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Hospital Accreditation

Coming in 2018

CDHi Accredited (coming in 2018) Participant

Hospital
City
State/Province
Country
CDH Study Group Participant
DHREAMS
Participant
ELSO
Accredited
Approx. Number
of CDH Patients
per Year
CDHi Accredited
(coming in 2018)
Alberta Children’s Hospital
Calgary
AB
Canada
Yes
Arkansas Children’s Hospital
Little Rock
AR
Yes
Astrid Lindgren Children’s Hospital
Stockholm
Sweden
Yes
Azienda Ospedaliera Papa Giovanni XXIII
Bergamo
Italy
Yes
BC Children’s & Women’s Health Centre
Vancouver
BC
Canada
Yes
Cairo University Pediatric Hospital (Aboul Reesh)
Cairo
Egypt
Yes
Childrens Hospital at Skanes University Hospital
Lund
Sweden
Yes
Children’s Hospital Boston
Boston
MA
Yes
Children’s Hospital of Akron
Akron
OH
Yes
Children’s Hospital of Georgia – AU Health
Augusta
GA
Yes
Children’s Hospital of Illinois at OSF St. Francis Med Center
Peoria
IL
Yes
Children’s Hospital of Los Angeles
Los Angeles
CA
Yes
Children’s Hospital of San Antonio
San Antonio
TX
Yes
Children’s Hospital of Wisconsin
Milwaukee
WI
Yes
Children’s Hospital Omaha
Omaha
NE
Yes
Childrens Hospital, University Bonn
Bonn
Germany
Yes
Children’s Hospitals and Clinics (Minneapolis)
Minneapolis
MN
Yes
Children’s Memorial Hermann Hospital
Houston
TX
Yes
Children’s of Alabama
Birmingham
AL
Yes
Cincinnati Children’s Hospital Medical Center
Cincinnati
OH
Yes
Connecticut Children’s Medical Center
Hartford
CT
Yes
Dell Children’s Medical Center of Central Texas
Austin
TX
Yes
Duke University Medical Center
Durham
NC
Yes
Emory University
Atlanta
GA
Yes
Golisano Children’s Hospital at Strong
Rochester
NY
Yes
Hospital Clinico Universidad Católica de Chile
Santiago
RM
Chile
Yes
IRCCS Fondazione Ca’ Granda Ospedale Maggiore Policlinico
Milano
Italy
Yes
James Whitcomb Riley Children’s Hospital
Indianapolis
IN
Yes
Johns Hopkins All Children’s Hospital
St Petersburg
FL
Yes
Johns Hopkins Hospital
Baltimore
MD
Yes
Juan P. Garrahan Children Hospital
Buenos Aires
Argentina
Yes
Le Bonheur Children’s Medical Center
Memphis
TN
Yes
Loma Linda University Children’s Hospital
Loma Linda
CA
Yes
Lucile Salter Packard Children’s Hospital
Palo Alto
CA
Yes
Mattel Children’s Hospital at UCLA
Los Angeles
CA
Yes
Miami Valley Hospital
Dayton
OH
Yes
NICU Health Sciences Centre
Winnipeg
MB
Canada
Yes
Norton Children’s Hospital
Louisville
KY
Yes
Ospedale Pediatrico Bambino Gesù
Rome
Italy
Yes
Palmetto Health Richland
Columbia
SC
Yes
Phoenix Children’s Hospital
Phoenix
AZ
Yes
Polish Mother’s Memorial Hospital Research Institute
Lodz
Poland
Yes
Primary Children’s Hospital
Salt Lake City
UT
Yes
Radboud University Nijmegen Medical Centre
Nijmegen
The Netherlands
Yes
Rady Children’s Hospital
San Diego
CA
Yes
Research Center for Obstetrics, Gynecology and Perinatology
Moscow
Russia
Yes
Research Institute at Nationwide Children’s Hospital
Columbus
OH
Yes
Royal Children’s Hospital
Parkville
Victoria
Australia
Yes
Royal Hospital for Sick Children
Glasgow
Scotland
Yes
Shands Children’s Hospital/University of Florida
Gainesville
FL
Yes
Sophia Children’s Hospital
Rotterdam
The Netherlands
Yes
St. Francis Children’s Hospital
Tulsa
OK
Yes
St. Joseph’s Hospital and Medical Center
Phoenix
AZ
Yes
St. Louis Children’s Hospital
St. Louis
MO
Yes
St. Louis Univ at SSM Health Cardinal Glennon
St. Louis
MO
Yes
Stollery Children’s Hospital
Edmonton
Alberta
Canada
Yes
Sydney Children’s Hospital
Randwick
NSW
Australia
Yes
Texas Children’s Hospital
Houston
TX
Yes
The Children’s Hospital at OU Medical Center
OK City
OK
Yes
The Children’s Hospital of Pittsburgh of UPMC
Pittsburgh
PA
Yes
The Queen Silvia Children’s Hospital SU/Östra
Gothenburg
Sweden
Yes
Tufts Medical Center
Boston
MA
Yes
UNC School of Medicine
Chapel Hill
NC
Yes
University Childrens Hospital
Uppsala
Sweden
Yes
University Malaya Medical Centre
Kuala Lumpur
Malaysia
Yes
University of Michigan, C.S. Mott Children’s Hospital
Ann Arbor
MI
Yes
University of Padua
Padua
Italy
Yes
University of Texas Medical Branch at Galveston
Galveston
TX
Yes
University of Virginia Medical School
Charlottesville
VA
Yes
Vanderbilt Children’s Hospital
Nashville
TN
Yes
Vladivostok State Medical University
Vladivostok
Russia
Yes
Winnie Palmer Hospital for Women & Babies
Orlando
FL
Yes
Yale New Haven Children’s Hospital
New Haven
CT
Yes

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Accreditation as a CDHi Center of Excellence signals to patients and families that a facility has committed to exceptional care and treatment of Congenital Diaphragmatic Hernia. It demonstrates to the healthcare community an assurance of high quality standards, specialized equipment, and advanced education of staff members. CDHi Centers may, in turn, use the accreditation to market themselves as distinguished leaders in CDH care, highlighting their commitment to state-of-the-art healthcare advancements.

 

To ensure that CDH patients continue to experience gains in quality of treatment and quality of life, CDHi helps accredited centers to establish a standard of CDH care with specific guidelines that are based on the latest research, medical evidence, and consultation with experts.

 

Clinical Care Guidelines are identified for the following categories:

  1. Diagnosis
  2. Surgical Repair
  3. Respiratory Care
  4. Nutrition and GI Care
  5. Therapies (Occupational, Feeding, Speech, etc)

 

CDHi Center of Excellence accreditation, which is valid for 3 years, is granted based on the following standards:

 

  1. Environmental Focus – the Center provides information about the facility and equipment available for CDH
  2. Quality Focus – the Center provides evidence regarding continuous quality improvement efforts and adherence to CDHi Clinical Care Guidelines
  3. Patient & Family Focus – the Center has patients complete The Patient and Member Experience Care Survey
  4. Enrollment of patients into the CDH Study Group
  5. Encourage participation in DHREAMS and the CDH Research Survey
  6. Multidisciplinary Team – the Center includes specialists such as surgeons, respiratory therapists, dietitians, feeding therapists, geneticists, genetic counselors, gastroenterologists, speech therapists, developmental pediatricians, pulmonologists/cardiologists, allergists, and social workers in the treatment of CDH patients. Other team members may include a pharmacist, physical therapist, psychologist, chaplain, or patient advocate, among others.

 

CDHi Center of Excellence accreditation recognizes a Center’s excellence in the following criteria:

 

  1. Promoting the mission, activities, and vision of CDHi
  2. Patient care by using the highest quality measures, processes, and structures based upon evidence and meeting CDHi Clinical Care Guidelines
  3. Training, education, collaboration, and communication supporting CDHi guidelines that contributes to a healing environment for families, patients and staff

 

Accreditation categories include:

 

  1. Full Accreditation
  2. Provisional Accreditation
  3. Accreditation with binding contingencies (pending immediate action)
  4. Failure to meet Accreditation

 

There are two core processes to obtain and maintain CDHi Accreditation. They are:

 

A. Site visits made by Accreditation Committee members to new and existing Centers (once every three years)

 

B. Annual Updates submitted by established Centers via online renewal applications (once every year)

 

A. The Accreditation Committee

 

The Accreditation Committee is comprised of CDHi representatives and may include CDHi employees, volunteers, and members of the Medical Advisory Board. The Accreditation Committee meets with the full Medical Advisory Board to determine accreditation status.

 

The Site Visit Process

 

When a Center is visited by a trained representative of CDHi, the in-person visit will typically last between one and two days, during which the Committee completes a comprehensive assessment of the Center. They will take into account the clinic environment, personnel, facilities, and key disciplines of CDH care.

 

During this meeting, the representative will meet with institutional leaders of the facility (the Center director, hospital directors, etc). They will complete a chart audit and review reports about education, research, and quality.

 

Upon completion, the representative will convene with the CDHi Medial Advisory Board to review their findings. Once a decision has been made, any critiques based on the site visit are mailed in letter form to the Center, at which time the Center is notified of their accreditation status.

 

After communicating the accreditation status of a Center, said Centers are required to respond via letter to confirm accreditation acceptance or to appeal accreditation denial/loss (if desired). Centers are allowed a designated amount of time to respond via letter regarding the Committee’s findings – for instance, if the Committee states that the Center is losing their accreditation, the Committee will list the reasons for their decision. The Center may then respond in writing to the Committee stating their challenges and how the Committee can expect the Center to make improvements to retain their accreditation.

 

B. Annual Updates

 

Annual Updates are submitted yearly by each accredited Center to ensure continuity in upholding the CDHi Clinical Care Guidelines. These reports take into consideration the Center’s strengths, weaknesses, and challenges.

 

If CDHi identifies an issue within an Annual Update, such as a change in provided services, the Center will be flagged for an early site visit. If no issues are identified, CDHi will continue accreditation approval for the Center’s existing three-year cycle.

 

Anticipated outcomes of CDHi accreditation

 

  1. Patients are better informed about comprehensive CDH care
  2. Patients have improved access to Centers with expertise in CDH
  3. The medical community is better informed about standards of CDH care
  4. Long-term outcomes of CDH are improved through Clinical Care Guidelines
  5. Increased opportunities are available for collaboration between Centers and CDH researchers

 

Benefits of CDHi accreditation

 

  1. Accountability – patients, parents, and insurance companies are ensured that quality care standards are met
  2. Ideas for improvement – host Centers and site visitors benefit from visits to other CDHi Centers of Excellence
  3. Securing resources from host institutions – when a CDHi Center of Excellence must meet requirements set forth by the accreditation process, this encourages the host institution (University, hopsital, etc) to support the Center in meeting these requirements
  4. Public recognition of excellent performers – CDHi Centers of Excellence can be the pride and joy for their host institutions
  5. CDHi Centers of Excellence are eligible to apply for research funding through CDH International
  6. CDHi Centers of Excellence are more attractive to research funders such as NIH and private foundations
  7. CDHi Centers of Excellence are easily identifiable and more attractive to expectant parents researching medical care for unborn patients

Hospital accreditation applications will become available on January 1, 2018.