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CDHi Welcomes Taylor Steffensmeier to Our Patient Advocacy Board

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CDHi Welcomes Taylor Steffensmeier to Our Patient Advocacy Board

CDH International welcomes Taylor Steffensmeier to our Patient Advocacy Board. Taylor is an adult CDH survivor.

Taylor was born and raised in Nebraska. She is a part time float RN at her local hospital and full-time mom and wife. Taylor and her husband have been blessed with two healthy kids, a daughter Kylar and son Kayden.

Taylor was born in a rural hospital with undiagnosed LCDH in 1991. She was transferred immediately to UNMC in Omaha. Taylor was given a 20% chance of survival, she was on ECMO for 5 days had her first repair while on ECMO. She has had a total of 10 surgeries with 5 of them being diaphragm repairs (3 of the repairs at UNMC in Omaha and 2 of the repairs at Children’s Hospital). Growing up Taylor lived a normal childhood, she played softball from t-ball through her senior year of high school. She was a 20-year-old who just got accepted into Nursing school and met her husband when she heard the word reherniated for the 4th time, it was a major repair, but it didn’t stop her from graduating with her BSN on time, getting married and carrying two of her own children.

If you would like to learn more about CDH International, please visit https://cdhi.org/.

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