The winner of the 2018 CDHi T-Shirt Design Contest is Tiffany Gordan! Tiffany Gordan’s “CDH Lung Design” was voted the best design by CDH families. Tiffany is the mom to CDH survivor, Holden. Spread your love and support for CDH awareness wherever you go with this “CDH Lungs Design,” created by Tiffany. https://cdhawarenessshop.org/collections/apparel/products/womens-cdh-lungs-tee Thank you …
Our featured cherub of the week is Chris Cavalier. Chris is a 32 year old survivor of CDH. His CDH story can be found on his family’s website at http://ecmosurvivor.com. A book about him has also been published and is available through Amazon and in stores at Barnes and Noble, the title is “Alive by Grace: A …
We would like to thank Dr. Kamlesh S. Macwan, MD, and RN’s Kristin Aigner and Lora Simonsonwith OSF Saint Francis Medical Center in Peoria, Illinois, for Bringing Hope Around the World to our CDH Families! This wonderful doctor and nurses were brought to our attention by Terry King German, mom to cherub Skylar, “we can NEVER …
Volunteer Melanie Hensley is our volunteer of the week. Melanie is a member of our Welcoming Committee and volunteers anywhere else we need help with. We appreciate her so much and are so happy she is a part of our team. Melanie is the mom to 4 beautiful girls. Melanie Hensley is the mother of …
Previous studies comparing extracorporeal membrane oxygenation (ECMO) modality for congenital diaphragmatic hernia (CDH) have not accounted for confounding by indication. We therefore hypothesized that using a propensity score (PS) approach to account for selection bias may identify outcome differences based on ECMO modality for infants with CDH. Click HERE to read more.
Background: ECMO therapy is worldwide declining in the neonatal population; hence, its therapeutic value is sometimes questioned. Objectives: To report our experience with neonatal ECMO due to respiratory failure over a 28 year time period. Methods: Retrospective single center observational study including all neonates admitted to ECMO due to respiratory failure between 1989 and 2016 at Graz, Austria. …
Diaphragmatic and hiatus hernias can cause mild chronic symptoms or have an acute presentation with gastric volvulus and obstruction. Elective or emergency surgery is indicated in symptomatic patients and nowadays is generally performed laparoscopically. We report four different types of hernias: a giant hiatus hernia following a gastric pull-up for recurrent congenital diaphragmatic hernia; a …
The congenital midline defects of peritoneopericardial diaphragmatic hernia (PPDH) and omphalocele are believed to be related developmental defects, and have both been described in cats and dogs. This case series describes multiple cases of PPDH and omphalocele in related cats. The majority of cats affected with midline defects (PPDH or omphalocele) were male, consistent with …
Click HERE to see our newest addition to the CDH Awareness Shop! This design was created by CHERUBS member Tiffany Gordan for our 2018 CDHi T-Shirt Design Contest! Thank you to everyone who participated by submitting designs and voting for your favorites.
We would like to thank Dr. C. Jason Smithers, MD, with Boston Children’s Hospital for Bringing Hope Around the World to our CDH families. Anthony Croce, dad to cherub Jordan, had this to say about Dr. Smithers: “I would like to give tribute to Children’s Hospital of Boston. We found out 6 months along that …
Hi! My name is Lisa Baxter. I live in Burke, VA with my husband Jeff, and our CDH survivor Lindsey. We were diagnosed at 20 weeks with one heart defect, then another at 24 weeks, and finally CDH at 27 weeks. At the time, we were living in South Carolina. We were referred to Columbia, …
Featured Cherub of the week is cherub Jayden Gilbert. Jayden is the son of Alicia Gilbert, our Oregon Hospital Angel for CHERUBS. Jayden lived for 23 days here on earth and is forever in our hearts. Both Alicia and her mom, Shelly Moore, have done so much to raise awareness for CDH and help other …
