J Patient Exp

. 2022 Feb 14;9:23743735221079143. doi: 10.1177/23743735221079143. eCollection 2022. Living With My Baby With Congenital Anomaly: A Qualitative Case Report

Living With My Baby With Congenital Anomaly: A Qualitative Case Report

Nazife Gamze Özer Özlü ^1 2, Fatma Vural ², Zafer Dökümcü ³Affiliations expand

• PMID: 35187226
• PMCID: PMC8852162
• DOI: 10.1177/23743735221079143

Free PMC article

Abstract

This case report was made to understand the emotions, thoughts, and experiences of the mother, who was lying in the long-term neonatal intensive care unit. An individual in-depth interview was conducted once with the mother of the infant with the diaphragm hernia. The interview recorded and lasted approximately 30 min. The data were analyzed by inductive method and themes and codes were created. The mother of the infant with a diaphragmatic hernia was 31 years old, married with 2 children, and employed full-time. The infant was diagnosed antenatally at 37 weeks old, weighed 3.000 g, and was male. As a result of the interview, 3 main themes were identified: “Facing the disease,” “Experiences in intensive care,” and “Change in family life.” The results show that having an infant with congenital anomaly affects the life of all family members and shows the problems experienced strikingly.

Keywords: congenital diaphragmatic hernia; maternal; neonatal intensive care units; qualitative research.

© The Author(s) 2022.