Laura Tomczyk came to CDHi in 2010. Her nephew passed away from CDH in May of that year and she started to volunteer with the charity. She wanted to see the end of CDH so she continues to work in any capacity she can. She has come on board as part time office manager and …

We created newsletters from letters and stories sent to us. We came pretty far in our first year! This is not our second newsletter. Maybe it’s not even our third. I’ve been plundering through our filing cabinets and walking down memory lane to find all our old newsletters to repost this year. And what memories …

Ask all your genetics questions to Dr. Wendy Chung of the Columbia University backed CDH Research Team CARE. LIVE on February 29, 2020 at https://www.facebook.com/priyanka.ahimaz.7 Facebook Event Page – https://www.facebook.com/events/726826351155434/ “As you may be aware, the PI of our study, Dr. Wendy Chung, will be doing a live webinar on February 29th at 12pm EST …

On April 19th the High Level Bridge in Edmonton, AB Canada will illuminate Blue, Yellow and Pink in support of Congenital Diaphragmatic Hernia Awareness. Facebook Event page – https://www.facebook.com/events/1512374155577221/

On April 19, 2020, the Calgary Tower in Calgary, Alberta, Canada will light up pink, blue and yellow in support of Congenital Diaphragmatic Hernia Awareness. Located 191 meters above the downtown core, the Calgary Tower offers the best view in the city and is a must-see on any visitor’s itinerary. On the Observation Deck you’ll …

Niagara Falls will light up blue, pink and yellow from 10PM until 10:15PM on April 19th for World Congenital Diaphragmatic Hernia Awareness Day. Families can gather on the American side or the Canadian side of the falls. Facebook Event page – https://www.facebook.com/events/2550719765054347/

The governor of the state of Louisiana has proclaimed that April 2020 be a month that citizens of the state to recognize and raise awareness of Congenital Diaphragmatic Hernia. Join us in raising awareness on CDH Awareness Day, April 19th, and all month long. While all states have been requested, we are still requesting mayor …

The governor of the state of Tennessee has proclaimed that April 2020 be a month that citizens of the state to recognize and raise awareness of Congenital Diaphragmatic Hernia. Join us in raising awareness on CDH Awareness Day, April 19th, and all month long. While all states have been requested, we are still requesting mayor …

The governor of the state of Oklahoma has proclaimed that April 2020 be a month that citizens of the state to recognize and raise awareness of Congenital Diaphragmatic Hernia. Join us in raising awareness on CDH Awareness Day, April 19th, and all month long. While all states have been requested, we are still requesting mayor …

Featured cherub of the week is CDH Survivor, Rebel Williams. Rebel is the daughter of Savana and Jamar Williams. They had this to share about their precious daughter: “Like many other families, we found out Rebel had left-sided congenital diaphragmatic hernia (CDH) while I was 18 weeks pregnant. We immediately sought out help and came …

The governor of the state of Arkansas has proclaimed that April 2020 be a month that citizens of the state to recognize and raise awareness of Congenital Diaphragmatic Hernia. Josh Benson, CDH survivor with Arkansas Proclamation. Join us in raising awareness on CDH Awareness Day, April 19th, and all month long. While all states have …