The world's oldest, largest and leading Congenital Diaphragmatic Hernia charity.
CDH International
The world's oldest, largest and leading Congenital Diaphragmatic Hernia charity. Created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, raising awareness and furthering research.
Congenital Diaphragmatic Hernia (CDH) is a congenital anomaly that occurs when a baby’s diaphragm fails to form fully, allowing abdominal organs to enter the chest cavity and prevent lung growth.
1 in every 2500 babies is born with CDH. The cause is unknown.
Babies born with CDH undergo complicated surgeries and long hospital stays. In Higher-Income-Countries, the survival rate is approximately 50 to 80%. In Lower-to-Middle-Income-Countries, the survival rate is less than 1%.
CDH International was founded to help find the cause, prevention and best treatments of Congenital Diaphragmatic Hernia while raising awareness and supporting patient families.
We run the global CDH patient registry, fund research, present research, and collaborate with universities, hospitals, and other organizations worldwide.
We support 1000’s of families affected by Congenital Diaphragmatic Hernia through educational materials, care packages, financial assistance, emotional support, and more.
We raise Congenital Diaphragmatic Hernia Awareness around the world through CDH Awareness Day on April 19th, light-ups, legislation, proclamations, and other campaigns.
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