Congenital Diaphragmatic Hernia Hospital Accreditation

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Accreditation as a CDHi Center of Excellence signals to patients and families that a facility has committed to exceptional care and treatment of Congenital Diaphragmatic Hernia. It demonstrates to the healthcare community an assurance of high quality standards, specialized equipment, and advanced education of staff members. CDHi Centers may, in turn, use the accreditation to market themselves as distinguished leaders in CDH care, highlighting their commitment to state-of-the-art healthcare advancements.

To ensure that CDH patients continue to experience gains in quality of treatment and quality of life, CDHi helps accredited centers establish a standard of CDH care with specific guidelines that are based on the latest research, medical evidence, and consultation with experts.

It has has become standard practice for large medical non-profits and associations to create Accreditation to help push and fund research, raise standards of care, provide more information to patients and to encourage the community to achieve excellence. The goal is to help medical care providers, not hinder them.

Partnership between hospitals and advocacy groups is the key to better medical care, accurate information for patients and informed decisions by patients / parents.

From the Cystic Fibrosis Foundation to the Spina Bifida Association to ELSO, accreditation is commonplace in hospitals. In 2018, patient advocacy is now in the forefront of medical care, with researchers working with subjects to progress farther, faster.

Anticipated Outcomes of CDHi Accreditation

Patients are better informed about comprehensive CDH care.
Patients have improved access to Centers with expertise in CDH.
The medical community is better informed about standards of CDH care.
Long-term outcomes of CDH are improved through Clinical Care Guidelines.
Increased opportunities for collaboration between Centers, CDH researchers, and patients.

Benefits of CDHi Centers of Excellence

Accountability – patients, parents, and insurance companies are ensured that quality care standards are met and statistics are accurate.
Ideas for improvement – host Centers and site visitors benefit from visits to other CDHi Centers of Excellence.
Securing resources from host institutions – when a CDHi Center of Excellence meets requirements set forth by the accreditation process, this encourages the host institution (University, hospital, etc) to support the Center in meeting these requirements.
Public recognition of excellent performers – CDHi Centers of Excellence can be the pride and joy for their host institutions.
CDHi Centers of Excellence are eligible to apply for research funding through CDH International.
CDHi Centers of Excellence are more attractive to research funders such as NIH and private foundations.
CDHi Centers of Excellence are easily identifiable and more attractive to expectant parents researching medical care for unborn patients.

Below is a list of hospitals who work with the CDH Study Group.

Other information will be added to the columns shortly.

CDHi Accreditation has been postponed until the World Health Organization publishes it’s global Standard of Care for Congenital Diaphragmatic Hernia.

Hospital	City	State/Country	CDH Study Group Participant	DHREAMS Participant	ELSO Accredited	Approx. Number of CDH Patients per Year	CDHi Accredited (coming in 2020)
Alberta Children’s Hospital	Calgary	Canada	Yes
Arkansas Children’s Hospital	Little Rock	AR	Yes
Astrid Lindgren Children’s Hospital	Stockholm	Sweden	Yes
Azienda Ospedaliera Papa Giovanni XXIII	Bergamo	Italy	Yes
BC Children’s & Women’s Health Centre	Vancouver	Canada	Yes
Cairo University Pediatric Hospital (Aboul Reesh)	Cairo	Egypt	Yes	Yes
Childrens Health Dallas	Dallas	TX		Yes
Childrens Hospital at Skanes University Hospital	Lund	Sweden	Yes
Children’s Hospital Boston	Boston	MA	Yes
Children’s Hospital of Akron	Akron	OH	Yes
Children’s Hospital of Georgia – AU Health	Augusta	GA	Yes
Children’s Hospital of Illinois at OSF St. Francis Med Center	Peoria	IL	Yes
Children’s Hospital of Los Angeles	Los Angeles	CA	Yes
Children’s Hospital of San Antonio	San Antonio	TX	Yes
Children’s Hospital of Wisconsin	Milwaukee	WI	Yes	Yes
Children’s Hospital Omaha	Omaha	NE	Yes	Yes
Childrens Hospital, University Bonn	Bonn	Germany	Yes
Children’s Hospitals and Clinics (Minneapolis)	Minneapolis	MN	Yes
Children’s Memorial Hermann Hospital	Houston	TX	Yes
Children’s of Alabama	Birmingham	AL	Yes
Cincinnati Children’s Hospital Medical Center	Cincinnati	OH	Yes	Yes
Connecticut Children’s Medical Center	Hartford	CT	Yes
Dell Children’s Medical Center of Central Texas	Austin	TX	Yes
Doernbecher Children’s Hospital	Portland	OR		Yes
Duke University Medical Center	Durham	NC	Yes
Emory University	Atlanta	GA	Yes
Golisano Children’s Hospital at Strong	Rochester	NY	Yes
Hospital Clinico Universidad Católica de Chile	Santiago	Chile	Yes
IRCCS Fondazione Ca’ Granda Ospedale Maggiore Policlinico	Milano	Italy	Yes
James Whitcomb Riley Children’s Hospital	Indianapolis	IN	Yes
Johns Hopkins All Children’s Hospital	St Petersburg	FL	Yes
Johns Hopkins Hospital	Baltimore	MD	Yes
Juan P. Garrahan Children Hospital	Buenos Aires	Argentina	Yes
Le Bonheur Children’s Medical Center	Memphis	TN	Yes
Loma Linda University Children’s Hospital	Loma Linda	CA	Yes
Lucile Salter Packard Children’s Hospital	Palo Alto	CA	Yes
Mattel Children’s Hospital at UCLA	Los Angeles	CA	Yes
Miami Valley Hospital	Dayton	OH	Yes
Morgan Stanley Children’s Hospital of New York- Presbyterian	New York	NY		Yes
NICU Health Sciences Centre	Winnipeg	Canada	Yes
North Shore-LIJ Health System	New York	NY		Yes
Norton Children’s Hospital	Louisville	KY	Yes
Ospedale Pediatrico Bambino Gesù	Rome	Italy	Yes
Palmetto Health Richland	Columbia	SC	Yes
Phoenix Children’s Hospital	Phoenix	AZ	Yes
Polish Mother’s Memorial Hospital Research Institute	Lodz	Poland	Yes
Primary Children’s Hospital	Salt Lake City	UT	Yes
Radboud University Nijmegen Medical Centre	Nijmegen	The Netherlands	Yes
Rady Children’s Hospital	San Diego	CA	Yes
Research Center for Obstetrics, Gynecology and Perinatology	Moscow	Russia	Yes
Research Institute at Nationwide Children’s Hospital	Columbus	OH	Yes
Royal Children’s Hospital	Parkville	Australia	Yes
Royal Hospital for Sick Children	Glasgow	Scotland	Yes
Shands Children’s Hospital/University of Florida	Gainesville	FL	Yes
Sophia Children’s Hospital	Rotterdam	The Netherlands	Yes
St. Francis Children’s Hospital	Tulsa	OK	Yes
St. Joseph’s Hospital and Medical Center	Phoenix	AZ	Yes
St. Louis Children’s Hospital	St. Louis	MO	Yes
St. Louis Univ at SSM Health Cardinal Glennon	St. Louis	MO	Yes
Stollery Children’s Hospital	Edmonton	Canada	Yes
Sydney Children’s Hospital	Randwick	Australia	Yes
Texas Children’s Hospital	Houston	TX	Yes
The Children’s Hospital at OU Medical Center	OK City	OK	Yes
The Children’s Hospital of Pittsburgh of UPMC	Pittsburgh	PA	Yes
The Queen Silvia Children’s Hospital SU/Östra	Gothenburg	Sweden	Yes
Tufts Medical Center	Boston	MA	Yes
UNC School of Medicine	Chapel Hill	NC	Yes
University Childrens Hospital	Uppsala	Sweden	Yes
University Malaya Medical Centre	Kuala Lumpur	Malaysia	Yes
University of Michigan, C.S. Mott Children’s Hospital	Ann Arbor	MI	Yes	Yes
University of Padua	Padua	Italy	Yes
University of Texas Medical Branch at Galveston	Galveston	TX	Yes
University of Virginia Medical School	Charlottesville	VA	Yes
Vanderbilt Children’s Hospital	Nashville	TN	Yes	Yes
Vladivostok State Medical University	Vladivostok	Russia	Yes
Washington University Medical Center/ St. Louis Children’s Hospital	St Louis	MO	Yes	Yes
Winnie Palmer Hospital for Women & Babies	Orlando	FL	Yes
Yale New Haven Children’s Hospital	New Haven	CT	Yes

*** Listing of any hospital is not an endorsement by CDH International. As per federal law, CDH International does not refer patients for medical care to any physician or facility.[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_column_text 0=””]

[/vc_column_text][vc_row_inner row_type=”row” type=”full_width” text_align=”left” css_animation=””][vc_column_inner el_class=”wrapper-text”][vc_column_text 0=””]Accreditation as a CDHi Center of Excellence signals to patients and families that a facility has committed to exceptional care and treatment of Congenital Diaphragmatic Hernia. It demonstrates to the healthcare community an assurance of high quality standards, specialized equipment, and advanced education of staff members. CDHi Centers may, in turn, use the accreditation to market themselves as distinguished leaders in CDH care, highlighting their commitment to state-of-the-art healthcare advancements.

To ensure that CDH patients continue to experience gains in quality of treatment and quality of life, CDHi helps accredited centers to establish a standard of CDH care with specific guidelines that are based on the latest research, medical evidence, and consultation with experts.

Clinical Care Guidelines are identified for the following categories:

Diagnosis
Surgical Repair
Respiratory Care
Nutrition and GI Care
Therapies (Occupational, Feeding, Speech, etc)

CDHi Center of Excellence accreditation, which is valid for 3 years, is granted based on the following standards:

Environmental Focus – the Center provides information about the facility and equipment available for CDH
Quality Focus – the Center provides evidence regarding continuous quality improvement efforts and adherence to CDHi Clinical Care Guidelines
Patient & Family Focus – the Center has patients complete The Patient and Member Experience Care Survey
Enrollment of patients into the CDH Study Group
Encourage participation in DHREAMS and the CDH Research Survey
Multidisciplinary Team – the Center includes specialists such as surgeons, respiratory therapists, dietitians, feeding therapists, geneticists, genetic counselors, gastroenterologists, speech therapists, developmental pediatricians, pulmonologists/cardiologists, allergists, and social workers in the treatment of CDH patients. Other team members may include a pharmacist, physical therapist, psychologist, chaplain, or patient advocate, among others.

CDHi Center of Excellence accreditation recognizes a Center’s excellence in the following criteria:

Promoting the mission, activities, and vision of CDHi
Patient care by using the highest quality measures, processes, and structures based upon evidence and meeting CDHi Clinical Care Guidelines
Training, education, collaboration, and communication supporting CDHi guidelines that contributes to a healing environment for families, patients and staff

Accreditation categories include:

Full Accreditation
Provisional Accreditation
Accreditation with binding contingencies (pending immediate action)
Failure to meet Accreditation

There are two core processes to obtain and maintain CDHi Accreditation. They are:

A. Site visits made by Accreditation Committee members to new and existing Centers (once every three years)

B. Annual Updates submitted by established Centers via online renewal applications (once every year)

A. The Accreditation Committee

The Accreditation Committee is comprised of CDHi representatives and may include CDHi employees, volunteers, and members of the Medical Advisory Board. The Accreditation Committee meets with the full Medical Advisory Board to determine accreditation status.

The Site Visit Process

When a Center is visited by a trained representative of CDHi, the in-person visit will typically last between one and two days, during which the Committee completes a comprehensive assessment of the Center. They will take into account the clinic environment, personnel, facilities, and key disciplines of CDH care.

During this meeting, the representative will meet with institutional leaders of the facility (the Center director, hospital directors, etc). They will complete a chart audit and review reports about education, research, and quality.

Upon completion, the representative will convene with the CDHi Medial Advisory Board to review their findings. Once a decision has been made, any critiques based on the site visit are mailed in letter form to the Center, at which time the Center is notified of their accreditation status.

After communicating the accreditation status of a Center, said Centers are required to respond via letter to confirm accreditation acceptance or to appeal accreditation denial/loss (if desired). Centers are allowed a designated amount of time to respond via letter regarding the Committee’s findings – for instance, if the Committee states that the Center is losing their accreditation, the Committee will list the reasons for their decision. The Center may then respond in writing to the Committee stating their challenges and how the Committee can expect the Center to make improvements to retain their accreditation.

B. Annual Updates

Annual Updates are submitted yearly by each accredited Center to ensure continuity in upholding the CDHi Clinical Care Guidelines. These reports take into consideration the Center’s strengths, weaknesses, and challenges.

If CDHi identifies an issue within an Annual Update, such as a change in provided services, the Center will be flagged for an early site visit. If no issues are identified, CDHi will continue accreditation approval for the Center’s existing three-year cycle.

Anticipated outcomes of CDHi accreditation

Patients are better informed about comprehensive CDH care
Patients have improved access to Centers with expertise in CDH
The medical community is better informed about standards of CDH care
Long-term outcomes of CDH are improved through Clinical Care Guidelines
Increased opportunities are available for collaboration between Centers and CDH researchers

Benefits of CDHi accreditation

Accountability – patients, parents, and insurance companies are ensured that quality care standards are met
Ideas for improvement – host Centers and site visitors benefit from visits to other CDHi Centers of Excellence
Securing resources from host institutions – when a CDHi Center of Excellence must meet requirements set forth by the accreditation process, this encourages the host institution (University, hopsital, etc) to support the Center in meeting these requirements
Public recognition of excellent performers – CDHi Centers of Excellence can be the pride and joy for their host institutions
CDHi Centers of Excellence are eligible to apply for research funding through CDH International
CDHi Centers of Excellence are more attractive to research funders such as NIH and private foundations
CDHi Centers of Excellence are easily identifiable and more attractive to expectant parents researching medical care for unborn patients

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