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Congenital Diaphragmatic Hernia Awareness Day 2022


Congenital Diaphragmatic Hernia Awareness Day 2022

April is International Congenital Diaphragmatic Hernia Awareness Month. April 19th in Congenital Diaphragmatic Hernia Awareness Day.   Join us to help give the children a voice!

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby’s diaphragm fails to fully form, allowing abdominal organs to enter the chest cavity and preventing lung growth. CDH occurs in 1 in every 2500 babies, which equals to 1600 babies born each year with CDH in the United States alone. The overall survival rate is 50%. The cause is unknown.

Our Mission: CDH International was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness.

84 Countries, Dozens of CDH Charities and 1000’s of CDH Families, Friends and Researchers unite to raise Congenital Diaphragmatic Hernia Awareness

Share Your Story

Share your story with the media and social media.

Let us feature your child.

Learn how HERE.

Meet Our Children

Every 10 minutes a child is born with Congenital Diaphragmatic Hernia.

Read their stories.

Attend an Event

Even though the world is still in lockdown because of Covid, you can join in on-line or visit at Light Up.

Events listed HERE.

Make A Donation

Help us to not only raise awareness but raise money for the children born with Congenital Diaphragmatic Hernia and their families.

CDH is a long journey that is emotionally, physically and financially exhausting. Help us to take some of the burden off of them while also funding research.

Donate on-line by clicking HERE.

2022 CDH Telethon

Join Us on April 19th starting at 10:00 am EST for our 12 hour CDH Telethon.

Watch families share their stories, listen to researchers, see celebrity guest appearances and more.

Live on our website and Facebook page.

In honor of the CDH Study Group meeting in Scotland in April, as well as the Scottish Government Approval of 2 Congenital Diaphragmatic Hernia Awareness Tartans, we will be celebrating with a lot of CDH tartan this year!

Request a Light Up

We are lighting up landmarks around the world for CDH Awareness Day! Help us to raise more awareness by requesting your local landmark to light up.

Learn how to request a Light Up HERE.

Request a Proclamation

We’ve got the states covered but we need you to help us reach out to mayors to get your towns to proclaim April as “Congenital Diaphragmatic Hernia Awareness Month”

Learn how to request a proclamation HERE.

How can you participate On-Line?

Scheduled CDH Awareness Light Ups

So far, the following international landmarks are lighting up to raise CDH Awareness on April 19th, 2021. For a fully updated list, as well as details for each event, please visit http://www.facebook.com/cdhsupport/events

United States:



United Kingdom:

  • Tower42, London, England
  • Bradford Foster Square Arches, Bradford, West Yorkshire, England
  • Bradford City Hall, Bradford, West Yorkshire, England


  • Kilkenny Castle, Kilkenny, Ireland
  • The Mansion House, Dublin, Ireland

2022 CDH Awareness Month Proclamations

The following states and towns have proclaimed April as “Congenital Diaphragmatic Hernia Awareness Month”. Each new proclamation is listed on our newsletter as they arrive.

2022 CDH Telethon Program

April 19th at 12:00 pm EST for our 12 hour CDH Telethon.

Families and researchers to be listed.

Celebrity appearances are not posted in advance.

Live on our website and Facebook page.

Stay tuned for information

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