We have been very excited to attend the 24 Hours of Rare event this week virtually. There has been lots of great of information from the rare disease sector around the world.
Catch our President, Dawn Ireland, as she speaks on “The Importance of Collaboration Among Charity Leaders to More Effectively Raise Awareness and Find Treatments” on Thursday.
Patients and families are attend to attend this (free) event at https://24hoursofrare.com/
