Please join us for the CHERUBS Annual Ohio CDH Picnic this Saturday, August 24th, at the Homestead Park in Hilliard, Ohio. Location:Homestead Park (pavilion on the left, Pine Pavilion)4675 Cosgray Rd.Hilliard, OH 43026 Time: We have the pavilion reserved from 4pm to 9pm. This is a potluck picnic, please contact OH CHERUBS Member and picnic …
CDHi was in Vienna, Austria last week at the DIA Europe to meet with many stockholders in the fight for better care for rare disease patients. The more we network and teach industry about these patients, the farther and faster CDH Research will go. #cdh #raredisease #patientadvocacy #congenitaldiaphragmatichernia
Last week our president, Dawn Ireland, attended the 29th Annual ELSO conference in Scottsdale, Arizona, and learned all the latest news on ECMO. 50% of our patients require Extracorporeal Membrane Oxygenation (ECMO) aka the heart and lung bypass machine. She also visited some of our Cherubs and their families! It was a wonderful opportunity to explore …
Last week our President, Dawn Ireland, was one of the Keynote Speakers and Honorable Guests at the 18th International Conference on Pediatrics Health in Madrid. She presented research from the Global CDH Registry and also spoke about the role of parent advocacy in pediatric research. Thank you to the conference organizers for making us an …
Rachael Eller, CDH International’s Operations Manager, had the pleasure of being interviewed by Swardiq ‘Q’ Mayanja, aka “Q The Nurse,” at the National Nurse Networking event in Washington DC in April. Q is a nurse, as well as a YouTube personality whose content centers around nursing and the healthcare industry. Watch the video here: https://www.youtube.com/watch?v=g4LspGHatTs
CDHi President, Dawn Torrence Ireland, attended the 2018 World Orphan Drug Congress last week in Washington DC, meeting with other world leaders in Rare Advocacy, pharmaceutical and bio tech companies and researchers to build collaborations toward a better future for all rare diseases and birth defects. Even though CDH is common (but classified as rare for …
Barcelona, Spain June 2-3, 2018 Hosted by La vida con Hernia Diafragmática Congénita, a fellow member charity of the Alliance of Congenital Diaphragmatic Hernia Organizations, this conference welcomes all CDH families. The conference lasts 2 days and will be in Spanish, with a translator. More details will be posted soon at https://www.facebook.com/events/148746695935388/
4 members of CDH International’s staff, as well as several members of our Medical Advisory Board, were in attendance at the 2017 CDH Study Group Conference in Liverpool, along with every CDH expert from around the globe. Every new accomplishment in Congenital Diaphragmatic Hernia Research was announced, questioned, sometimes debated at the meeting. …
CDH International is excited to participate in CHERUBS annual 2017 International CDH Conference, for families. We look forward to presenting the CDH Research Database, discussing our collaboration with DHREAMS (who will also be in attendance), meeting with families and answering questions about the future goals of CDHi. Register to attend the largest annual CDH event …
