For “Rare Disease Day”, CDHi lobbies with 100’s of other charities in Washington DC to work towards better health care for all of our children. Our President, Dawn Ireland, lead the North Carolina team to meet with Congressmen and Senators to discuss:
- Orphan Product Extensions Now, Accelerating Cures and Treatments (Open Act H>R.1223, S.1509)
- Advancing Access to Precision Medicine Act (H.R.5062)
- Rare Disease Congressional Caucus
While Congenital Diaphragmatic Hernia is not a disease and affects 1 in 2500 people, it is classified as a “rare disease” under the United States government’s guidelines for funding research.
CDH International has a long history of collaborating with not only other CDH charities, but other children’s health charities, and we are proud to continue to fight for better medical care for all kids.
