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Current Fundraisers: Week of October 15th

Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: Maribel’s Birthday Fundraiser Chrissy Justine Hastert’s Fundraiser Elizabeth’s Birthday Fundraiser Elisabeth’s Birthday Fundraiser Daniel’s Birthday Fundraiser Julie’s Birthday Fundraiser Vickie’s Birthday Fundraiser Lori’s Birthday Fundraiser Shelby’s Birthday Fundraiser Linda’s Birthday Fundraiser Darlene Brannan’s Fundraiser Rachel’s Birthday Fundraiser Deborah’s Birthday Fundraiser Randy’s …

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CDHi Attends International Symposium on Pediatric Research in Taormina, Italy

From our President, Dawn Torrence Ireland:  “This week I am at the International Symposium on Pediatric Research in Taormina, Italy. There is so much fascinating CDH research being presented here that it really encourages me to be hopeful of what will come out of the labs and the ORs for these patients in the next …

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RESEARCH – “Prenatal profile of Pallister-Killian syndrome: Retrospective analysis of 114 pregnancies, literature review and approach to prenatal diagnosis”

Pallister-Killian syndrome (PKS) is a tissue limited mosaic disorder, characterized by variable degrees of neurodevelopmental delay and intellectual disability, typical craniofacial findings, skin pigmentation anomalies and multiple congenital malformations. The wide phenotypic spectrum of PKS in conjunction with the mosaic distribution of the i(12p) makes PKS an underdiagnosed disorder. Recognition of prenatal findings that should …

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RESEARCH – “Fetal brain morphometry on prenatal magnetic resonance imaging in congenital diaphragmatic hernia”

Many infants with congenital diaphragmatic hernia (CDH) show brain abnormality on postnatal brain MRI related to severity of CDH, degree of lung hypoplasia, intrathoracic liver, right diaphragmatic hernia and large diaphragmatic defect. It is not known whether these factors affect brain growth in utero in CDH. Read more HERE.

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RESEARCH – “Comparison of Laparoscopic Versus Open Surgical Management of Morgagni Hernia”

Morgagni hernias are rare congenital diaphragmatic hernias that often do not become clinically significant until adulthood. The purpose of this study was to characterize the pre-operative findings and describe surgical outcomes of Morgagni hernia repair based on operative approach. Retrospective chart review from 1987 to 2015 of patients who underwent repair of a Morgagni hernia. …

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RESEARCH – “Thoracoscopic Treatment of Late-Presenting Congenital Diaphragmatic Hernia in Infants and Children”

Given that the application of thoracoscopic surgery to late-presenting congenital diaphragmatic hernia (CDH) in infants and children is controversial, we summarized our experiences with patients at two medical centers and aimed to discuss the safety and feasibility of thoracoscopic repair. Read more HERE. 

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Featured Cherub: Nathaniel Cummings

Featured cherub of the week is Nathaniel Cummings. Nathaniel Cummings is the son of Chris and Jessica  Cummings. Jessica is the Hospital Angel for Pittsburgh, Pennsylvania. Here is Nathaniel’s CDH story written by Jessica: Nathaniel was diagnosed with CDH in 2011 at his 18 week ultrasound because his stomach was next to his heart.After researching CDH on their …

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Current Fundraisers: Week of October 8th

Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: Teresa’s Birthday Fundraiser (ends 10/9!) Kenn’s Birthday Fundraiser  (ends 10/9!) Ashley’s Birthday Fundraiser (ends 10/9!) Caitie Mary’s Fundraiser (ends 10/11!) Alicia’s Birthday Fundraiser (ends 10/11!) Beth’s Birthday Fundraiser Maddison’s Birthday Fundraiser Melinda’s Birthday Fundraiser Maribel’s Birthday Fundraiser Chrissy Justine Hastert’s Fundraiser Daniel’s Birthday …

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CDHi President Speaks at 2018 Global Genes Summit

From our President, Dawn Ireland: I was extremely honored to be asked to speak at the 2018 Global Genes Summit this week in Irvine, California. “Non- Profit 101: Launch and Governance of a Non-Profit” – the good, bad and the ugly in all the pieces of creating a charity. I’ve mentored many non-profit leaders over …

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Featured Volunteer: Darlene Silverman

Darlene has been a member of CHERUBS since 1998 and has served as an Executive Board Member, Secretary and a member of several committees over the years.  She is currently on the CDH International Parent Advisory Board and is the Research Committee Leader. Darlene has an Associate’s Degree from Montgomery College in Maryland.  Prior to her …