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CDH Support

Help for families affected by Congenital Diaphragmatic Hernia

A Congenital Diaphragmatic Hernia diagnosis is devastating and often unexpected. Most parents are unaware of CDH until their child is diagnosed – at which point they are thrown into a tailspin of medical jargon, inaccurate information, grim statistics, and well-meaning (yet uninformed) advice. The medical, financial, and emotional strains of CDH touch all members of the family. Thankfully, a strong, well-educated support system can provide relief and encouragement for CDH families when they have nowhere else to turn.

 

Please click on the tabs to the right to learn more about CHERUBS, the world’s largest CDH support group, as well as other non-profits in the Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO). By the summer of 2018, we will also be publishing a list of accredited, legally-registered charities as a resource for families to quickly find professional organizations with the highest standards of helping families affected by CDH.

 

Together, we can make a world of difference.

 

CHERUBS is a grassroots organization that was founded in 1995 to provide support to families affected by Congenital Diaphragmatic Hernia. The charity has since become the world’s largest support group for CDH and has helped over 6,000 families worldwide. CHERUBS provides easy-to-understand information about Congenital Diaphragmatic Hernia, as well as support forums, care packages, local events, conferences, and much more at absolutely no cost to families.

 

In 2010, CHERUBS became a founding member of the Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO). CDH International is proud to recommend all member organizations of ACDHO, who work together to help families around the world. CHERBUS became a division of CDH International in 2017.

 

To learn more, please visit www.cherubs.org.

We know it’s overwhelming learning that your child has Congenital Diaphragmatic Hernia. You are not alone. CHERUBS is here to help you through your journey. To begin our services, please join our membership. It is free, quick and helps to keeps our forums safe, vets out spammers and allows us to help you directly. Your information is 100% confidential. Click Here to Join CHERUBS

More of our services:

  • CDH Parent Reference Guide
  • CDH HOPE Totebag
  • CDH Hospitals
  • CDH Forums
  • CHERUBS Facebook Group
  • On-Call Support
  • CHERUBS Facebook Page
  • Financial Assistance Grant

Expecting Parents

Finding out that the baby you are expecting has a birth defect is heartbreaking. You try to find out as much information as possible and have a hard time processing what the doctors are telling you.

We know it’s a very hard time. You rejoice and grieve all at once. You’re not alone. There are 100’s of families at CHERUBS who know exactly what you are going through. Browse our web site and meet other families. At CHERUBS, we are one big CDH family. Though we wish you had never heard of CDH, we are glad that you found us and we are here for you and will help as much as we can during your journey.

Learn About CDH

Learn all about CDH, knowledge will increase your baby’s chances of survival and a normal life. We try to use the easiest terms possible here, so you don’t have to translate all the medical jargon

Downloadable Resources

Advice From Members
Downloadable Info
CHERUBS Literature

From birth to over 70 years old, CHERUBS membership includes survivors of all ages and all experiences.   Raising a child with CDH or living with Congenital Diaphragmatic Hernia is a life-long journey.   You are not on this journey alone.

 

Some of our resources:

 

  • CDH Parent Reference Guide
  • CDH Forums
  • CDH Patient Registry (participation for parents / survivors over 1 year of age or non-survivors)
  • CHERUBS Facebook Group
  • CHERUBS Facebook Group for Survivors
  • CHERUBS Facebook Group for Older Survivors (13 years and up, surviving patients only)
  • On-Call Support
  • CHERUBS Facebook Page
  • CDH Scholarships
  • CDH past pediatrics
  • ACDHO Charities (need more support?  We recommend these organizations)

CHERUBS offers grieving parents a safe place of support where we understand what a broken heart feels like.

 

Click Here to Join CHERUBS

 

More of our services:

 

  • CDH Parent Reference Guide
  • CDH Forums
  • CHERUBS Facebook Group
  • CHERUBS Facebook Group for Grieving Families
  • On-Call Support
  • CHERUBS Facebook Page
  • Funeral Assistance