J Perinatol

. 2024 Apr 16.

 doi: 10.1038/s41372-024-01965-9. Online ahead of print. https://pubmed.ncbi.nlm.nih.gov/38627594/

A clinical consensus guideline for nutrition in infants with congenital diaphragmatic hernia from birth through discharge

Patrick Sloan ¹, Sandy Johng ², John M Daniel ³, Christopher J Rhee ⁴, Burhan Mahmood ⁵, Evangelia Gravari ⁶, Susan Marshall ⁷, Ann G Downey ⁶, Katie Braski ⁶, Sharada H Gowda ⁴, Caraciolo J Fernandes ⁴, Vedanta Dariya ⁸, Beth E Haberman ⁹, Ruth Seabrook ¹⁰, Abhishek Makkar ⁸, Brian W Gray ¹¹, Michael W Cookson ¹², Tasnim Najaf ¹³, Natalie Rintoul ¹⁴, Holly L Hedrick ¹⁵, Robert DiGeronimo ², Mark F Weems ¹⁶, Anne Ades ¹⁴, Rachel Chapman ¹⁷, Theresa R Grover ¹², Sarah Keene ¹⁸

Affiliations expand

• PMID: 38627594
• DOI: 10.1038/s41372-024-01965-9

Abstract

Objective: To develop a consensus guideline to meet nutritional challenges faced by infants with congenital diaphragmatic hernia (CDH).

Study design: The CDH Focus Group utilized a modified Delphi method to develop these clinical consensus guidelines (CCG). Topic leaders drafted recommendations after literature review and group discussion. Each recommendation was sent to focus group members via a REDCap survey tool, and members scored on a Likert scale of 0-100. A score of > 85 with no more than 25% outliers was designated a priori as demonstrating consensus among the group.

Results: In the first survey 24/25 recommendations received a median score > 90 and after discussion and second round of surveys all 25 recommendations received a median score of 100.

Conclusions: We present a consensus evidence-based framework for managing parenteral and enteral nutrition, somatic growth, gastroesophageal reflux disease, chylothorax, and long-term follow-up of infants with CDH.

© 2024. The Author(s), under exclusive licence to Springer Nature America, Inc.