Congenital Diaphragmatic Hernia Awareness Day 2022

April is International Congenital Diaphragmatic Hernia Awareness Month. April 19th in Congenital Diaphragmatic Hernia Awareness Day.   Join us to help give the children a voice!

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby’s diaphragm fails to fully form, allowing abdominal organs to enter the chest cavity and preventing lung growth. CDH occurs in 1 in every 2500 babies, which equals to 1600 babies born each year with CDH in the United States alone. The overall survival rate is 50%. The cause is unknown.

Our Mission: CDH International was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness.

84 Countries, Dozens of CDH Charities and 1000’s of CDH Families, Friends and Researchers unite to raise Congenital Diaphragmatic Hernia Awareness

Share Your Story

Share your story with the media and social media.

Let us feature your child.

Learn how HERE.

Meet Our Children

Every 10 minutes a child is born with Congenital Diaphragmatic Hernia.

Read their stories.

Attend an Event

Even though the world is still in lockdown because of Covid, you can join in on-line or visit at Light Up.

Events listed HERE.

Make A Donation

Help us to not only raise awareness but raise money for the children born with Congenital Diaphragmatic Hernia and their families.

CDH is a long journey that is emotionally, physically and financially exhausting. Help us to take some of the burden off of them while also funding research.

Donate on-line by clicking HERE.

2022 CDH Telethon

Join Us on April 19th starting at 10:00 am EST for our 12 hour CDH Telethon.

Watch families share their stories, listen to researchers, see celebrity guest appearances and more.

Live on our website and Facebook page.

In honor of the CDH Study Group meeting in Scotland in April, as well as the Scottish Government Approval of 2 Congenital Diaphragmatic Hernia Awareness Tartans, we will be celebrating with a lot of CDH tartan this year!

Request a Light Up

We are lighting up landmarks around the world for CDH Awareness Day! Help us to raise more awareness by requesting your local landmark to light up.

Learn how to request a Light Up HERE.

Request a Proclamation

We’ve got the states covered but we need you to help us reach out to mayors to get your towns to proclaim April as “Congenital Diaphragmatic Hernia Awareness Month”

Learn how to request a proclamation HERE.

How can you participate On-Line?

Scheduled CDH Awareness Light Ups

So far, the following international landmarks are lighting up to raise CDH Awareness on April 19th, 2021. For a fully updated list, as well as details for each event, please visit

United States:
  • Alabama:
    • Mobile Retirement System of Alabama, Mobile, Alabama
    • Montgomery Retirement System of Alabama, Montgomery, Alabama
  • Alaska:
  • Arizona:
    • Gilbert Water Tower, Gilbert, Arizona
  • Arkansas:
    • Union Plaza Building, Little Rock, Arkansas
  • California
    • San Diego Convention Center Sails, San Diego, California
  • Colorado
    • McNichol’s Civic Center Building, Denver, Colorado
  • Connecticutt
  • Delaware
  • Florida
    • Orlando Eye Ferris Wheel, Orlando, Florida
    • ICON, Orlando, Florida
    • Ocean Center, Daytona Beach, Florida
  • Georgia
    • King and Queen Buildings, Atlanta, Georgia
  • Hawaii
  • Idaho
  • Illionois
  • Indiana
    • Martin Luther King Jr. Memorial Bridge, Fort Wayne, Indiana
  • Iowa
  • Kansas
    • Lied Centre of Kansas, Lawrence, Kansas
    • Flint Hills Discovery Center, Manhattan, Kansas
  • Kentucky
  • Maine
    • Portland City Hall, Portland, Maine
  • Maryland
    • Government House, Annapolis, Maryland
    • Baltimore City Hall Dome, Baltimore, Maryland
  • Massachusetts
    • Boston City Hall, Boston, Massachusetts
    • Rose Kennedy Greenway Light Blades, Boston, Massachusetts
    • Longfellow Bridge, Boston, Massachusetts
    • The Leonard P. Zakim Bunker Hill Memorial Bridge, Boston, Massachusetts
    • Cambridge City Hall, Cambridge, Massachusetts
    • Fore River Bridge, Quincy/Weymouth, Massachusetts
    • Kenneth F. Burns Memorial Bridge, Worcester, Massachusetts
  • Michigan
  • Minnesota
    • The Lowry Avenue Bridge, Minneapolis, Minnesota
    • 35W St. Anthony Falls Bridge, Minneapolis, Minnesota
  • Mississippi
  • Missouri
    • Power and Light Building KC, Kansas City, Missouri
  • Montanta
  • Nebraska
  • Nevada
  • New Hampshire
  • New Jersey
  • New Mexico
  • New York
    • American Niagara Falls, Niagara Falls, New York
    • Mid Hudson Bridge, Poughkeepsie, New York
    • Rundel Memorial Library, Rochester, New York
    • Electric Tower, Buffalo, New York
  • North Carolina
    • The NASCAR Hall of Fame, Charlotte, North Carolina
    • Romare Bearden Park Fountain, Charlotte, North Carolina
  • North Dakota
  • Ohio
    • Rock and Roll Hall of Fame, Cleveland, Ohio
  • Oklahoma
    • Skydance Bridge, Oklahoma City, Oklahoma
  • Oregon
    • Union street Railroad Bridge, Salem, Oregon 
  • Pennsylvania
    • Cira Tower, Philadelphia, Pennsylvania
    • One and Two Liberty Place, Philadelphia, Pennsylvania
  • Rhode Island
    • Sakonnet River Bridge, Tiverton Rhone Island
  • South Carolina
  • South Dakota
  • Tennessee
  • Texas
  • Utah
  • Vermont
  • Virginia
    • Virginia Aquarium & Marine Science Center, Virginia Beach, Virginia
  • Washington
  • West Virginia
  • Wisconsin
  • Wyoming


  • Province of British Columbia
    • Lafarge Lake, Light Columns, Coquitlam, BC
    • Pinetree Way at City Hall, Coquitlam, BC
    • Skytrain Guideway Pillars, Coquitlam, BC
    • Douglas Spirit Park Square, Langley, BC
    • Maple Ridge City Hall, Maple Ridge, BC
    • Port Coquitlam City Hall, Port Coquitlam, BC
    • Canada Place Sails Of Light, Vancouver, BC
    • Science World, Vancouver, BC
    • Bloedel Conservatory, Vancouver, BC
    • Vancouver Convention Centre, Vancouver, BC
    • BC Place – Northern Lights Display, Vancouver, BC
    • City Hall and Burrard Street Bridge, Vancouver, BC
    • BC Parliament Building, Victoria, BC
    • Fitzsimmons Creek Bridge, Whistler, BC
  • Province of Alberta
    • Telus Spark Science Centre, Calgary, Alberta
    • Calgary Tower, Calgary, Alberta
    • McMahon Stadium, Calgary, Alberta
    • Saline Creek Pedestrian Bridge, Fort McMurray, Alberta
    • Lethbridge City Hall, Lethbridge, Alberta
    • High Level Bridge, Edmonton, Alberta
    • Red Deer City Hall, Red Deer, Alberta
  • Province of Saskatchewan
    • Regina City Hall, Regina, Saskatchewan
  • Province of Manitoba
    • The Winnipeg Sign, Winnipeg, Manitoba
  • Province of Ontario
    • Horseshoe Niagara Falls, Niagara Falls, Ontario
    • American Niagara Falls, Niagara Falls, NY (can be seen from Canadian side of the falls)
    • Canada Life Building Toronto, Toronto, Ontario
    • CN Tower, Toronto, Ontario
    • 3D TORONTO Sign, Toronto, Ontario
    • 3D HAMILTON Sign, Hamilton, Ontario
    • Brampton City Hall Clock Tower, Brampton, Ontario
    • Brant Street Pier and Beacon, Burlington, Ontario
    • City Hall 3D CAMBRIDGE Sign, Cambridge, Ontario
    • Grand River Pedestrian Bridge, Cambridge, Ontario
    • Sifton Properties, London, Ontario
    • RBC Place London, London, Ontario
    • Canada Life Building London, London, Ontario
    • JA Taylor Building, London, Ontario
    • City Hall of London, London, Ontario
    • Civic Centre Clock Tower, Mississauga, Ontario
    • Port Credit Lighthouse, Mississauga, Ontario
    • Riverwalk Commons at the Fred A. Lundy Bridge, Newmarket, Ontario
    • Vaughan City Hall, Vaughan, Ontario
  • Province of Quebec
    • La Grande Roue de Montréal, Montréal, Quebec
  • Province of Newfoundland and Labrador
    • St. John’s City Hall, Newfoundland and Labrador
    • The Government House, Newfoundland and Labrador
  • Province of New Brunswick
    • Fredericton City Hall (April 18-May 2), Fredericton, New Brunswick
  • Province of Nova Scotia
    • Halifax City Hall, Halifax, Nova Scotia
  • Province of Prince Edward Island
    • Holman Grand Hotel, Charlottetown, P.E.I.
    • Charlottetown City Hall, Charlottetown, P.E.I.

United Kingdom:

  • Tower42, London, England
  • Bradford Forster Square Arches, Bradford, West Yorkshire England
  • Bradford City Hall, Bradford, West Yorkshire, England
  • Margaret McMillian Tower, Bradford, West Yorkshire, England
  • The Banbridge Civic Building, Banbridge, England
  • Riverside Ice and Leisure Centre, Chelmsford, England
  • Gateshead Millennium Bridge, Gateshead, England
  • Nottingham Council House, Nottingham, England
  • The Guildhall, Swansea, England
  • Hoad Monument, Ulverston, England
  • Weymouth Pavilion, Weymouth, England
  • Arria the Mermaid, Glasgow, Scotland
  • The Kelpies, Falkirk, Scotland
  • The Falkirk Wheel, Falkirk Scotland


  • Rock of Cashel, Cashel, Ireland
  • Cork County Council, Cork, Ireland
  • Aras Chill Dara, Dara, Ireland
  • Dublin Castle, Dublin, Ireland
  • Dublin City University, Dublin, Ireland
  • The Mansion House, Dublin, Ireland
  • The Carmichael Centre, Dublin, Ireland
  • Heuston Station, Dublin, Ireland
  • The National Concert Hall, Dublin, Ireland
  • Athenry Heritage Centre, Athenry Co. Galway, Ireland
  • Meath Heritage Centre, Trim Co. Meath, Ireland
  • Spire of Lloyd, Kells Co. Meath, Ireland
  • Kilkenny Castle, Kilkenny, Ireland
  • Laois County Hall, Portlaoise Co Laois, Ireland
  • House Limerick, Limerick, Ireland
  • County Buildings Tralee, Tralee, Co. Kerry, Ireland
  • Prince’s Quay Tralee, Tralee, Co. Kerry, Ireland
  • Killarney Town Hall, Killarney, Co. Kerry, Ireland
  • Ashe Memorial Town Hall, Tralee, Co. Kerry, Ireland
  • Derry City Council Buildings, Derry, Ireland
  • Martello Tower at the Millmount Museum, Drogdeha Co. Louth, Ireland


  • Victoria Bridge, Brisbane, Australia
  • Kurilpa Bridge, Brisbane, Australia
  • Telstra Tower, Canberra, Australia
  • Council House Perth, Perth, Australia
  • Yagan Square, Perth, Australia
  • Matagarup Bridge, Perth, Australia
  • Sky Ribbon Bridge, Perth, Australia
  • Joondalup Drive Bridge, Perth, Australia
  • Mount Street Pedestrian Bridge, Perth, Australia
  • Northbridge (GFF) Tunnel, Perth, Australia
  • The Bell Tower, Perth, Australia

Other Countries:

  • Ramsey Harbour Swing Bridge, Ramsey, Isle of Man
  • Douglas Town Hall & Town Centre, Douglas, Isle of Man
  • Donauturm Tower, Vienna, Austria
  • Tallinn TV Tower, Tallinn, Estonia
  • Rockheim – The National Museum of Popular Music, Trondheim, Norway
  • Frances Drive Roundabout, Palmerston, New Zealand
  • Palmerston Water Tower, Palmerston, New Zealand
  • Palmerston Recreation Centre, Palmerston, New Zealand
  • Fort Regent Leisure Centre, St. Helier, Jersey

2022 CDH Awareness Month Proclamations

The following states, towns, and cities have proclaimed April as “Congenital Diaphragmatic Hernia Awareness Month”. Each new proclamation is listed on our newsletter as they arrive.


  • Pickering, Ontario, Canada (proclaimed the Month)
  • Peterborough, Ontario, Canada (April 19, 2022 proclaimed CDH Awareness Day)
  • Newmarket, Ontario, Canada (April 19, 2022 proclaimed CDH Awareness Day)
  • Scugog, Ontario, Canada (both April 19, 2022 and the Month)
  • Ottawa, Ontario, the Capitol of Canada (April 19, 2022 proclaimed Awareness Day)

United States:

  • Oklahoma, United States
  • Ohio, United States
  • Arkansas, United States
  • Connecticut, United States
  • New Mexico, United States
  • Tennessee, United States
  • Washington, United States
  • Illinois, United States
  • Hawaii, United States
  • Virginia, United States
  • Pennsylvania, United States
  • Maryland, United States
  • Nevada, United States
  • Wyoming, United States
  • Arizona, United States
  • Wisconsin, United States
  • Louisiana, United States
  • Nebraska, United States
  • Georgia, United States
  • Mississippi, United States
  • Kansas, United States
  • North Carolina, United States
  • North Dakota, United States
  • South Carolina, United States
  • South Dakota, United States
  • Iowa, United States
  • Idaho, United States
  • Alabama, United States
  • Maine, United States
  • Montana, United States
  • Missouri, United States
  • Indiana, United States
  • Massachusetts, United States

2022 CDH Telethon Program

April 19th at 12:00 pm EST for our 12 hour CDH Telethon.

Families and researchers to be listed.

Celebrity appearances are not posted in advance.

Live on our website and Facebook page.

Stay tuned for information

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