Share Your Patient Story on the CDH Radio Show, CDH Telethon and More!

Share your story once and we can use it many times to raise tons of Congenital Diaphragmatic Hernia Awareness:

  • CDH Radio Show
  • CDH Telethon
  • Weekly Featured Patient
  • Media Press Release
  • Social Media
  • E-Mail News
  • Future Books on CDH

In order for CDHi to share your story, we must have:

  1. Your membership form. Join, for free! It just takes a few minutes
  2. A video of you sharing your story (yes, video. Just be yourself!)
  3. 3 photos
  4. Answer the questions in the form below

Creating your interview:

Videos should be between 20 and 25 minutes

Solid background (ie walls or curtains)

No background noises or interruptions

No logos from corporations or other nonprofit organizations.

No cursing please.

Be yourself.

Share as much or as little information as you would like but keep in mind that videos will be public

It’s ok to cry. It’s ok to be real.

Points / questions to keep in mind to help your story flow better:

When did you first hear about Congenital Diaphragmatic Hernia?

What was pregnancy like?

What was the birth like?






For our survivors; therapies, other hospitalizations, scars, feeding issues, developmental issues.

For our angels; saying goodbye

What is life like for your family now?

What advice would you give a newly diagnosed family?

What do you wish the public knew about CDH?

Submit the video and photos below in the form.

Featured Patient Submission Form 2021 (updated 9-2022)
File Uploads – 3 photos please (birth, now, family) (.jpg or .png file format only) *

Maximum file size: 134.22MB

File Uploads – Video of your story (between 20 and 25 minutes). See instructions below please.

Maximum file size: 134.22MB

If you have any questions, you can reach us at

If videos are too large to upload, please use a third party company such as Dropbox, to share to us

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