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President of CDHi the Keynote Speaker at Pediatrics 2018 Conference

Last week, our president Dawn Ireland was the keynote speaker at Pediatrics 2018, a conference in Amsterdam that includes several pediatric specialties. She spoke on our 20-year retrospective of the CDH Natural History database. Ms. Ireland also gave an impassioned 45 minute speech on the story of our organization and why patient and parent involvement …

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RESEARCH: Circulating microRNAs are associated with Pulmonary Hypertension and Development of Chronic Lung Disease in Congenital Diaphragmatic Hernia

Congenital diaphragmatic hernia (CDH) is a rare developmental defect of the diaphragm, causing considerable morbidity and mortality1,2. Morphological changes are present from an early developmental stage, consisting of increased muscularization of the pulmonary vessels, rarefication of pulmonary arterioles and capillaries, and a decreased alveolar density3. Consecutively, most CDH newborns present with pulmonary hypertension (PH) and …

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VIDEO: Dr. Jay Wilson in “History of Medicine Series: Congenital Diaphragmatic Hernia”

This video is an installment of OPENPediatric’s History of Medicine series, in which they discuss the history of modern medicine with experts from around the globe. In this video, Dr. Jay Wilson, Senior Associate of Surgery and Critical Care at Boston Children’s Hospital, Associate Professor at Harvard Medical School, and one of our proud Medical Advisory Board …

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RESEARCH: “Treprostinil Improves Persistent Pulmonary Hypertension Associated with Congenital Diaphragmatic Hernia”

We conducted a retrospective cohort study of infants with CDH-associated pulmonary hypertension treated with treprostinil from January 2011 to September 2016. Severity of pulmonary hypertension was assessed by echocardiogram and serum B-type natriuretic peptide (BNP) by using time points before initiation and 24 hours, 1 week, and 1 month after treprostinil initiation. Fisher exact tests, …

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RESEARCH: “Defining outcomes following congenital diaphragmatic hernia using standardised clinical assessment and management plan (SCAMP) methodology within the CDH EURO consortium”

Treatment modalities for neonates born with congenital diaphragmatic hernia (CDH) have greatly improved in recent times with a concomitant increase in survival. In 2008, CDH EURO consortium, a collaboration of a large volume of CDH centers in Western Europe, was established with a goal to standardize management and facilitate multicenter research. However, limited knowledge on …

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CDH International Attends La Vida Con Hernia Diafragmática Congénita Conference in Barcelona

Earlier this month, we joined our friends at La vida con Hernia Diafragmática Congénita for their annual conference  in Barcelona, Spain. They are a fellow Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO) charity and had many thought-provoking speakers over the conference weekend.  We were so happy to meet up with many of the members of …

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CDHi Attends 7th International Conference on Clinical Neonatology

Last week, CDH International attended the ICCN congress in Torino, Italy. We made connections with more neonatologists, nutritionists and other neonatal specialists. Collaboration with all the people involved in patient care is incredibly important when fighting a defect such as Congenital Diaphragmatic Hernia, and we are grateful for all the  new connections we have made …

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CDH International Participates in EuroELSO Conference in Prague

Earlier this week, CDH International participated in EuroELSO’s annual conference in Prague. There were many wonderful speakers in attendance, including Dr. Dick Tibboel, a member of our Medical Advisory Board (pictured with Dawn Ireland, President of Cdhi, in the photo to the right). CDH International is a proud member of ELSO, supporting ECMO research, collaboration, …