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Research: Risk Factor for the Development of Hemolysis During Pediatric Extracorporeal Life Support

J Intensive Care Med . 2019 Mar;34(3):259-264. doi: 10.1177/0885066617708992. Epub 2017 May 10. https://pubmed.ncbi.nlm.nih.gov/28486865/ High Hemoglobin Is an Independent Risk Factor for the Development of Hemolysis During Pediatric Extracorporeal Life Support Christopher L Jenks 1 2, Ayesha Zia 3 4, Ramgopal Venkataraman 5 6, Lakshmi Raman 3 4 6Affiliations expand PMID: 28486865 DOI: 10.1177/0885066617708992 Abstract Objective: To evaluate risk factors for hemolysis in pediatric extracorporeal life support. Design: Retrospective, single-center study. Setting: Pediatric intensive care unit. …

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Research: Anaesthetic management of a parturient with spondylothoracic dysostosis

Case Reports BMJ Case Rep . 2020 Jan 23;13(1):e232964. doi: 10.1136/bcr-2019-232964. https://pubmed.ncbi.nlm.nih.gov/31980478/ Anaesthetic management of a parturient with spondylothoracic dysostosis Reine Zbeidy 1, Nathalia Torres Buendia 2, Fouad G Souki 2Affiliations expand PMID: 31980478 PMCID: PMC7035856 (available on 2022-01-23) DOI: 10.1136/bcr-2019-232964 Abstract Spondylothoracic dysostosis is a rare congenital disorder characterised by multiple vertebral malformations, shortening of the spine and fusion of the ribs at the costovertebral junction. These abnormalities …

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Research: Laparoscopic patch repair of a Morgagni hernia in Menkes disease

Case Reports Asian J Endosc Surg . 2020 Sep 10. doi: 10.1111/ases.12865. Online ahead of print. https://pubmed.ncbi.nlm.nih.gov/32914541/ Laparoscopic patch repair of a Morgagni hernia in Menkes disease Silvia Ceccanti 1, Mario Mastrangelo 2, Gianmarco Andreoli 3, Denis A Cozzi 1Affiliations expand PMID: 32914541 DOI: 10.1111/ases.12865 Abstract The association between Morgagni hernia and Menkes disease has not yet been described. Here, we report such a rare association in an 8-year-old …

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Research: A missing kidney and a hidden congenital diaphragmatic hernia

J Clin Ultrasound . 2020 Sep 11. doi: 10.1002/jcu.22916. Online ahead of print. https://pubmed.ncbi.nlm.nih.gov/32915995/ A missing kidney and a hidden congenital diaphragmatic hernia Chanchal Singh 1, Gazala Shahnaz 1, Rakesh Handa 2, Naveen Prakash Gupta 3, Jayasree Sundar 4Affiliations expand PMID: 32915995 DOI: 10.1002/jcu.22916 Abstract Congenital intrathoracic kidney (ITK) is a rare condition, which is usually discovered incidentally in asymptomatic children who do not need any intervention. However, it may …

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Research: Anesthetic management of pulmonary surgery in newborns and infants

Pediatr Rep . 2020 Aug 6;12(2):8595. doi: 10.4081/pr.2020.8595. https://pubmed.ncbi.nlm.nih.gov/32922712/ Anesthetic management of pulmonary surgery in newborns and infants Marco Caruselli 1, Daniele Galvagni 1, Julia Boubnova 2, Fabrice Michel 3Affiliations expand PMID: 32922712 PMCID: PMC7461635 DOI: 10.4081/pr.2020.8595 Free PMC article Abstract The main congenital pulmonary airways malformations in newborns and infants requiring surgery are cystic adenoid malformation, congenital lobar emphysema and bronchogenic cyst. The surgical treatment preferably via …

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Research: Fetoscopic endoluminal tracheal occlusion reverses the natural history of right-sided congenital diaphragmatic hernia: a European multicenter experience

Ultrasound Obstet Gynecol . 2020 Sep 13. doi: 10.1002/uog.23115. Online ahead of print. https://pubmed.ncbi.nlm.nih.gov/32924187/ Fetoscopic endoluminal tracheal occlusion reverses the natural history of right-sided congenital diaphragmatic hernia: a European multicenter experience F M Russo 1 2, A-G Cordier 3 4, D Basurto 2, L Salazar 5, E Litwinska 6, O Gomez 5, A Debeer 2 7, J Nevoux 8, S Patel 9, L Lewi 1 2, A Pertierra 10, M Aertsen 11 12, E Gratacos 5, K Nicolaides 6, A Benachi 3 4, J Deprest 1 2Affiliations expand PMID: 32924187 DOI: 10.1002/uog.23115 Abstract Objective: To examine neonatal outcome of fetuses …

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Research: Bedside surgery in the newborn infants: survey of the Italian society of pediatric surgery

Ital J Pediatr . 2020 Sep 16;46(1):134. doi: 10.1186/s13052-020-00889-2. https://pubmed.ncbi.nlm.nih.gov/32938472/ Bedside surgery in the newborn infants: survey of the Italian society of pediatric surgery Gloria Pelizzo 1, Pietro Bagolan 2, Francesco Morini 2, Mariagrazia Aceti 3, Daniele Alberti 4, Mario Andermarcher 5, Luigi Avolio 6, Fabio Bartoli 7, Vito Briganti 8, Sebastiano Cacciaguerra 9, Francesco S Camoglio 10, Pierluca Ceccarelli 11, Maurizio Cheli 12, Fabio Chiarenza 13, Enrico Ciardini 5, Marcello Cimador 14, Ennio Clemente 15, Denis A Cozzi 16, Luigi Dall’ Oglio 17, Ugo De Luca 18, Carmine Del Rossi 19, Ciro Esposito 20, Diego Falchetti 21, Silvana Federici 22, Piergiorgio Gamba 23, Valerio Gentilino 24, Girolamo Mattioli 25, Ascanio …

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Research: High-frequency vs. conventional ventilation at the time of CDH repair is not associated with higher mortality and oxygen dependency: a retrospective cohort study

Pediatr Surg Int . 2020 Sep 16. doi: 10.1007/s00383-020-04740-x. Online ahead of print. https://pubmed.ncbi.nlm.nih.gov/32939579/ High-frequency vs. conventional ventilation at the time of CDH repair is not associated with higher mortality and oxygen dependency: a retrospective cohort study Gabrielle Derraugh 1, Matthew Levesque 1, Daryl Schantz 2, Molly Sesha 3, John Minski 4, John Baier 3, Melanie I Morris 1, Anna C Shawyer 1, Robert Balshaw 5, Suyin A Lum Min 1, Richard Keijzer 6Affiliations expand PMID: 32939579 DOI: 10.1007/s00383-020-04740-x Abstract Purpose: The VICI-trial …

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2020 CDH International Scholarship Winner Serena Rush

BREAKING NEWS!!! 2020 CDH International Scholarship Winner! It was very hard to select a winner this year as we had some really great applicants, but the final decision is in: We would like to congratulate our 2020 CDH International Scholarship winner, Serena Rush! From a letter of recommendation, a family friend stated Serena “began her …

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Congenital Diaphragmatic Hernia (CDH) and COVID-19 Study

We are proud to announce a collaboration between Fondazione IRCCS Ca’ Granda, Ospedale Maggiore Policlinico Milan (Italy), Associazione Fa.B.E.D. Famiglie di Bambini con Ernia Diaframmatica and CDH International into the effects of COVID-19 on Congenital Diaphragmatic Hernia patients. You must be a registered member of CDH International to participate and been alive during the COVID-19 …

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CDH Research Studies

The following hospitals and organizations are currently conducting CDH research studies. Each has their own set of guidelines. Some ask for data. Some studies include blood work on all family members, some include oral swabs. Some studies also include grieving families. There is no cost to families to participate in research studies. We encourage members …

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Featured Patient of The Week Henry Blair

CDH International’s featured patient of the week is CDH angel Henry Blair. Henry fought long and hard for 53 days and his mom, Kerri Blair, shares the heart-breaking story of her son, Henry, lost to Congenital Diaphragmatic Hernia. This video originally aired on April 30th during the annual CDH telethon.