Research: Long-term follow-up of patients with congenital diaphragmatic hernia

World J Pediatr Surg

. 2024 Apr 9;7(2):e000758.

 doi: 10.1136/wjps-2023-000758. eCollection 2024. https://pubmed.ncbi.nlm.nih.gov/38618013/

Long-term follow-up of patients with congenital diaphragmatic hernia

Nicole Cimbak 1Terry L Buchmiller 1

Affiliations expand

Abstract

Neonates with congenital diaphragmatic hernia encounter a number of surgical and medical morbidities that persist into adulthood. As mortality improves for this population, these survivors warrant specialized follow-up for their unique disease-specific morbidities. Multidisciplinary congenital diaphragmatic hernia clinics are best positioned to address these complex long-term morbidities, provide long-term research outcomes, and help inform standardization of best practices in this cohort of patients. This review outlines long-term morbidities experienced by congenital diaphragmatic hernia survivors that can be addressed in a comprehensive follow-up clinic.

Keywords: Congenital Abnormalities; Patient Outcome Assessment; Pediatrics.

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