- Page 255 of 255 - CDH International - A global initiative to stop Congenital Diaphragmatic Hernia

Research: Current Practices in the Management of CDH Patients Requiring Extracorporeal Membrane Oxygenation: Results of an International Survey of Pediatric Surgeons

by Dawn Irelandupdated on December 19, 2017December 25, 20170

There is little consensus on optimal management for congenital diaphragmatic hernia extracorporeal membrane oxygenation (CDH ECMO) patients. Meaningful comparisons of the various approaches have been limited due to the low number of cases in institutions. In addition, the multidisciplinary reliance and rigid institutional framework of ECMO serve to further limit exposure to alternative practices. The …

Uncategorized

Research: Lung and Liver growth and retinoic acid status in human fetuses with CDH

by Dawn Irelandupdated on December 19, 2017December 23, 20170

Comment on “Lung and Liver growth and retinoic acid status in human fetuses with congenital diaphragmatic hernia”. Read the study in its entirety here: https://www.ncbi.nlm.nih.gov/pubmed/29239744 You can also visit our CDH Research Library at https://cdhboards.org/vblinklist.php.

Uncategorized

Research: Vitamin A in human fetuses with CDH

by Dawn Irelandupdated on December 19, 2017December 21, 20170

Vitamin A status in human fetuses with congenital diaphragmatic hernia: (Author reply to comment by Rocke AW and Clugston RD). Read the study in its entirety here: https://www.ncbi.nlm.nih.gov/pubmed/29239745 You can also visit our CDH Research Library at https://cdhboards.org/vblinklist.php.

Uncategorized

Research: Non-isolated Diaphragmatic Hernia in Simpson-Golabi-Behmel Syndrome

by Dawn Irelandupdated on December 19, 2017December 19, 20170

Congenital diaphragmatic hernia (CDH) is associated with Simpson-Golabi-Behmel syndrome (SGBS), but few cases diagnosed prenatally have been reported. The aim of this series is to highlight the association of non-isolated CDH with SGBS type I on prenatal ultrasound and emphasize the importance of genetic testing, fetal autopsy and family history in confirming this diagnosis. …

Uncategorized

2017 CHERUBS Conference for CDH Families

by Dawn Irelandupdated on January 31, 2018August 30, 20170

The last annual CHERUBS Conference took place in July, 2017 in Salt Lake City Utah and was attended by over 100 people. The next conference to be held in the United States will be in 2019 and called the CDHi Family Conference. Location to be announced soon. European families can attend the ACDHO …

Uncategorized

CDHi at the 2017 CDH Conference

by Dawn Irelandupdated on January 30, 2018July 7, 20170

2015 CDH Conference Hosted by CHERUBS and ACDHO

CDH International is excited to participate in CHERUBS annual 2017 International CDH Conference, for families. We look forward to presenting the CDH Research Database, discussing our collaboration with DHREAMS (who will also be in attendance), meeting with families and answering questions about the future goals of CDHi. Register to attend the largest annual CDH event …

Uncategorized

Press Release

by Dawn Irelandupdated on December 7, 2017June 28, 20170

PRESS RELEASE: For immediate release New Organization Leads the Way in CDH Research 20 year old charity expands to raise survival rates for birth defect. WAKE FOREST, N.C. – July 7, 2017: The Association of Congenital Diaphragmatic Hernia Research, Awareness, and Support – CHERUBS – is undergoing an organizational restructuring and …

Uncategorized

Collaboration Between 3 CDH Research Studies (Video)

by Dawn Irelandupdated on January 5, 2018April 13, 20160

Dr. Matt Harting of the University of Texas and CDH Study Group

Join the CDH Study Group, DHREAMS, CHERUBS and CDH International in the quest to find the cause and best treatments for Congenital Diaphragmatic Hernia. DHREAMS – http://cdhgenetics.com/ CHERUBS – http://www.cdhresearch.org CDH Study Group – https://med.uth.edu/pediatricsurgery/research/research-centers-and-programs/cdhsg/ CDH International – https://www.cdhi.org

Uncategorized

Disclaimer

by Dawn Irelandupdated on October 5, 2020October 5, 20150

The information found on this web site, materials and at our events is for education purposes only. It is not intended to replace proper medical advice given by a patient’s medical care providers. CDH International does refer medical care providers or any procedures. We do our best to keep the information on our web site …

Uncategorized

Virtual CDH Awareness Month Ribbons Available Now!

by Dawn Irelandupdated on March 26, 2020March 25, 02000

April is Congenital Diaphragmatic Hernia Awareness Month! Starting April 1st, we will be celebrating CDH Awareness Month by displaying official CDH ribbons next to the names of cherubs on our website (www.CDHI.org) for the entire month. For a $5 donation, we will add another ribbon next to the name of your cherub! Please type the full …