2025 Update: As we update the CDH Forums, please use this form to officially join the charity, start the process to participate in the CDH Research Registry, and submit your story to help raise awareness.
Share your story once and we can use it many times to raise tons of Congenital Diaphragmatic Hernia Awareness:
- CDH Radio Show (returning this summer!)
- CDH Telethon (April 30th)
- CDH Magazine
- Media Press Release
- Social Media
- E-Mail News
- Future Books on CDH
In order for CDHi to share your story, we must have:
- Your membership form. Join, for free by filling out the form below!
- A video of you sharing your story (yes, video. Just be yourself!)
- 3 photos
- Answer the questions in the form below
Creating your interview:
- Videos should be between 20 and 25 minutes
- Solid background (ie walls or curtains)
- No background noises or interruptions
- No logos from corporations or other nonprofit organizations.
- No cursing please.
- Be yourself.
- Share as much or as little information as you would like but keep in mind that videos will be public
- It’s ok to cry. It’s ok to be real.
Points / questions to keep in mind to help your story flow better:
When did you first hear about Congenital Diaphragmatic Hernia?
What was pregnancy like?
What was the birth like?
What was your NICU experience like?
How old was your child/you when surgery occurred? What type of surgery/surgeries?
How was the recovery?
Where there any complications?
How long was the hospitalization?
For our survivors; therapies, other hospitalizations, scars, feeding issues, developmental issues.
For our angels; saying goodbye
What is life like for your family now?
What advice would you give a newly diagnosed family?
What do you wish the public knew about CDH?
Submit the video and photos below in the form.
If you have any questions, you can reach us at dawn.ireland@cdhi.org
If videos are too large to upload, please use a third party company such as Dropbox, to share to us. Make sure to fill out the form above and email us info to the video at awareness@cdhi.org
