CDHi was in Vienna, Austria last week at the DIA Europe to meet with many stockholders in the fight for better care for rare disease patients. The more we network and teach industry about these patients, the farther and faster CDH Research will go. #cdh #raredisease #patientadvocacy #congenitaldiaphragmatichernia
Last week our president, Dawn Ireland, attended the 29th Annual ELSO conference in Scottsdale, Arizona, and learned all the latest news on ECMO. 50% of our patients require Extracorporeal Membrane Oxygenation (ECMO) aka the heart and lung bypass machine. She also visited some of our Cherubs and their families! It was a wonderful opportunity to explore …
Last week, our president Dawn Ireland was the keynote speaker at Pediatrics 2018, a conference in Amsterdam that includes several pediatric specialties. She spoke on our 20-year retrospective of the CDH Natural History database. Ms. Ireland also gave an impassioned 45 minute speech on the story of our organization and why patient and parent involvement …
Last week, CDHi’s president spent the week with the British Pediatric Surgical Association at their 2018 conference in Liverpool and was able to see several of our Medical Advisors, meet many new surgeons, and catch up on research coming out of the UK. CDHi is very excited to become more involved in England and …
Last week, our President, Dawn Ireland, represented CDH at the 2018 Rare Disease Summer School at the University of Zurich. The first non-scientist to attend the school (and on scholarship), she not only sat in the classes and learned more about rare disease, genetic research, pharma, and biotech, but she also gave two research presentations …
Last week, CDH International attended the ICCN congress in Torino, Italy. We made connections with more neonatologists, nutritionists and other neonatal specialists. Collaboration with all the people involved in patient care is incredibly important when fighting a defect such as Congenital Diaphragmatic Hernia, and we are grateful for all the new connections we have made …
Earlier this week, CDH International participated in EuroELSO’s annual conference in Prague. There were many wonderful speakers in attendance, including Dr. Dick Tibboel, a member of our Medical Advisory Board (pictured with Dawn Ireland, President of Cdhi, in the photo to the right). CDH International is a proud member of ELSO, supporting ECMO research, collaboration, …
“We found Cherubs right after our son’s diagnosis of CDH at our 21 week ultrasound. We were terrified and felt alone. The Cherubs community showed us that there was hope and wrapped us in love. The community continues to educate and help us beyond Rowan’s CDH repair surgery, and for that, we are eternally grateful.” …
Last week, CDHi attended the 51st annual meeting of Pacific Association of Pediatric Surgeons in Sapporo, Japan. It was a wonderful opportunity to see some of our Medical Advisory Board members and meet new surgeons from Asia and Australia. We’re thrilled to have made new connections with people who are just as passionate about CDH …
CDHi was representing by our President, Dawn Ireland, at the 2018 PAPS conference in Sapporo, Japan this week. Pediatric surgeons came from all over the Pacific to share research and collaborate. Also attending were two of our Medical Advisors, Jay Wilson and Kevin Lally. By attending this conference, we were able to hear more research …
