After many months of hard work, CDH International is very proud to present the brand new 2019 edition of the CDH Parent Reference Guide for Congenital Diaphragmatic Hernia patient families.
CDHi created the first guide in 1995 and it has been updated several times but not completely overhauled. This new edition is due to the labor of love of the CDHi Parent Advisory Board, the many CDH experts on our Medical Advisory Board and input from the 1000’s of patient families who are members of the charity.
The first project of it’s kind to utilize the expertise and experience of such a vast number of stakeholders in the CDH community, the CDH Parent Reference Guide is the go to source of easy to understand information for newly diagnosed patients.
You can download the PDF version here: CDH Parent Reference Guide
The CDH Parent Reference Guide is free to use to any patient family, hospital or charity. Please give credit to CDH International. Translations are being worked on and hope to be published by the end of the year.
Our enormous gratitude goes out to all who made this possible.
