25 Years of CDH International

2018 was the year that we re-focused on research and global awareness and our hard work paid off with the support of the World Health Organization, hospitals around the world and our supporters.

We were excited to branch out into Europe officially to participate in more research opportunities, work with other CDH non-profits.

CDH Medical World News for 2018

The Canadian CDH Collaborative creates a Clinical Practices Guideline for CDH Phone App
The CDH Study Group begins to try to create a Global Standard of Care for Congenital Diaphragmatic Hernia

CDH International News for 2018

Visited the World Health Organization
Began work with the WHO on a new global Standard of Care for CDH that includes standard measurements of mortality and morbidity. Including several other like defects to help more children around the world
Began to work with Global Initiative for Children’s Surgery (GICS)
Began formation of a new NGO (non-profit) branch in the United Kingdom
Began formation of a new NGO (non-profit) branch in Italy
Welcomed 8 new Medical Advisory Board Members
Collaboration with 1000’s of patient families and doctors on new CDH Parent Reference Guide
Multi-Disciplinary committees for CDHi Created
Created new CDH International Guide
New CDHi Ambassador Program started
Participated in Fetal Medicine Workshop in London
Represented CDH at World Health Summit in Berlin
Represented CDH at BioData World Congress in Basel, Switzerland
Keynote Speaker at Surgery Conference in Bucharest, Romania
Represented CDH at the XXXV Congresso Brasileiro de Cirurgia Pediátrica in Brazil
Represented CDH at the CDH International Attends AAP 2018 in Orlando
Represented CDH at the Bio Summit 2018 in Washington DC
Represented CDH at the International Symposium on Pediatric Research in Taormina, Italy
Keynote Speaker at Surgery Conference in Osaka, Japan
Keynote Speaker at 2nd Annual EuroSciCon World Congress on Pediatrics Amsterdam
Spoke at 2018 Global Genes Summit in Irvine, CA
Attended the 29th Annual ELSO Conference for ECMO
Represented CDH at Orphan Drugs & Rare Diseases Conference in Boston
Toured 3 children’s hospitals in London
Toured 3 children’s hospitals in Italy
Represented CDH at the International Conference on Clinical Neonatalogy in Turin
Represented CDH at 51st Annual Meeting of Pacific Association of Pediatric Surgeons in Sapporo, Japan
Video Interview with YouTube Personality “Q The Nurse”
Represented CDH at Euro ELSO Conference in Prague
Keynote Speaker at Pediatrics 2018 Conference in Madrid
Attended the British Pediatric Surgical Association’s 2018 Conference
Attended the 2018 ACDHO Conference hosted by La Vida Con Hernia Diafragmática Congénita Conference in Barcelona
Represented CDH at the 7th International Conference on Clinical Neonatology
Visited the CDH Lab at Massachusetts General Hospital
CDH International is the NIH Kids First DRP Featured Charity for July
Awarded CDH Charity Accreditation Award to APEHDia
Awarded CDH Charity Accreditation Award to La vida con Hernia Diafragmática Congénita
Represented CDH at the University of Zurich Rare Disease Summer School
Represented CDH at 22nd International Conference on Neonatology and Perinatology in Frankfurt, Germany
CDH International Featured by Rare Revolution Magazine
Represented CDH at National Nurse Networking Event in DC
CDHi families and Board Members met with Senators & Representatives on Capitol Hill
Represented CDH at Rare Diseases 360 in Vienna, Austria
Represented CDH at Attends the World Orphan Drug Congress in DC
Spoke at the GICS conference in India
CDHi President represents CDH in Rare Advocacy Movement
Led Round Table at the World Pharma Pricing & Market Access Congress in London
Represented CDH at Annual APSA Conference in Palm Desert, CA
Represented CDH at EUPSA 2018 International Congress in Paris
Participated in the 2nd International Workshop on Intensive Care of the Newborn In Verona
Represented CDH at International Congress of Research on Rare and Orphan Diseases in Bologna
CDH International Joins the NICHD Kid’s First Database Team
CDHi Visits the Children’s Hospital of Philadelphia to Discuss Kid’s First Database for NICDH Division of the NIH
New “Giving Wings to CDH Awareness” Banner & Campaign
CDHi Vice President, Kat Haney, met with US Rep. George Holding and Majority Whip Steve Scalise to Discuss CDH Funding
Reached over 6400 families and medical care providers in our membership
Helped families and researchers in 72 countries
Raised over $60,000 in one day during the second annual CDH Telethon
Attended 3 meetings at the National Institutes of Health in Bethesda
2019 CHERUBS Family Conference Planned for Nashville, TN
Became a member of ELSO
Sent out over 75 CDH HOPE Totebags
Helped to create new ACDHO Charter
Published a white paper on the need for Standard of Care
New CDH Crests created
New CDH diagrams created
New CDH International On-Line Store
2019 Masquerading Angels Ball set in motion
CDH International Lobbies With Other Rare Disease Charities on Capitol Hill
New shirt designs
100’s of new graphics
New branding, materials, social media, etc
Raised CDH Awareness in “Save the Cherubs” photos in 11 new countries
Reached 77,000 posts on the CDH Forums
Average over 1,000,000 social media reach each month
Participated in National Children’s Memorial Day
Participated in #GivingTuesday
Over 25 new videos created
Won 2018 Top-Rated NonProfit Award from GreatNonprofits.com
Won 2018 GuideStar Gold charity award
April 19th – Congenital Diaphragmatic Hernia Awareness Day
Virtual Candles & Snowflakes Fundraiser
Virtual CDH Ribbons Fundraiser
Lizzy’s 6th Annual Walk for CHERUBS
5th Annual 2018 Northeast Mustang Meet in Memory of Skylar M. Fonseca
3rd Annual Get Your Shine On Golf Tournament Fundraiser
CHERUBS Toronto Blue Jays Game and Family Gathering
Salt Lake City Bees Baseball Game for Cherubs
CDH Action Day in Clayton, Missouri
Missouri Get-Together
Utah Area Get-Together
Phoenix Area Get-Together
Rascals Baseball Game
CDH 5k in Rockaway Park, NY
2018 Marathon Madness Mile Remembering Eli Willis
BC Legislature Building Lights Up for CDH Awareness (Victoria, BC)
Rogers Arena in Vancouver Lights Up for CDH Awareness Day (Vancouver)
Niagara Falls Lights up for CDH Awareness Day (Niagara Falls, NY)
Mercedes-Benz Superdome Scheduled to Light Up for CDH Awareness (Playoffs Overranked)
The British Columbia Parliament Building Lights Up for CDH Awareness (Victoria, BC)
The Alberta Legislature Building Lights Up for CDH Awareness (Edmonton, AB)
BC Place Lights Up for CDH Awareness (Vancouver)
The Sails of Light in Canada Lights Up for CDH Awareness (Vancouver)
Retirement Systems of Montgomery Lights Up for CDH Awareness (Montgomery, AL)
Retirement Systems of Mobile Lights Up for CDH Awareness (Mobile, AL)
Science World Lights Up for CDH Awareness (Vancouver)
Zakim Hill Memorial Bridge Lights Up for CDH Awareness (Charlestown, MA)
Calgary Tower Lights Up for CDH Awareness (Calgary, AB)
Bank of America Plaza Lights Up for CDH Awareness (Dallas)
Peace Bridge Lights up for CDH Awareness (Ontario)
PECO Crown Lights Building Lights Up for CDH (Philadelphia)
CN Tower Lights Up for CDH Awareness (Toronto)
Dean Cain Celebrity Video for CDH Telethon
Jeff Foxworthy Celebrity Video for CDH Telethon
Lance Moore Celebrity Video for CDH Telethon
Chase d’Arnaud Celebrity Video for CDH Telethon
Ian McElhinney Celebrity Video for CDH Telethon
Tawny Kitaen Celebrity Video for CDH Telethon
Sonja Morgan Celebrity Video for CDH Telethon
William Wisher Celebrity Video for CDH Telethon
Kate Linder Celebrity Video for CDH Telethon
Kim Alexis Celebrity Video for CDH Telethon
Kevin Sorbo Celebrity Video for CDH Telethon
Lil Scrappy Celebrity Video for CDH Telethon
Aaron Watson Celebrity Video for CDH Telethon
Chris Weidman Celebrity Video for CDH Telethon
Tori Spelling Celebrity Video for CDH Telethon
Bret “The Hitman” Hart Celebrity Video for CDH Telethon
Drew Seeley Celebrity Video for CDH Telethon
Chumlee Celebrity Video for CDH Telethon
Milena Roucka Celebrity Video for CDH Telethon
Hilary Shepard Celebrity Video for CDH Telethon
Matty Mullins Celebrity Video for CDH Telethon
Countess Luann de Lesseps Celebrity Video for CDH Telethon
Michael Campion Celebrity Video for CDH Telethon
Thaddeus Lewis Celebrity Video for CDH Telethon
Marla Maples Celebrity Video for CDH Telethon
Tim Murphy Celebrity Video for CDH Telethon
Action Jaxon Celebrity Video for CDH Telethon
Paul Amos Celebrity Video for CDH Telethon
Juliet Simms Celebrity Video for CDH Telethon
Bob “The Blade” Robinson” Celebrity Video for CDH Telethon
Kristy Swanson Celebrity Video for CDH Telethon
Chris Rankin Celebrity Video for CDH Telethon
Lee Montgomery Celebrity Video for CDH Telethon
Alabama Proclamation
Alaska Proclamation
Arizona Proclamation
Arkansas Proclamation
Arkansas town of Texarkana Proclamation
Arkansas town of Vilonia Proclamation
Delaware Proclamation
Florida Proclamation
Georgia Proclamation
Georgia town of Folkston Proclamation
Hawaii Proclamation
Idaho Proclamation
Illinois Proclamation
Illinois town of Fairview Heights Proclamation
Indiana Proclamation
Kentucky Proclamation
Louisiana Proclamation
Maine Proclamation
Maryland Proclamation
Michigan Proclamation
Minnesota Proclamation
Mississippi Proclamation
Mississippi town of Gautier Proclamation
Missouri Proclamation
Montana Proclamation
Nebraska Proclamation
New Hampshire Proclamation
New Mexico Proclamation
Nevada Proclamation
North Carolina Proclamation
North Dakota Proclamation
Ohio Proclamation
Oklahoma Proclamation
Pennsylvania Proclamation
Rhode Island Proclamation
South Carolina Proclamation
Tennessee Proclamation
Texas Proclamation
Utah Proclamation
Vermont Proclamation
Washington Proclamation
West Virginia Proclamation
Wisconsin Proclamation
Games for James Fundraiser
Lulu Rose Fundraiser
Dancing with Reese Fundraiser
Sweet Scents Fundraiser
Cards for a Cause
Team Lily CDH Fundraiser
T-Shirt Design Contest
CDH Awareness Quilt Auction
Yarn for CHERUBS Fundraiser
Snapdragon Home Decor for Cherubs
Race to Indy Fundraiser
Glory Days for Cherubs Fundraiser
#GivingTuesday for Cherubs Fundraiser!
2018 CDH Telethon In loving memory of Juan Mateo Fundraiser
2nd Annual Sing for CHERUBS
Abby’s Birthday Fundraiser
Abigail’s Birthday Fundraiser
Alexandra’s Birthday Fundraiser
Ali’s Birthday Fundraiser
Ali’s Birthday Fundraiser
Alice’s Birthday Fundraiser
Alicia’s Birthday Fundraiser
Alyssa’s #GivingTuesday Fundraiser
Amanda’s Birthday Fundraiser
Amy’s Birthday Fundraiser
Andrea’s Birthday Fundraiser
Andy’s Birthday Fundraiser
Andy’s Birthday Fundraiser
Angie’s Birthday Fundraiser
Ashley’s Birthday Fundraiser
Aubrey’s Birthday Fundraiser
Audra’s Birthday Fundraiser
Becca’s #GivingTuesday Fundraiser for CDH International
Brady Thomas Golf Tournament
Brandon’s Birthday Fundraiser
Brenda Shumway’s Birthday Fundraiser
Brenda’s Birthday Fundraiser
Brett’s Birthday Fundraiser
Brianna’s Birthday Fundraiser
Brittany’s Birthday Fundraiser
Brittany’s Birthday Fundraiser
Canada CDH Action Day Gathering
Car Decals Fundraiser
Carshow Carnival
CDH Research Survery Participation Drive
Chrissy Justine Hastert’s Fundraiser
Christy’s Birthday Fundraiser
Collin’s Birthday Fundraiser
Corinne’s #GivingTuesday Fundraiser
Corinne’s #GivingTuesday Fundraiser
Creative Canvas Fundraiser
Daniel’s Birthday Fundraiser
Darlene Brannan’s Fundraiser
Dave’s Birthday Fundraiser
Dawn’s fundraiser for CDH International for #GivingTuesday
Dawna’s Birthday Fundraiser
Deborah’s Birthday Fundraiser
Diana’s Birthday Fundraiser
Earl’s Birthday Fundraiser
Elaine’s Birthday Fundraiser
Elaine’s Birthday Fundraiser
Elisabeth’s Birthday Fundraiser
Elizabeth’s Birthday Fundraiser
Ellie’s birthday fundraiser
Ethan’s Birthday Fundraiser
Fundraiser for CHERUBS in honor of Kai Luke Lin-DeShetler
Gaby’s Birthday Fundraiser
Ginny’s Birthday Fundraiser
Girlfriends & Gifts Holiday Charity Benefit
Halloween Candle Sale
Hannah’s Birthday Fundraiser
Hell and Back for CDH Fundraiser
Help Raise Money in Memory of Thomas Fundraiser
Hope’s Birthday Fundraiser
Hope’s fundraiser for CDH International
In Honor of Maelig Fundraiser
In loving memory of Juan Mateo Fundraiser
In memory for Payton #GivingTuesday Fundraiser for CDH International
In memory of Kasey Fundraiser
Indsamling til en sag, som betyder noget for mig
Jacqui’s Birthday Fundraiser
Jaime’s Birthday Fundraiser
Jana’s Birthday Fundraiser
Jarah’s Birthday Fundraiser
Jason’s Birthday Fundraiser in memory of Gunner and Levi
Jen’s Birthday Fundraiser
Jennifer’s CHERUBS Birthday Fundraiser
Jenny’s Birthday Fundraiser
Jess’s birthday fundraiser
Jessi’s Birthday Fundraiser
JoAnne’s Birthday Fundraiser
JoAnne’s Birthday Fundraiser
Judi’s Birthday Fundraiser
Julie’s Birthday Fundraiser
Justin’s Birthday Fundraiser
Justyce for Kids Fundraiser
Kaitlyn’s Birthday Fundraiser!
Kali’s Birthday Fundraiser
Karen’s #GivingTuesday Fundraiser for CDH International
Katie’s Birthday Fundraiser
Kayla’s Birthday Fundraiser
Kayla’s fundraiser for CDH International in memory of Harlie Marino
Kelly’s Birthday Fundraiser
Kelsey’s Birthday Fundraiser
Kevin’s Birthday Fundraiser
Kim’s Birthday Fundraiser
Kimberly’s Birthday Fundraiser
Kimmie’s Birthday Fundraiser
Kirstin’s Birthday Fundraiser
Kristin’s #GivingTuesday Fundraiser
Lacey’s Birthday Fundraiser
Letty’s Birthday Fundraiser
Linda’s Birthday Fundraiser
Lisa’s Birthday Fundraiser
Lori’s Birthday Fundraiser
Mariah’s Birthday Fundraiser
Maribel’s Birthday Fundraiser
Maribel’s Birthday Fundraiser
Mary’s Birthday Fundraiser
Megan’s Birthday Fundraiser
Melaeuca Fundraiser
Melanee’s Birthday Fundraiser
Melinda’s Birthday Fundraiser
Melissa’s #GivingTuesday Fundraiser
Michele’s Birthday Fundraiser
Michelle’s Birthday Fundraiser
Morgan’s Birthday Fundraiser
Najah Elaine Major’s Birthday Fundraiser
Nicki’s Birthday Fundraiser
Nina’s Birthday Fundraiser
Northeast Mustang Meet
Paint Nite Fundraiser
Pampered Chef Fundraiser
Patricia’s Birthday Fundraiser
Patty’s Birthday Fundraiser
Peggy’s #GivingTuesday Fundraiser
Preston’s Birthday Fundraiser
Rachel’s Birthday Fundraiser
Raising Money For a Cause I Care About by Jamillah Iesha Burns
Raising Money For a Cause I Care About by Taylor Stetler
Raising money for CDH families. In Honor of Anderson & Memory of Riley
Raising Money for CHERUBS, by Patricia Guevarez
Raising Money For our CHERUBS by Lauren Petersen Fundraiser
Randy’s Birthday Fundraiser
Renae’s Birthday Fundraiser
Renee’s #GivingTuesday Fundraiser
Rhonda’s Birthday Fundraiser
RoEu’s Birthday Fundraiser
Roxana’s Birthday Fundraiser
Sam’s Birthday Fundraiser
Sara’s Birthday Fundraiser
Savannah’s Birthday Fundraiser
Save The Cherubs – A Fundraiser in Honor of our daughter Madison Blair Fundraiser
Shana’s Birthday Fundraiser
Shannon’s Birthday Fundraiser
Shawn Sandé’s Birthday Fundraiser
Sheila’s Birthday Fundraiser
Shelby’s Birthday Fundraiser
Sherry’s Fundraiser for CDH International
Shine On! Benefit
Signe sin bursdagsinnsamling for CDH International
Sina’s Birthday Fundraiser
Supporting CDH Families by Madison Leonard
Tara’s Birthday Fundraiser
Tastefully Simple Fundraiser
Taylor’s Birthday Fundraiser
Teresa’s Birthday Fundraiser
Tinnie’s Birthday Fundraiser
Tonia’s Birthday Fundraiser
Tony’s Birthday Fundraiser
Tracy’s #GivingTuesday Fundraiser for CDH International
Trisha’s Birthday Fundraiser
Usborne Book Fundraiser
Vickie’s Birthday Fundraiser
Vicky’s #GivingTuesday Fundraiser
Younique Fundraiser