Last week our president, Dawn Ireland, attended the 29th Annual ELSO conference in Scottsdale, Arizona, and learned all the latest news on ECMO. 50% of our patients require Extracorporeal Membrane Oxygenation (ECMO) aka the heart and lung bypass machine. She also visited some of our Cherubs and their families! It was a wonderful opportunity to explore …
Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: Sherry’s Fundraiser for CDH International (ends 8/30!) Preston’s Birthday Fundraiser (ends 8/31!) Jenny’s Birthday Fundraiser (ends 8/31!) Supporting CDH Families by Madison Leonard (ends 8/31!) Najah Elaine Major’s Birthday Fundraiser (ends 8/31!) Tonia’s Birthday Fundraiser Gaby’s Birthday Fundraiser Shana’s Birthday Fundraiser Andy’s Birthday Fundraiser Earl’s Birthday …
Last week our President, Dawn Ireland, was one of the Keynote Speakers and Honorable Guests at the 18th International Conference on Pediatrics Health in Madrid. She presented research from the Global CDH Registry and also spoke about the role of parent advocacy in pediatric research. Thank you to the conference organizers for making us an …
Articles dealing with late-presenting congenital diaphragmatic hernia (CDH) in children published until 2003 were collectively reviewed. The main purpose of the presented study was to gain insight into the clinical spectrum of this variant of CDH and to discuss its clinical and surgical aspects. In 125 articles, 362 patients were reported. Left posterolateral hernia was the dominant …
Last week, our president Dawn Ireland was the keynote speaker at Pediatrics 2018, a conference in Amsterdam that includes several pediatric specialties. She spoke on our 20-year retrospective of the CDH Natural History database. Ms. Ireland also gave an impassioned 45 minute speech on the story of our organization and why patient and parent involvement …
Last week, CDHi’s president spent the week with the British Pediatric Surgical Association at their 2018 conference in Liverpool and was able to see several of our Medical Advisors, meet many new surgeons, and catch up on research coming out of the UK. CDHi is very excited to become more involved in England and …
Earlier this month, we joined our friends at La vida con Hernia Diafragmática Congénita for their annual conference in Barcelona, Spain. They are a fellow Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO) charity and had many thought-provoking speakers over the conference weekend. We were so happy to meet up with many of the members of …
Last week, CDH International attended the ICCN congress in Torino, Italy. We made connections with more neonatologists, nutritionists and other neonatal specialists. Collaboration with all the people involved in patient care is incredibly important when fighting a defect such as Congenital Diaphragmatic Hernia, and we are grateful for all the new connections we have made …
CDHi attended the 9th European Conference for Rare Diseases and Orphan Products in Vienna, Austria earlier this month. It was a wonderful opportunity where we were able to meet with the many stakeholders, collaborators, and rare disease advocates from all around the world.
Last week we were in Frankfurt, Germany to attend a Neonatology, Perinatalogy, Pediatrics and Pediatric Surgery Conference. We were able to engage with prominent scientists, students and ambassadors to share and emphasize various research works and contribute to the vast growing field of neonatal and perinatal research.
CDH International attended the American Pediatric Surgical Association conference last week in Palm Springs, California. This is our 20th APSA meeting! The meeting was a great success. We’ve built wonderful relationships with many surgeons here who have served on CDHi’s Medical Advisory Board over the years. It’s an honor to work with so many amazing …
4 members of CDH International’s staff, as well as several members of our Medical Advisory Board, were in attendance at the 2017 CDH Study Group Conference in Liverpool, along with every CDH expert from around the globe. Every new accomplishment in Congenital Diaphragmatic Hernia Research was announced, questioned, sometimes debated at the meeting. …
