We have been very excited to attend the 24 Hours of Rare event this week virtually. There has been lots of great of information from the rare disease sector around the world. Catch our President, Dawn Ireland, as she speaks on “The Importance of Collaboration Among Charity Leaders to More Effectively Raise Awareness and Find …
Press Release: Charity Takes on the World for Sick Kids
FOR IMMEDIATE RELEASE: Local Charity Takes on the World for Sick Kids Wake Forest, North Carolina – Thursday, December 31, 2020 – CDH International was created 25 years ago on the kitchen table of a 22 year old mom, seeking help for families like hers affected by Congenital Diaphragmatic Hernia. CDH is a birth defect …
25 Years of CDH International – 1999
1999 was a year of extreme highs with our first get-together ever and our extreme lows with the loss of the President’s son. Our charity was extremely close and the births and losses of all our children were felt around the world. Despite all that the year bought, our membership grew 5 fold in 1 …
25 Years of CDH International – 1995
CDH International was founded in February, 1995 as “CHERUBS – The Association of Congenital Diaphragmatic Hernia Research, Advocacy and Support” by Dawn (Torrence) Ireland and Rhonda Montague, 2 CDH moms who met in the PICU of Duke University in 1993. CHERUBS was named for the 3 babies born with CDH in the PICU at that …
CDH International Speaks At Bio Data World Congress 2020
CDH International participated in the Bio Data World Congress 2020 last week. Our President, Dawn Ireland, spoke on how our grassroots patient organization started our own natural history research database and she also participated in a panel in this virtual conference. We are honored to participate in research data conferences and to speak about and inspire …
CDHi Attends the 2020 Bio Patient and Health Advocacy Summit
CDH International participated in the Bio Patient and Health Advocacy Summit in October. We are honored to represent CDH patients, rare patients and patient advocates at many Bio and Pharma conferences this year.
CDH International Registers as an NGO in the United Kingdom
UPDATE 8 June 2020: CDH International is now a registered charity in the United Kingdom. Charity no. 1189819 CDH International – Registered UK Charity no. 1189819http://www.cdhi.ukPhone – +44 0788 747 4571Direct E-mail – uk@cdhi.orgMailing Address – CDH International, 77 Victoria Street, Box 135 London SW1H 0HW, UK Donate here – https://cdhawarenessshop.org.uk/products/donate-to-cdh-research CDHi UK on Social …
CDH International Works with NIH on CDH Research
CDH International is proud to announce a partnership with the National Institutes of Health, National Institutes of Child Health and Disease and the Gabriella Miller Kid’s Fund to coordinate research of Congenital Diaphragmatic Hernia. This partnership will allow more CDH researchers access to the Kids First Database, more funding options and will also alleviate some …
2018 CDH International Year in Review
Dear CDH International Members and Supporters, It has been another banner year here at CDH International! We have spent all of 2018 very much focused on research and global awareness and our hard work has paid off with the support of the World Health Organization, hospitals around the world and our supporters. We are excited …
CDHi Attends Bio Summit 2018 in Washington DC
Our President, Dawn Ireland, represented CDHi at the Bio Summit 2018 last week in Washington DC: “It was wonderful to catch up with other patient advocates and industry partners, as well as to learn more about collaboration. There was even a surprise visit by Secretary Alex Azar of the US Department of Health and Human Services …
World Health Organization to Create Standard of Care for CDH
An important update from Dawn Ireland, the President of CDH International: Dear Members and Friends, CDH International is very proud to announce that we are working with the World Health Organization to create a GLOBAL Standard of Care and Global Measurements for Mortality and Morbidity. Global. Not just for CDH, but also for Gastroschisis and …
Current Fundraisers: Week of Oct. 29th
Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: Jennifer’s CHERUBS Birthday Fundraiser Morgan’s Birthday Fundraiser Lisa’s Birthday Fundraiser Help Raise Money in Memory of Thomas! He should be turning 3 on Monday Savannah’s Birthday Fundraiser In honor of Cherub Camden Ali who earned her wings & for Dawn’s B-day! …