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Featured Cherubs: Briella Grace and Lilly Ann Warnick

“I have 2 CDH little girls. An angel and survivor. Cherubs gave me hope when no one else did. They gave me comfort  in a dark place. They connected with some of the best friends I’ll ever be “sad” to know. Forever grateful! Briella Grace, and Lilly Ann.” – Roxanne Warnick

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2019 Masquerading Angels Ball Tickets AVAILABLE NOW!

Click HERE to order your tickets! Join us for the 2019 Masquerading Angels Ball, our biggest and most glamorous event of the year! All proceeds from this event will go towards helping children who have been diagnosed with CDH and their families. We will be hosting this year’s ball on Saturday, October 12th, at the prestigious City Club …

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Current Fundraisers: Week of January 29th

Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: In memory of my darling granddaughter Scarlett McKenzie Vidette’s Birthday Fundraiser Gia’s Birthday Fundraiser- we need more research Stephen’s Birthday Fundraiser Princess’s Birthday Fundraiser Tamara’s Birthday Fundraiser Ericka’s Birthday Fundraiser Rhonda’s Birthday Fundraiser A huge thank you to all of our …

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RESEARCH: “Variable phenotypic expression of Apert syndrome in monozygotic twins”

We report a second case of Apert syndrome in monozygotic twins affected by the same mutation but with different clinical characteristics. The typical malformations were identified for both fetuses. In addition, fetus A presented a congenital left diaphragmatic hernia and a cleft palate. Apert syndrome is an acrocephalosyndactyly characterized by craniosynostosis, midface hypoplasia, and extremities …

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RESEARCH: “Development of the Pediatric Extracorporeal Membrane Oxygenation Prediction Model for Risk-Adjusting Mortality.”

OBJECTIVES: To develop a prognostic model for predicting mortality at time of extracorporeal membrane oxygenation initiation for children which is important for determining center-specific risk-adjusted outcomes. DESIGN: Multivariable logistic regression using a large national cohort of pediatric extracorporeal membrane oxygenation patients. SETTING: The ICUs of the eight tertiary care children’s hospitals of the Collaborative Pediatric …

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RESEARCH: “Long tail balloon as a new approach for fetoscopic tracheal occlusion for a treatment of severe congenital diaphragmatic hernia.”

Severe congenital diaphragmatic hernia (CDH) remains a significant challenge for neonatal specialists. In order to reduce complications during extraction of the surgical balloon after fetoscopic tracheal occlusion (FETO) CDH, we have developed a FETO with a ‘long tail balloon’ of 2.5 mL volume. Here we describe two successful uses of the device with observed/expected total fetal …

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RESEARCH: “Lung ultrasound findings in congenital diaphragmatic hernia.”

Congenital diaphragmatic hernia (CDH) occurs in approximately 1 in 2500 to 5000 infants. The use of lung ultrasound (LUS) for its diagnosis has been reported in only two case reports. The aim of this study was to report the LUS pattern of CDH in a case series of infants with respiratory distress. This case series …

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CDHi Attends the 2019 SWAAN ELSO meeting on ECMO in Cairo, Egypt

Last week, 2 of our Board Members, Dawn Ireland (President) and Shane Perry (Secretary) were in Cairo, Egypt at the 2019 SWAAN ELSO meeting on ECMO in Africa, the Middle East and part of Asia. There was a special section on CDH. It was very exciting to learn how far several countries have come in …

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RESEARCH: “Postnatal Ultrasound to Determine the Surgical Strategy for Congenital Diaphragmatic Hernia.”

OBJECTIVES: To compare defect sizes in congenital diaphragmatic hernia (CDH) measured by postnatal ultrasound (US) between neonates who underwent thoracoscopic surgery and neonates who underwent open surgery and between neonates who underwent primary repair and those who underwent patch repair; additionally, to compare the accuracy of US diagnosis with that of surgical diagnosis for the …

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RESEARCH: “Fetal endoscopic tracheal occlusion reduces pulmonary hypertension in severe congenital diaphragmatic hernia.”

OBJECTIVE: Fetal endoscopic tracheal occlusion (FETO) is associated with increased perinatal survival and reduced need for Extracorporeal Membrane Oxygenation (ECMO) among fetuses with severe congenital diaphragmatic hernia (CDH). This study evaluates the impact of FETO on the resolution of pulmonary hypertension (PH) in fetuses with isolated CDH. METHODS: All fetuses evaluated for CDH between January …

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RESEARCH: “Nuss procedure for patients with pectus excavatum with a history of intrathoracic surgery.”

BACKGROUND: The aim of this study was to demonstrate the feasibility and safety of the Nuss procedure for patients with pectus excavatum (PE) with a history of intrathoracic surgery. PATIENTS: From April 2010 to December 2013, we performed 6 cases of PE repair in patients with a history of intrathoracic surgery. The causes of previous …

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