fbpx
All Posts By

Dawn Ireland

Showing 784 Result(s)
Uncategorized

Congenital Diaphragmatic Hernia (CDH) and COVID-19 Study

We are proud to announce a collaboration between Fondazione IRCCS Ca’ Granda, Ospedale Maggiore Policlinico Milan (Italy), Associazione Fa.B.E.D. Famiglie di Bambini con Ernia Diaframmatica and CDH International into the effects of COVID-19 on Congenital Diaphragmatic Hernia patients. You must be a registered member of CDH International to participate and been alive during the COVID-19 …

Uncategorized

CDH Research Studies

The following hospitals and organizations are currently conducting CDH research studies. Each has their own set of guidelines. Some ask for data. Some studies include blood work on all family members, some include oral swabs. Some studies also include grieving families. There is no cost to families to participate in research studies. We encourage members …

Uncategorized

NEW – CDH International Washable Face Masks

Washable CDH International Face Masks now available! https://cdhawarenessshop.org/products/washable-cdh-international-face-mask Not to be used as 100% protection against Covid-19 or other diseases alone.  Please insert mask filter or wear additional face covering.  Raise Congenital Diaphragmatic Hernia Awareness and support your favorite charity by wearing this unisex, size adjustable mask! PERFECT CHOICE – This mask can be used …

Uncategorized

CDH International Attends 2020 Rare Fair

Once again, it was our privilege to participate in The Rare Fair. “The only 100% virtual, 100% inclusive event for the global rare disease community. The Rare Fair is a two-day global event designed to connect rare patients, caregivers, and advocates with the resources they need to manage a rare disease diagnosis. At The Rare …

Uncategorized

CDHi Attends the 2020 International Conference on Clinical Neonatology Conference

The President of CDH International, Dawn Ireland, has represented our charity at the ICCN conference for the past 3 years. This year, the conference went virtual but was still packed with over 1000 attendees specializing in neonatology. Conferences such as these allow our charity to network, create research projects and build collaborations.

Uncategorized

CDH International is Named Top Rated Charity on GreatNonprofits

We are proud to be named one of the best rated charities at GreatNonprofits for over 10 years! Thank you to all of our patients, families, volunteers, donors and supporters who continue to nominate us by writing stellar reviews. We are honored to serve the Congenital Diaphragmatic Hernia community and do our best to do …

Uncategorized

CDH International Attends the 2020 World Orphan Drug Congress

President of CDH International, has represented our charity at the WODC for the past 4 years. This year, the conference went virtual but was still packed with over 1000 attendees from rare disease and pharmaceuticals. Conferences such as these allow our charity to network, create research projects and learn from other charities.

Uncategorized

NEW – CDHi Phone App!

The new Congenital Diaphragmatic Hernia Phone App is now available! CDH International has created the go to App for the Congenital Diaphragmatic Hernia community! Apple Store – https://apps.apple.com/app/id1525091622 Google Play – https://play.google.com/store/apps/details?id=com.app.cdhinternational We included as much as possible as we could in this ground-breaking App, including: CDH Parent Reference Guide CDH Apps for Pediatric Surgeons …

Uncategorized

Important Letter on CDH Research from the President of CDHi.

Dear CDH Families, This is going to be a long one…. A couple of weeks ago I posted this question on Facebook; “Who is responsible for CDH research?” It’s taken me this long to respond because I honestly was floored with the answers and didn’t want to respond emotionally. I was floored… flabbergasted, shocked, disappointed, …

Uncategorized

CDH International Makes National News

Several months ago, CDH International President, Dawn Ireland, was interviewed for a news segment for CBS on the effects of Covid-19 on charities. Little did we know, that we would be the only charity featured and we’d be able to give the country a big dose of Congenital Diaphragmatic Hernia Awareness! Several of our members …

Uncategorized

Vote for CDHi in the MyGivingCircle Contest

Vote ONCE A WEEK at https://mygivingcircle.org/charity/cdh-international/ 52,560 babies every year are born with a deadly birth defect that takes part or all of their lungs. 144 each day worldwide. Only 50% of those born in high-income countries will survive Congenital Diaphragmatic Hernia (CDH). Only 1% in low-income countries. CDH occurs when a baby’s diaphragm fails …

Uncategorized

The UK CDH Awareness Shop Is Now Open

Our brand new CDH Awareness Shop for our UK supporters and donors is now up! http://www.cdhawarenessshop.org.uk Donate to CDH Research Purchase CDH Awareness shirts and other items Feature your CDHi Fundraiser All items made in the UK 100% of all donations and 100% of sales profits goes directly to fund Congenital Diaphragmatic Hernia Research grants. …