Research: Herausforderungen und Bedürfnisse von Familien mit Neugeborenen mit Zwerchfellhernie


. 2020 Oct 13;1-9. doi: 10.1024/1012-5302/a000763. Online ahead of print.

Herausforderungen und Bedürfnisse von Familien mit Neugeborenen mit Zwerchfellhernie

Ariane Fève 1 2Josephine Geipel 1Affiliations expand


Abstract in English, German

Challenges and needs of families of newborns with congenital diaphragmatic hernia – Music therapy as a supportive intervention? Abstract. Background: Newborns with diaphragmatic hernia (CDH) spend the first weeks of their lives in intensive care, which is extremely stressful for them and their families. Music therapy is already used in neonatology for premature infants to stabilize the child, to support the parents and to strengthen attachment and bonding. However, the benefits for term infants receiving intensive care and their families has not yet been comprehensively investigated. Aim: The aim of this paper was to investigate the specific needs, challenges and experiences of children with CDH and their parents and to derive appropriate music therapy interventions. Methods: Using the CAQDAS software f4analyse 15 parents’ reports were examined with a qualitative content structuring analysis. Music therapy aspects were illustrated using a hypothetical case example. Results: Parents suffer above all from organisational and emotional challenges. They want to take care of their child and seek to be close despite limited influence on health and treatment. They are supported by their social environment and the medical staff. Protective factors include successful self-care, detachment and trust in a positive outcome. Conclusion: Additional to medical aspects like the withdrawal, bonding and attachment and parental well-being are of great importance. Music therapy literature offers the description of interventions, which address these aspects.

Keywords: Angeborene Zwerchfellhernie; Congenital diaphragmatic hernia; Eltern; Musiktherapie; Neonatologie; familienzentrierte Pflege; family-centered care; music therapy; neonatology; parents.

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