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Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia

Our Mission: CDH International was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness.

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby’s diaphragm (a thin sheet of muscle that separates the abdomen from the chest) fails to fully form, allowing abdominal organs to enter the chest cavity and prevent lung growth.

CDH occurs in approximately 1 in 2500 births, with over 1600 babies diagnosed each year in the United States alone. There is currently no known cause, but studies have suggested that it is likely due to a number of genetic and environmental factors.

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25 Years – Spring 1996 Newsletter

We created newsletters from letters and stories sent to us. We came pretty far in our first year! This is not our second newsletter. Maybe it’s not even our third. I’ve been plundering through our filing cabinets and walking down memory lane to find all our old newsletters to repost this year. And what memories …

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CDH International Participates in the CDH Study Group Conference

Members of CDH International attended the CDH Study Group Conference this month in Houston, TX. President Dawn Ireland presented our research on the CDH Patient Registry. Josh Hensley spoke on the parent pane. And Vice-President Katherine Haney attended to learn more about the research site of our charity. CDH Conference successes: 4 new collaborations 2 …

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CARE (DHREAMS) Speaks Live on Rare Disease Day!

Ask all your genetics questions to Dr. Wendy Chung of the Columbia University backed CDH Research Team CARE. LIVE on February 29, 2020 at https://www.facebook.com/priyanka.ahimaz.7 Facebook Event Page – https://www.facebook.com/events/726826351155434/ “As you may be aware, the PI of our study, Dr. Wendy Chung, will be doing a live webinar on February 29th at 12pm EST …

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Calgary Tower Lights Up For CDH Awareness

On April 19, 2020, the Calgary Tower in Calgary, Alberta, Canada will light up pink, blue and yellow in support of Congenital Diaphragmatic Hernia Awareness. Located 191 meters above the downtown core, the Calgary Tower offers the best view in the city and is a must-see on any visitor’s itinerary. On the Observation Deck you’ll …

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Louisiana Proclaims April CDH Awareness Month

The governor of the state of Louisiana has proclaimed that April 2020 be a month that citizens of the state to recognize and raise awareness of Congenital Diaphragmatic Hernia. Join us in raising awareness on CDH Awareness Day, April 19th, and all month long. While all states have been requested, we are still requesting mayor …

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Tennessee Proclaims April CDH Awareness Month

The governor of the state of Tennessee has proclaimed that April 2020 be a month that citizens of the state to recognize and raise awareness of Congenital Diaphragmatic Hernia. Join us in raising awareness on CDH Awareness Day, April 19th, and all month long. While all states have been requested, we are still requesting mayor …

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Oklahoma Proclaims April CDH Awareness Month

The governor of the state of Oklahoma has proclaimed that April 2020 be a month that citizens of the state to recognize and raise awareness of Congenital Diaphragmatic Hernia. Join us in raising awareness on CDH Awareness Day, April 19th, and all month long. While all states have been requested, we are still requesting mayor …

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Featured Cherub of The Week: Rebel Williams

Featured cherub of the week is CDH Survivor, Rebel Williams. Rebel is the daughter of Savana and Jamar Williams. They had this to share about their precious daughter: “Like many other families, we found out Rebel had left-sided congenital diaphragmatic hernia (CDH) while I was 18 weeks pregnant. We immediately sought out help and came …

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Arkansas Proclaims April CDH Awareness Month

The governor of the state of Arkansas has proclaimed that April 2020 be a month that citizens of the state to recognize and raise awareness of Congenital Diaphragmatic Hernia. Josh Benson, CDH survivor with Arkansas Proclamation. Join us in raising awareness on CDH Awareness Day, April 19th, and all month long. While all states have …

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