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RESEARCH: “Outcomes for thoracoscopic versus open repair of small to moderate congenital diaphragmatic hernias”

Indications for thoracoscopic versus open approaches to repair congenital diaphragmatic hernia (CDH) are unclear as the variability in defect size, disease severity and patient characteristics pose a challenge. Few studies use a patient and disease-matched comparison of techniques. We aimed to compare the clinical outcomes of open versus thoracoscopic repairs of small to moderate sized hernia defects …

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RESEARCH: “Fetal tracheal occlusion in mice: a novel transuterine method”

Fetal tracheal occlusion (TO) is an emerging surgical therapy in congenital diaphragmatic hernia that improves the fetal lung growth. Different animal models of congenital diaphragmatic hernia and TO present advantages and disadvantages regarding ethical issues, cost, surgical difficulty, size, survival rates, and available genetic tools. We developed a minimally invasive murine transuterine TO model, which will be useful in defining how TO …

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JOB OPPORTUNITY: Grant Writer / Fundraiser

23-year-old international medical non-profit based locally in Wake Forest, NC is looking for a part-time grant writer/fundraiser. Job duties will include finding and applying for operating and research grants, following up on all grant applications, networking with potential donors and grantors, planning and executing large annual gala, assisting with annual on-line telethon, overseeing fundraising committees, …

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VIDEO: Dr. Jay Wilson in “History of Medicine Series: Congenital Diaphragmatic Hernia”

This video is an installment of OPENPediatric’s History of Medicine series, in which they discuss the history of modern medicine with experts from around the globe. In this video, Dr. Jay Wilson, Senior Associate of Surgery and Critical Care at Boston Children’s Hospital, Associate Professor at Harvard Medical School, and one of our proud Medical Advisory Board …

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RESEARCH: “Treprostinil Improves Persistent Pulmonary Hypertension Associated with Congenital Diaphragmatic Hernia”

We conducted a retrospective cohort study of infants with CDH-associated pulmonary hypertension treated with treprostinil from January 2011 to September 2016. Severity of pulmonary hypertension was assessed by echocardiogram and serum B-type natriuretic peptide (BNP) by using time points before initiation and 24 hours, 1 week, and 1 month after treprostinil initiation. Fisher exact tests, …

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RESEARCH: “Defining outcomes following congenital diaphragmatic hernia using standardised clinical assessment and management plan (SCAMP) methodology within the CDH EURO consortium”

Treatment modalities for neonates born with congenital diaphragmatic hernia (CDH) have greatly improved in recent times with a concomitant increase in survival. In 2008, CDH EURO consortium, a collaboration of a large volume of CDH centers in Western Europe, was established with a goal to standardize management and facilitate multicenter research. However, limited knowledge on …

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CDH International Attends La Vida Con Hernia Diafragmática Congénita Conference in Barcelona

Earlier this month, we joined our friends at La vida con Hernia Diafragmática Congénita for their annual conference  in Barcelona, Spain. They are a fellow Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO) charity and had many thought-provoking speakers over the conference weekend.  We were so happy to meet up with many of the members of …

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Featured Patient: Ricardo Rodriquez

Reprint from https://www.theguardian.com/football/2018/jun/07/ricardo-rodriguez-switzerland-defender-milan-emergency-surgery?CMP=share_btn_fb Ricardo Rodriguez: Swiss defender who was given a 50% chance of living Milan left-back was born with his stomach and liver in his chest but survived emergency surgery and never forgets his roots This article is part of the Guardian’s 2018 World Cup Experts’ Network, a cooperation between some of the best …

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CDHi Attends 7th International Conference on Clinical Neonatology

Last week, CDH International attended the ICCN congress in Torino, Italy. We made connections with more neonatologists, nutritionists and other neonatal specialists. Collaboration with all the people involved in patient care is incredibly important when fighting a defect such as Congenital Diaphragmatic Hernia, and we are grateful for all the  new connections we have made …

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