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To ensure that CDH patients continue to experience gains in quality of treatment and quality of life, CDHi helps accredited centers establish a standard of CDH care with specific guidelines that are based on the latest research, medical evidence, and consultation with experts.
It has has become standard practice for large medical non-profits and associations to create Accreditation to help push and fund research, raise standards of care, provide more information to patients and to encourage the community to achieve excellence. The goal is to help medical care providers, not hinder them.
Partnership between hospitals and advocacy groups is the key to better medical care, accurate information for patients and informed decisions by patients / parents.
Anticipated Outcomes of CDHi Accreditation
- Patients are better informed about comprehensive CDH care.
- Patients have improved access to Centers with expertise in CDH.
- The medical community is better informed about standards of CDH care.
- Long-term outcomes of CDH are improved through Clinical Care Guidelines.
- Increased opportunities for collaboration between Centers, CDH researchers, and patients.
Benefits of CDHi Centers of Excellence
- Accountability – patients, parents, and insurance companies are ensured that quality care standards are met and statistics are accurate.
- Ideas for improvement – host Centers and site visitors benefit from visits to other CDHi Centers of Excellence.
- Securing resources from host institutions – when a CDHi Center of Excellence meets requirements set forth by the accreditation process, this encourages the host institution (University, hospital, etc) to support the Center in meeting these requirements.
- Public recognition of excellent performers – CDHi Centers of Excellence can be the pride and joy for their host institutions.
- CDHi Centers of Excellence are eligible to apply for research funding through CDH International.
- CDHi Centers of Excellence are more attractive to research funders such as NIH and private foundations.
- CDHi Centers of Excellence are easily identifiable and more attractive to expectant parents researching medical care for unborn patients.
Below is a list of hospitals who work with the CDH Study Group.
Other information will be added to the columns shortly.
CDHi Accreditation has been postponed until the World Health Organization publishes it’s global Standard of Care for Congenital Diaphragmatic Hernia.
Hospital
|
City
|
State/Country
|
CDH Study Group Participant
|
DHREAMS Participant
|
ELSO Accredited
|
Approx. Number of CDH Patients per Year
|
CDHi Accredited
(coming in 2020)
|
Alberta Children’s Hospital
|
Calgary
|
Canada
|
Yes | ||||
Arkansas Children’s Hospital
|
Little Rock
|
AR
|
Yes | ||||
Astrid Lindgren Children’s Hospital
|
Stockholm
|
Sweden | Yes | ||||
Azienda Ospedaliera Papa Giovanni XXIII
|
Bergamo
|
Italy | Yes | ||||
BC Children’s & Women’s Health Centre
|
Vancouver
|
Canada
|
Yes | ||||
Cairo University Pediatric Hospital (Aboul Reesh)
|
Cairo
|
Egypt | Yes | Yes | |||
Childrens Health Dallas
|
Dallas
|
TX | Yes | ||||
Childrens Hospital at Skanes University Hospital
|
Lund
|
Sweden | Yes | ||||
Children’s Hospital Boston
|
Boston
|
MA
|
Yes | ||||
Children’s Hospital of Akron
|
Akron
|
OH
|
Yes | ||||
Children’s Hospital of Georgia – AU Health
|
Augusta
|
GA
|
Yes | ||||
Children’s Hospital of Illinois at OSF St. Francis Med Center
|
Peoria
|
IL
|
Yes | ||||
Children’s Hospital of Los Angeles
|
Los Angeles
|
CA
|
Yes | ||||
Children’s Hospital of San Antonio
|
San Antonio
|
TX
|
Yes | ||||
Children’s Hospital of Wisconsin
|
Milwaukee
|
WI
|
Yes | Yes | |||
Children’s Hospital Omaha
|
Omaha
|
NE
|
Yes | Yes | |||
Childrens Hospital, University Bonn
|
Bonn
|
Germany | Yes | ||||
Children’s Hospitals and Clinics (Minneapolis)
|
Minneapolis
|
MN
|
Yes | ||||
Children’s Memorial Hermann Hospital
|
Houston
|
TX
|
Yes | ||||
Children’s of Alabama
|
Birmingham
|
AL
|
Yes | ||||
Cincinnati Children’s Hospital Medical Center
|
Cincinnati
|
OH
|
Yes | Yes | |||
Connecticut Children’s Medical Center
|
Hartford
|
CT
|
Yes | ||||
Dell Children’s Medical Center of Central Texas
|
Austin
|
TX
|
Yes | ||||
Doernbecher Children’s Hospital
|
Portland
|
OR
|
Yes | ||||
Duke University Medical Center
|
Durham
|
NC
|
Yes | ||||
Emory University
|
Atlanta
|
GA
|
Yes | ||||
Golisano Children’s Hospital at Strong
|
Rochester
|
NY
|
Yes | ||||
Hospital Clinico Universidad Católica de Chile
|
Santiago
|
Chile
|
Yes | ||||
IRCCS Fondazione Ca’ Granda Ospedale Maggiore Policlinico
|
Milano
|
Italy | Yes | ||||
James Whitcomb Riley Children’s Hospital
|
Indianapolis
|
IN
|
Yes | ||||
Johns Hopkins All Children’s Hospital
|
St Petersburg
|
FL
|
Yes | ||||
Johns Hopkins Hospital
|
Baltimore
|
MD
|
Yes | ||||
Juan P. Garrahan Children Hospital
|
Buenos Aires
|
Argentina | Yes | ||||
Le Bonheur Children’s Medical Center
|
Memphis
|
TN
|
Yes | ||||
Loma Linda University Children’s Hospital
|
Loma Linda
|
CA
|
Yes | ||||
Lucile Salter Packard Children’s Hospital
|
Palo Alto
|
CA
|
Yes | ||||
Mattel Children’s Hospital at UCLA
|
Los Angeles
|
CA
|
Yes | ||||
Miami Valley Hospital
|
Dayton
|
OH
|
Yes | ||||
Morgan Stanley Children’s Hospital of New York- Presbyterian
|
New York
|
NY
|
Yes | ||||
NICU Health Sciences Centre
|
Winnipeg
|
Canada
|
Yes | ||||
North Shore-LIJ Health System
|
New York
|
NY
|
Yes | ||||
Norton Children’s Hospital
|
Louisville
|
KY
|
Yes | ||||
Ospedale Pediatrico Bambino Gesù
|
Rome
|
Italy | Yes | ||||
Palmetto Health Richland
|
Columbia
|
SC
|
Yes | ||||
Phoenix Children’s Hospital
|
Phoenix
|
AZ
|
Yes | ||||
Polish Mother’s Memorial Hospital Research Institute
|
Lodz
|
Poland | Yes | ||||
Primary Children’s Hospital
|
Salt Lake City
|
UT
|
Yes | ||||
Radboud University Nijmegen Medical Centre
|
Nijmegen
|
The Netherlands | Yes | ||||
Rady Children’s Hospital
|
San Diego
|
CA
|
Yes | ||||
Research Center for Obstetrics, Gynecology and Perinatology
|
Moscow
|
Russia | Yes | ||||
Research Institute at Nationwide Children’s Hospital
|
Columbus
|
OH
|
Yes | ||||
Royal Children’s Hospital
|
Parkville
|
Australia
|
Yes | ||||
Royal Hospital for Sick Children
|
Glasgow
|
Scotland | Yes | ||||
Shands Children’s Hospital/University of Florida
|
Gainesville
|
FL
|
Yes | ||||
Sophia Children’s Hospital
|
Rotterdam
|
The Netherlands | Yes | ||||
St. Francis Children’s Hospital
|
Tulsa
|
OK
|
Yes | ||||
St. Joseph’s Hospital and Medical Center
|
Phoenix
|
AZ
|
Yes | ||||
St. Louis Children’s Hospital
|
St. Louis
|
MO
|
Yes | ||||
St. Louis Univ at SSM Health Cardinal Glennon
|
St. Louis
|
MO
|
Yes | ||||
Stollery Children’s Hospital
|
Edmonton
|
Canada
|
Yes | ||||
Sydney Children’s Hospital
|
Randwick
|
Australia
|
Yes | ||||
Texas Children’s Hospital
|
Houston
|
TX
|
Yes | ||||
The Children’s Hospital at OU Medical Center
|
OK City
|
OK
|
Yes | ||||
The Children’s Hospital of Pittsburgh of UPMC
|
Pittsburgh
|
PA
|
Yes | ||||
The Queen Silvia Children’s Hospital SU/Östra
|
Gothenburg
|
Sweden | Yes | ||||
Tufts Medical Center
|
Boston
|
MA
|
Yes | ||||
UNC School of Medicine
|
Chapel Hill
|
NC
|
Yes | ||||
University Childrens Hospital
|
Uppsala
|
Sweden | Yes | ||||
University Malaya Medical Centre
|
Kuala Lumpur
|
Malaysia | Yes | ||||
University of Michigan, C.S. Mott Children’s Hospital
|
Ann Arbor
|
MI
|
Yes | Yes | |||
University of Padua
|
Padua
|
Italy | Yes | ||||
University of Texas Medical Branch at Galveston
|
Galveston
|
TX
|
Yes | ||||
University of Virginia Medical School
|
Charlottesville
|
VA
|
Yes | ||||
Vanderbilt Children’s Hospital
|
Nashville
|
TN
|
Yes | Yes | |||
Vladivostok State Medical University
|
Vladivostok
|
Russia | Yes | ||||
Washington University Medical Center/ St. Louis Children’s Hospital
|
St Louis
|
MO
|
Yes | Yes | |||
Winnie Palmer Hospital for Women & Babies
|
Orlando
|
FL
|
Yes | ||||
Yale New Haven Children’s Hospital
|
New Haven
|
CT
|
Yes |
*** Listing of any hospital is not an endorsement by CDH International. As per federal law, CDH International does not refer patients for medical care to any physician or facility.[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_column_text 0=””]
[/vc_column_text][vc_row_inner row_type=”row” type=”full_width” text_align=”left” css_animation=””][vc_column_inner el_class=”wrapper-text”][vc_column_text 0=””]Accreditation as a CDHi Center of Excellence signals to patients and families that a facility has committed to exceptional care and treatment of Congenital Diaphragmatic Hernia. It demonstrates to the healthcare community an assurance of high quality standards, specialized equipment, and advanced education of staff members. CDHi Centers may, in turn, use the accreditation to market themselves as distinguished leaders in CDH care, highlighting their commitment to state-of-the-art healthcare advancements.
To ensure that CDH patients continue to experience gains in quality of treatment and quality of life, CDHi helps accredited centers to establish a standard of CDH care with specific guidelines that are based on the latest research, medical evidence, and consultation with experts.
Clinical Care Guidelines are identified for the following categories:
- Diagnosis
- Surgical Repair
- Respiratory Care
- Nutrition and GI Care
- Therapies (Occupational, Feeding, Speech, etc)
CDHi Center of Excellence accreditation, which is valid for 3 years, is granted based on the following standards:
- Environmental Focus – the Center provides information about the facility and equipment available for CDH
- Quality Focus – the Center provides evidence regarding continuous quality improvement efforts and adherence to CDHi Clinical Care Guidelines
- Patient & Family Focus – the Center has patients complete The Patient and Member Experience Care Survey
- Enrollment of patients into the CDH Study Group
- Encourage participation in DHREAMS and the CDH Research Survey
- Multidisciplinary Team – the Center includes specialists such as surgeons, respiratory therapists, dietitians, feeding therapists, geneticists, genetic counselors, gastroenterologists, speech therapists, developmental pediatricians, pulmonologists/cardiologists, allergists, and social workers in the treatment of CDH patients. Other team members may include a pharmacist, physical therapist, psychologist, chaplain, or patient advocate, among others.
CDHi Center of Excellence accreditation recognizes a Center’s excellence in the following criteria:
- Promoting the mission, activities, and vision of CDHi
- Patient care by using the highest quality measures, processes, and structures based upon evidence and meeting CDHi Clinical Care Guidelines
- Training, education, collaboration, and communication supporting CDHi guidelines that contributes to a healing environment for families, patients and staff
Accreditation categories include:
- Full Accreditation
- Provisional Accreditation
- Accreditation with binding contingencies (pending immediate action)
- Failure to meet Accreditation
There are two core processes to obtain and maintain CDHi Accreditation. They are:
A. Site visits made by Accreditation Committee members to new and existing Centers (once every three years)
B. Annual Updates submitted by established Centers via online renewal applications (once every year)
A. The Accreditation Committee
The Accreditation Committee is comprised of CDHi representatives and may include CDHi employees, volunteers, and members of the Medical Advisory Board. The Accreditation Committee meets with the full Medical Advisory Board to determine accreditation status.
The Site Visit Process
When a Center is visited by a trained representative of CDHi, the in-person visit will typically last between one and two days, during which the Committee completes a comprehensive assessment of the Center. They will take into account the clinic environment, personnel, facilities, and key disciplines of CDH care.
During this meeting, the representative will meet with institutional leaders of the facility (the Center director, hospital directors, etc). They will complete a chart audit and review reports about education, research, and quality.
Upon completion, the representative will convene with the CDHi Medial Advisory Board to review their findings. Once a decision has been made, any critiques based on the site visit are mailed in letter form to the Center, at which time the Center is notified of their accreditation status.
After communicating the accreditation status of a Center, said Centers are required to respond via letter to confirm accreditation acceptance or to appeal accreditation denial/loss (if desired). Centers are allowed a designated amount of time to respond via letter regarding the Committee’s findings – for instance, if the Committee states that the Center is losing their accreditation, the Committee will list the reasons for their decision. The Center may then respond in writing to the Committee stating their challenges and how the Committee can expect the Center to make improvements to retain their accreditation.
B. Annual Updates
Annual Updates are submitted yearly by each accredited Center to ensure continuity in upholding the CDHi Clinical Care Guidelines. These reports take into consideration the Center’s strengths, weaknesses, and challenges.
If CDHi identifies an issue within an Annual Update, such as a change in provided services, the Center will be flagged for an early site visit. If no issues are identified, CDHi will continue accreditation approval for the Center’s existing three-year cycle.
Anticipated outcomes of CDHi accreditation
- Patients are better informed about comprehensive CDH care
- Patients have improved access to Centers with expertise in CDH
- The medical community is better informed about standards of CDH care
- Long-term outcomes of CDH are improved through Clinical Care Guidelines
- Increased opportunities are available for collaboration between Centers and CDH researchers
Benefits of CDHi accreditation
- Accountability – patients, parents, and insurance companies are ensured that quality care standards are met
- Ideas for improvement – host Centers and site visitors benefit from visits to other CDHi Centers of Excellence
- Securing resources from host institutions – when a CDHi Center of Excellence must meet requirements set forth by the accreditation process, this encourages the host institution (University, hopsital, etc) to support the Center in meeting these requirements
- Public recognition of excellent performers – CDHi Centers of Excellence can be the pride and joy for their host institutions
- CDHi Centers of Excellence are eligible to apply for research funding through CDH International
- CDHi Centers of Excellence are more attractive to research funders such as NIH and private foundations
- CDHi Centers of Excellence are easily identifiable and more attractive to expectant parents researching medical care for unborn patients
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[/vc_column_text][vc_row_inner row_type=”row” type=”full_width” text_align=”left” css_animation=””][vc_column_inner el_class=”wrapper-text”][vc_column_text 0=””]Hospital accreditation applications will become available in 2018.