Hello Everyone,
This is Dr. Matthew Harting with the CDH Study Group. Like CDH International, the CDH Study Group runs a registry for CDH patients through an international consortium of centers who provide anonymous, physician-side data. These data have resulted in over 70 publications used by physicians who manage patients with CDH worldwide. Collecting data helps all patients and families touched by CDH!
CDH International is working with researchers like me and centers internationally to improve the opportunity to collect patient-side data. With both patient and physician data, we have an incredible and powerful opportunity to learn more about CDH and develop best practices which can optimize outcomes for so many kids!
To get started, you can email CDH International’s research team at research@cdhi.org and they will make sure you’re included in the Patient Registry.
Then, make sure the medical center you and your loved one’s visit are members of the CDH Study Group. You can find out where participating centers are by visiting the CDH Study Group website and we’ll be in touch.
Thank you so much for your continued interest in the fight against CDH.
Best Regards,
Matthew Harting, MD, MS
University of Texas Health Science Center at Houston
Department of Pediatric Surgery
6431 Fannin Street, Suite 5.258
Houston, TX 77030
