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A Congenital Diaphragmatic Hernia diagnosis is devastating and often unexpected. Most parents are unaware of CDH until their child is diagnosed – at which point they are thrown into a tailspin of medical jargon, inaccurate information, grim statistics, and well-meaning (yet uninformed) advice. The medical, financial, and emotional strains of CDH touch all members of the family. Thankfully, a strong, well-educated support system can provide relief and encouragement for CDH families when they have nowhere else to turn.
Please click on the links above to learn more about CHERUBS, the world’s largest CDH support group, as well as other non-profits in the Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO). By the summer of 2020, we will also be publishing a list of accredited, legally-registered charities as a resource for families to quickly find professional organizations with the highest standards of helping families affected by CDH.
You are not alone. Together, we can make a world of difference.
CHERUBS is a grassroots organization that was founded in 1995 to provide support to families affected by Congenital Diaphragmatic Hernia. The charity has since become the world’s largest support group for CDH and has helped over 6,000 families worldwide. CHERUBS provides easy-to-understand information about Congenital Diaphragmatic Hernia, as well as support forums, care packages, local events, conferences, and much more at absolutely no cost to families.
In 2010, CHERUBS became a founding member of the Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO). CDH International is proud to recommend all member organizations of ACDHO, who work together to help families around the world. CHERBUS became a division of CDH International in 2017.
Some of our resources and services:
- CDH Parent Reference Guide
- Annual International CDH Conference
- Local Events
- CDH Baby Book
- CDH Forums
- CDH Patient Registry (participation for parents / survivors over 1 year of age or non-survivors)
- CHERUBS Facebook Group
- CHERUBS Facebook Group for Survivors
- CHERUBS Facebook Group for Older Survivors (13 years and up, surviving patients only)
- On-Call Support
- CHERUBS Facebook Page
- CDH Scholarships
- CDH past pediatrics
- ACDHO Charities (need more support? We recommend these organizations)
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