Do you have the time and heart to give to a charity to help 1000’s of critically ill children? We need you! Do you have skills and experience that can benefit the cause? Yes? Great! We need you! No? We will teach you!
The following lists show open positions at our charity that are currently unfilled or temporarily filled by overwhelmed volunteers who need your help.
If interested, please fill out the form at the bottom of this web page.
Awareness, Marketing, & Patient Engagement
| Project | Role | Committee/Dept | Job Description | Current Volunteer |
|---|---|---|---|---|
CDH Awareness | Awareness Co-Chair | Awareness Committee | Oversees and is responsible for all duties within Awareness Department, creates annual plan and schedule, works with Chairs and Marketing Department | (2 positions) – Jennifer Doolan – |
| Marketing | VP of Marketing | Awareness Committee & Board of Directors | Oversees and is responsible for all duties within Marketing Department, creates annual plan and schedule, creates templates | Dawn Ireland (temporarily) |
| Light Ups | Chair | Awareness Committee | Recruit, train, and help light up volunteers. Ensure all requests are made and posted. Help families who request light ups. | Jennifer Doolan |
| Light Ups | Volunteers | Awareness Committee | Request light ups from landmarks around the world, follow up with requests. Create events, blog posts, graphics and videos. Post on social media and update annual list. | (5 positions) – Jennifer Doolan – Sabine – Tina Ingham |
| Proclamations | Chair | Awareness Committee | Recruit, train, and help proclamation volunteers. Ensure all requests are made and posted. Help families who request light ups. | |
| Proclamations | Volunteers | Awareness Committee | Request proclamations from governors and mayors and follow up with requests. Create events, blog posts, graphics and videos. Post on social media and update annual list. | (3 positions) |
| CDH Awareness Shop | Shop Manager | Awareness Committee, Fundraising Committee | Create, sell, update, promote CDH Awareness items on various platforms | Dawn Ireland |
| Cherub A Day Posts | Volunteer | Awareness Committee | Create and post a social media graphic each day of a photo of a CDH patient | Jennifer Doolan |
| Special Days | Volunteer | Awareness Committee | Create and post 2 social media graphic2 each day for birthdays and angelversaries | Tracy Meats |
| Telethon | Host & Producer | Awareness Committee | Recruit patient families and celebrities for videos or interviews, edit all videos, create and host live or pre-taped annual telethon, create and post all social media videos and graphics, tally up results, engage viewers, update YouTube. (Approximately 5 hours per week). | Dawn Ireland (temporarily) |
| Graphics | Volunteers | Awareness Committee | Create graphics for social media posts, events, and shop items | Dawn Ireland (temporarily) |
| Radio Show / Podcasts | Radio Show Hosts | Awareness Committee | Find and interview patient families, doctors, and patients for video interviews. Edit videos for pod cast, telethon, and social media posts.(Approximately 7 hours per week). | (5 positions) – Caroline King – Dawn Ireland – Ashley Barry – – |
| CDH Magazine | Magazine Editor | Awareness Committee | Glossy, publishable magazine issues. Gather patient stories, articles, photos, and sponsors. Create, edit, post, and promote issues.(Approximately 20 hours per month). | |
| CDH Newsletter | Newsletter Editor | Awareness Committee | Weekly electronic newsletters. Use software to pull posts from our sites to automatically create newsletter. Edit and proof newsletter. Post on social media. (Approximately 2 hours per week). | |
| Copywriting | Copywriters | Awareness Committee, Patient Engagement Committee | Edit current publications and create new publications to raise awareness and help support patients and families. | |
| SEO | Volunteer | Marketing Department | Maintain Search Engine Optimization on all organization web sites. | Mark Stamper |
Patient Engagement
| Project | Role | Committee/Dept | Job Description | Current Volunteer |
|---|---|---|---|---|
| CDH Research Registry | Patient Engagement Chair | Research Dept | Recruit patients and families for the CDH Research Registry and other research projects. (Approximately 2 hours per week). | Dawn Ireland |
| Patient Engagement | Volunteers | Patient Engagement Committee | Manages forums, engages families, recruits for research, plans annual conference, keeps updated resource list for families. (Approximately 5 hours per week). | (5 positions) Dawn Ireland (temporarily) |
| Social Media | Social Media Manager | Marketing Committee | Plan and design social media posts for the year. Oversee Platform Managers. . (Approximately 5 hours per week). | Dawn Ireland (temporarily) |
| CDH Forums | Forums Admin | Patient Engagement Committee | Engage families, respond to messages and comments, monitor account, monitor groups. (Approximately 5 hours per week). | (5 positions) Dawn Ireland (temporarily) |
| Platform Manager | Marketing Committee | Engage families, respond to messages and comments, monitor account, monitor groups. (Approximately 4 hours per week). | (2 positions) – Tina Ingham – | |
| Platform Manager | Marketing Committee | Engage families, respond to messages and comments, monitor account. (Approximately 2 hours per week). | (2 positions) – Tina Ingham – | |
| TikTok | Platform Manager | Marketing Committee | Engage families, respond to messages and comments, monitor account. (Approximately 4 hours per week). | (2 positions) Dawn Ireland (temporarily) |
| X | Platform Manager | Marketing Committee | Engage families, respond to messages and comments, monitor account. (Approximately 2 hours per week). | Dawn Ireland |
| Discord | Platform Manager | Marketing Committee | Engage families, respond to messages and comments, monitor account. (Approximately 2 hours per week). | Dawn Ireland (temporarily) |
| Platform Manager | Marketing Committee | Engage families, respond to messages and comments, monitor account. (Approximately 2 hours per week). | Dawn Ireland (temporarily) | |
| CDH Yearbook | Yearbook Editor | Patient Engagement Committee | Glossy, publishable yearbooks. Gather patient stories, articles, photos, and sponsors. Create, edit, post, and promote issues. (Approximately 5 hours per week). |
Fundraising
* some positions involve commission pay (Executive Board approved first, following all state & federal laws)
| Project | Role | Committee/Dept | Job Description | Current Volunteer |
|---|---|---|---|---|
| Grants | Grant Writer | Fundraising Dept | Research and submit grant applications on behalf of the organization. Follow up on all reports and grant requirements. (Approximately 20 hours per month). | Dawn Ireland (temporarily) |
| Fundraising | Fundraising Manager | Fundraising Dept | Oversee fundraisers, help families hold fundraisers, engage donors, enroll Angel Club members, hold fundraisers. (Approximately 20 hours per month). | |
| Event Fundraiser | Fundraisers | Fundraising Dept | Hold a fundraising event; plan, organize, recruit volunteers and items, send funds and event write up to CDHRI. | (as many as possible to raise awareness and funds!) |
| Angel Club | Angel Club Chair | Fundraising Dept | Recruit, engage and celebrate club members through social media. (Approximately 10 hours per month). | |
| Angel Ball | Angel Ball Chair | Angel Club Committee | Plan, organize and execute formal ball. Recruit sponsors and volunteers. Vendors and venue. Decoration and clean up. Ticket Sales. Social media posts. (Approximately 20 hours per month). | |
| Shop Affiliates | Affiliate Manager (commission paid) | Fundraising Dept | Engage and encourage current affiliates, recruit affiliates. (Approximately 10 hours per month). | |
| Fundraising | Directors of Fundraising* | Fundraising Department & Executive Board of Directors | Works with/is Fundraising Manager(s). Oversee fundraisers, help families hold fundraisers, engage donors, enroll Angel Club members, hold fundraisers. (Approximately 5 hours per week). | – David Holt – Jill Gibson |
| Cookbook | Cookbook Editor | Fundraising Dept | Engage members and the public to submit recipes, use our template to create and edit the cookbook for publication, promote the cookbook. (Approximately 75 hours). | |
| Calendar | Calendar Editor | Fundraising Dept | Engage members and use our template to create and edit the calendar for publication, promote the calendar. (Approximately 25 hours). | Dawn Ireland |
Research
| Project | Role | Committee/Dept | Job Description | Current Volunteer |
|---|---|---|---|---|
| CDH Research Registry | VP of Research | Executive Board of Directors*, Research Dept | Update CDH Research Registry, engage & recruit patients, Q&A with patient families, write abstracts, make registry multi-lingual, work with researchers on projects. | – Dawn Ireland – Mark Stamper |
| Research Posts | Volunteer | Research Dept | Find the latest CDH Research and post blogs on our web site | Darlene Silverman |
| Lobbying | Lobbyist | Research Dept | Keep updated on legislation, sign off on good patient and research legislation, go to meetings, write CDH legislation, schedule meetings for families | Dawn Ireland (temporarily) |
| Chair | Research Dept Chair | Medical Advisory Board Board* | Board, liaison for research | Dawn Ireland |
| Chair | Patient Advocacy Chair | Patient Advisory Board Board* | Board, liaison for research | Dawn Ireland |
| Medical Advisory Board | Board Member | Medical Advisory Board* | Support research projects | Full list at |
| Patient Advisory Board | Board Member | Patient Advisory Board* | Participate in group discussions with research partners as requested, representing the CDH patient population. | Full list at |
| Hospital Accreditation | Committee Members | CDH Accreditation Committee* | Review applications of CDH hospitals. Visit hospitals | Full list at |
Administrative & Boards (* invitation only)
The following are Board positions and are by invitation only:
| Project | Role | Committee/Dept | Job Description | Current Volunteer |
|---|---|---|---|---|
| Bookkeeping, Tax Forms | Accountant* | Executive Board of Directors | Balance all the books, create budget, do annual tax returns and licenses. (Approximately 5 hours per week). | Dawn Ireland (temporarily) |
| Board Engagement | Board Chair* | Executive Board of Directors | Chair board meetings, take minutes, keep board members engaged, make sure board members complete obligations. (Approximately 5 hours per month). | Dawn Ireland (temporarily) |
Legal | Director of Legal Affairs* | Executive Board of Directors | All legal documents, contracts, court actions, legal proceedings to protect the charity | M. Shane Perry |
| Patient Engagement | Director of Patient Engagement* | Patient Engagement & Executive Board of Directors | Manages forums, engages families, recruits for research, plans annual conferences. Works hand-in-hand with / is Committee Chair for Patient Engagement Committee. (Approximately 20 hours per week). | Dawn Ireland (temporarily) |
| Awareness | Director of Awareness* | Awareness & Executive Board of Directors | Oversees and is responsible for all duties within Awareness Department, creates annual plan and schedule, works with Marketing Department. Works hand-in-hand with / is Committee Chair for Awareness Committee. (Approximately 20 hours per week). | Dawn Ireland (temporarily) |
| Internet Security | Security Manager* | Admin | Fix computers, fix issues, make sure everything is secure. | George Harb |
| Chair | Research Dept Chair* | Medical Advisory Board | Board, liaison for research | Dawn Ireland |
| Chair | Research Dept Chair* | Patient Advisory Board | Board, liaison for research | Dawn Ireland (temporarily) |
| Directors | Directors | Executive Board of Directors | Legal and financial responsibilities for organization. Overseeing all projects, staff, volunteers, funds, property, services, goals, and plans for the organization. Ensure success of the organization and that mission is filled to completion. (Approximately 5 hours per month). | (3 open positions) – Dawn Ireland – Tracy Meats – Rhonda Montague – David Holt – Mark Stamper – M. Shane Perry – Jill Gibson – – – |
| Vice-President | Director* | Executive Board of Directors | Oversees all aspects of the organization, works with the President, manages all committee Chairs and VPs. | Tracy Meats |
| Secretary | Director* | Executive Board of Directors | Oversee board meetings. Take meeting minutes. | M. Shane Perry |
| Web Site | Web Admin | Marketing | Design, update, and fix all organization web sites. Manage all domain names. (Approximately 5 hours per month). | Dawn Ireland (temporarily) |
| Treasurer | Director* | Executive Board of Directors | Works with Bookkeeper to oversee all accounts and financial resources. Files annual reports and tax paperwork. (Approximately 2 hours per month). | Dawn Ireland (temporarily) |
| Volunteers | Volunteer Manager | Admin | Recruit, train, and oversee all organization volunteers. (Approximately 5 hours per week). | Dawn Ireland (temporarily) |
Apply for a Volunteer Position
If interested, please email dawn.ireland@cdhi.org with your name, connection to CDH, contact info, experience, and what position(s) you’d like to help with or fill out this form below (preferred). All volunteers are required to sign legal contracts and are subject to (confidential) background searches to ensure the safety of our organization and the children that we serve.
