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2018 CDH International Year in Review

Dear CDH International Members and Supporters, It has been another banner year here at CDH International! We have spent all of 2018 very much focused on research and global awareness and our hard work has paid off with the support of the World Health Organization, hospitals around the world and our supporters. We are excited …

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CDH International Attends the World Orphan Drug Congress

CDHi President, Dawn Torrence Ireland, attended the 2018 World Orphan Drug Congress last week in Washington DC, meeting with other world leaders in Rare Advocacy, pharmaceutical and bio tech companies and researchers to build collaborations toward a better future for all rare diseases and birth defects. Even though CDH is common (but classified as rare for …

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Capitol Hill Lobbying Registration Ends Soon!

Join us on April 23rd as we visit senators and congressmen on Capitol Hill to push for more awareness and research funding for Congenital Diaphragmatic Hernia. Register here as soon as possible so we can secure a meeting with your state representatives! All registrations completed after April 5th are not guaranteed a meeting with your …

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CDH International Lobbies With Other Rare Disease Charities on Capitol Hill

For “Rare Disease Day”, CDHi lobbies with 100’s of other charities in Washington DC to work towards better health care for all of our children.   Our President, Dawn Ireland, lead the North Carolina team to meet with Congressmen and Senators to discuss: Orphan Product Extensions Now, Accelerating Cures and Treatments (Open Act H>R.1223, S.1509) …