We missed everyone last year and we don’t want to wait to see you in person in 2022! Join us for the first Global CDH Conference this April! Save the dates – April 28 – 30, 2021 Register now (below!) Conference Kits Shirts, banner, program, balloons and pizza – all you need to fully participate …
2012 was a big year… our first CDH Awareness Parade in Washington DC bought out 100’s of members to march from the Lincoln Memorial to the steps of Capitol Hill, where Senator Jeff Sessions welcomed us and talked about the legislation he co-sponsored for us. But that was just one of many marches that we …
Now is the perfect time to join the CDH Angel Club. Make a recurring donation to help in the fight against Congenital Diaphragmatic Hernia! https://cdhawarenessshop.org/pages/angel-club Join a prestigious group of philanthropists by becoming a member of the Angel Club in honor or memory of a cherub. The Angel Club is a recurring monthly or yearly donation …
We won another big contest in 2011, recruited our first celebrity spokesperson, held another conference and celebrated the very first “Congenital Diaphragmatic Hernia Awareness Day”. It was another banner year for the charity and a build up to all that happened the next year, in 2012. CDH Medical World News for 2011 No new big news …
2010 bought us a big contest win, our first employee, our first parade, the “Save the Cherubs” campaign and the end to the trademark on “Congenital Diaphragmatic Hernia Awareness” on April 19, 2010. The day is celebrated every year now as “Congenital Diaphragmatic Hernia Awareness Day” around the world with other charities, governments, hospitals and …
Please join us for the CHERUBS Annual Ohio CDH Picnic this Saturday, August 24th, at the Homestead Park in Hilliard, Ohio. Location:Homestead Park (pavilion on the left, Pine Pavilion)4675 Cosgray Rd.Hilliard, OH 43026 Time: We have the pavilion reserved from 4pm to 9pm. This is a potluck picnic, please contact OH CHERUBS Member and picnic …
CDHi was in Vienna, Austria last week at the DIA Europe to meet with many stockholders in the fight for better care for rare disease patients. The more we network and teach industry about these patients, the farther and faster CDH Research will go. #cdh #raredisease #patientadvocacy #congenitaldiaphragmatichernia
Last week our president, Dawn Ireland, attended the 29th Annual ELSO conference in Scottsdale, Arizona, and learned all the latest news on ECMO. 50% of our patients require Extracorporeal Membrane Oxygenation (ECMO) aka the heart and lung bypass machine. She also visited some of our Cherubs and their families! It was a wonderful opportunity to explore …
Last week our President, Dawn Ireland, was one of the Keynote Speakers and Honorable Guests at the 18th International Conference on Pediatrics Health in Madrid. She presented research from the Global CDH Registry and also spoke about the role of parent advocacy in pediatric research. Thank you to the conference organizers for making us an …
Rachael Eller, CDH International’s Operations Manager, had the pleasure of being interviewed by Swardiq ‘Q’ Mayanja, aka “Q The Nurse,” at the National Nurse Networking event in Washington DC in April. Q is a nurse, as well as a YouTube personality whose content centers around nursing and the healthcare industry. Watch the video here: https://www.youtube.com/watch?v=g4LspGHatTs
CDHi President, Dawn Torrence Ireland, attended the 2018 World Orphan Drug Congress last week in Washington DC, meeting with other world leaders in Rare Advocacy, pharmaceutical and bio tech companies and researchers to build collaborations toward a better future for all rare diseases and birth defects. Even though CDH is common (but classified as rare for …
Barcelona, Spain June 2-3, 2018 Hosted by La vida con Hernia Diafragmática Congénita, a fellow member charity of the Alliance of Congenital Diaphragmatic Hernia Organizations, this conference welcomes all CDH families. The conference lasts 2 days and will be in Spanish, with a translator. More details will be posted soon at https://www.facebook.com/events/148746695935388/
