the National Nurse Networking Event (NNE) in Washington DC last month, where we were able to spread awareness of CDH and make new connections throughout the medical community. The NNE boasted a conference hall filled with medical company representatives, nursing school programs, products for medical staff, and many other …

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CDHi at 22nd International Conference on Neonatology and Perinatology

‪Last week we were in Frankfurt, Germany to attend a Neonatology, Perinatalogy, Pediatrics and Pediatric Surgery Conference. We were able to engage with prominent scientists, students and ambassadors to share and emphasize various research works and contribute to the vast growing field of neonatal and perinatal research.

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CDH International Welcomes Augusto Zani to the Medical Advisory Board

After completing his Paediatric Surgical training in Italy, Dr. Zani moved to the United Kingdom for a 3-year full-time dedicated research post leading to a PhD at University College London to refine his academic training. Following this period, he was offered to advance his clinical training in the UK working in world famous teaching institutions …

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