“RareConnect partners with the world’s leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease”. …
CDH International Joins RareConnect
CDH International Joins Office for Rare Conditions Glasgow
“The Office for Rare Conditions is working to put the patient to the forefront, providing information and support to all affected by rare and undiagnosed conditions.” CDH International looks forward …
CDH International Joins Genetic Alliance UK
“We are an alliance of over 200 patient organisations. We work with our members on campaigns, consultations and engagement projects to ensure our work accurately reflects the needs and concerns …
February 28th is Rare Disease Day!
CDH International is proud to work alongside our Rare Disease Partners to raise awareness for all the patients affected and the charities who are working together to give all of …
CDH International Attends the 2021 Global Genes Conference
CDH International is proud to have virtually attended the annual Global Genes conference for rare diseases in September. We are also so grateful to learn from other patient advocates in …
CDH International Attends 2021 NORD Living Rare Forum
We have attended NORD meetings in the past but this was our first year as a member and we are very much looking forward to all the wonderful projects that …
