A Congenital Diaphragmatic Hernia diagnosis is devastating and often unexpected. Most parents are unaware of CDH until their child is diagnosed – at which point they are thrown into a tailspin of medical jargon, inaccurate information, grim statistics, and well-meaning (yet uninformed) advice. The medical, financial, and emotional strains of CDH touch all members of the family. Thankfully, a strong, well-educated support system can provide relief and encouragement for CDH families when they have nowhere else to turn.
Please click on the tabs to the right to learn more about CHERUBS, the world’s largest CDH support group, as well as other non-profits in the Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO). By the summer of 2018, we will also be publishing a list of accredited, legally-registered charities as a resource for families to quickly find professional organizations with the highest standards of helping families affected by CDH.