We were honored to attend the 2023 International Conference on Prenatal Diagnosis & Therapy Congress in Edinburgh, Scotland, and to represent not only Congenital Diaphragmatic Hernia patients but all Congenital Anomaly patients as the Patient Advocacy organization at the event. CDH International is a proud member of the International Society for Prenatal Diagnosis (ISPD).
By attending this event, we were able to share the patient perspective and experience of being diagnosed prenatally with a fatal diagnosis and what parents need at the time of diagnosis.
Several research connections were made and we look forward to working with new institutions to better serve CDH families, as well as other patient families.
