CDH International is proud to join NORD, the Friends of NIHCD, the American Medical Academy, the March of Dimes, and 105 other national children’s medical nonprofits in asking Congress to pass bipartisan legislation that would help children with rare and complex conditions access time-sensitive health care when they must travel across state lines.
“The Accelerating Kids’ Access to Care Act (HR 3089/S 544) could make a difference for millions in our community. How it works:
- Currently, when a child needs medical care out-of-state, the health care provider or entire care team must be screened and enrolled by the child’s home-state Medicaid program, an often-taxing process for providers and families alike that can result in dangerous delays to treatment.
- The Accelerating Kids’ Access to Care Act would create a pathway to screen and enroll pediatric providers in multiple state Medicaid programs if certain requirements are met, such as being in good standing with their home state Medicaid program.
- Eligible providers would be restricted to those caring for children and, in some cases, people over age 18 whose conditions began in childhood to improve continuity of care and recognizing that some young adult specialty care may be provided by pediatric providers (e.g., Duchenne, spinal muscular atrophy, sickle cell, young adult cancers).
- The program is voluntary, and no changes would be made to a state government’s jurisdiction to negotiate payment with out-of-state providers or authorize out-of-state care.”
– NORD (National Organization of Rare Disorders)