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Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia

Our Mission: CDH International was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness.

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby’s diaphragm (a thin sheet of muscle that separates the abdomen from the chest) fails to fully form, allowing abdominal organs to enter the chest cavity and prevent lung growth.

CDH occurs in approximately 1 in 2500 births, with over 1600 babies diagnosed each year in the United States alone. There is currently no known cause, but studies have suggested that it is likely due to a number of genetic and environmental factors.

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2020 CDH International Scholarship Winner Serena Rush

BREAKING NEWS!!! 2020 CDH International Scholarship Winner! It was very hard to select a winner this year as we had some really great applicants, but the final decision is in: We would like to congratulate our 2020 CDH International Scholarship winner, Serena Rush! From a letter of recommendation, a family friend stated Serena “began her …

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Congenital Diaphragmatic Hernia (CDH) and COVID-19 Study

We are proud to announce a collaboration between Fondazione IRCCS Ca’ Granda, Ospedale Maggiore Policlinico Milan (Italy), Associazione Fa.B.E.D. Famiglie di Bambini con Ernia Diaframmatica and CDH International into the effects of COVID-19 on Congenital Diaphragmatic Hernia patients. You must be a registered member of CDH International to participate and been alive during the COVID-19 …

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CDH Research Studies

The following hospitals and organizations are currently conducting CDH research studies. Each has their own set of guidelines. Some ask for data. Some studies include blood work on all family members, some include oral swabs. Some studies also include grieving families. There is no cost to families to participate in research studies. We encourage members …

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Featured Patient of The Week Henry Blair

CDH International’s featured patient of the week is CDH angel Henry Blair. Henry fought long and hard for 53 days and his mom, Kerri Blair, shares the heart-breaking story of her son, Henry, lost to Congenital Diaphragmatic Hernia. This video originally aired on April 30th during the annual CDH telethon.

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