It is very simple to request a proclamation from your town’s mayor. Simply go to their web site and find their address or a contact form. You can copy the text below to use. Edit the text in BOLD and add text in the blanks to your own info / town name and send. If you receive a proclamation, please scan it and e-mail to us at awareness@cdhi.org so that we can share. If you are doing this in memory of or in honor of your child, let us know and share pictures as well! Together we can make a difference!
Mayoral Template
Dear Mayor _,
Our charity, CDH International, would like to officially request a proclamation for “Congenital Diaphragmatic Hernia Awareness Day” for April 19, 2023.
We request that all 50 states and the United States Senate and House recognize this every year. My family would really like to include our hometown this year please.
Verbiage is below:
WHEREAS: One in every 2,500 pregnancies are diagnosed with a congenital diaphragmatic hernia (CDH); and
WHEREAS: Congenital Diaphragmatic Hernia occurs when a baby’s diaphragm fails to fully form; allowing abdominal organs into the chest cavity and preventing lung growth; and
WHEREAS: Since 2000, it is estimated that over 700,000 babies have been born with CDH; however, only 50 percent of those babies survived; and
WHEREAS: CDH is as common as Spina Bifida and Cystic Fibrosis; however, very few people know about it or are aware of it; and
WHEREAS: 1,600 babies are born with CDH every year in the United States each year; and
WHEREAS: There are many people living in _ who have been diagnosed with and have survived their CDH, although many families in __ have endured the horrible pain and grief associated with the loss of loved ones with CDH; and
WHEREAS: CDH International is a charity is a 501(c)III organization that was created to help families affected by CDH; and
WHEREAS: Those with CDH often endure multiple surgeries and possible medical complications beyond their diagnosis that include heart defects, pulmonary complications, gastric and intestinal problems, developmental delays, and may require respiratory and medicinal support for years; and
WHEREAS: Raising awareness of this congenital defect will help bring about acceptance and support for those suffering with it and will help advocate for urgently needed medical research and advances.
NOW,
THEREFORE: I, __, Mayor of the Town of _ , hereby proclaim April 19, 2023, to be
Congenital Diaphragmatic Hernia Awareness Day
in _ and encourage all residents to join in this observance.
IN WITNESS WHEREOF, I hereunto set my hand and cause the Great Seal of the Town of _ to be affixed.
Done at the City of _ in the State of __ on this day, [your staff will add this date.]
[Signature of Mayor]
Thank you so very much for your consideration.
Sincerely,
Your Name
Your Address
Your Phone Number
Your E-Mail