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25 Years of CDH International – 2013


25 Years of CDH International – 2013

2013 was jam packed with events, legislation, interviews, parades, videos and so much more at CHERUBS! We had a large number of active volunteers, ACDHO was formed, we awarded 4 research grants and so much more. It was one of our best years to date.

CDH Medical World News for 2013

No big CDH Research news for 2013.

CDH International News for 2013

  • Worked with other CDH organizations and research groups to re-establish the Alliance of Congenital Diaphragmatic Hernia Organizations
  • Senate Resolution S. Res. 85 Introduced and passed unanimously to make April Congenital Diaphragmatic Hernia Awareness month
  • House Resolution H. Res. 133 introduced
  • $10,000 CDH Research Grant awarded to Shands for Kids
  • $10,000 CDH Research Grant awarded to Texas Children’s Hospital Fetal Research Center
  • $5000 CDH Research Grant awarded to Mass General CDH Genetic Research Center
  • Additional CDH Research Grants awarded to DHREAMS, Shands, Legacy Emanuel, Lurie Children’s and Seattle Children’s Hospitals
  • Joined the Combined Federal Campaign
  • Parade of Cherubs on April 19th in Washington DC to Capitol Hill
  • Members met with the offices of over 25 Senators
  • April 19th CDH Parades of Cherubs in New York City, Dallas, Chicago, Philadelphia, Phoenix, Seattle, Portland, Denver, St. Louis, Peoria, Salt Lake City
  • UK Plane Jump Fundraiser
  • CDH Baseball Night at the Las Vegas 51’s
  • Virtual CDH Awareness Parade on April 19th
  • 31 Governors proclaimed April 19th a Day of CDH Awareness
  • 12 Mayors proclaimed April 19th a Day of CDH Awareness
  • CN Tower in Toronto lit for April 19th
  • Miami Tower lit for April 19th (thanks to the Olivia Faith Foundation)
  • Dublin City Hall lit for April 19th
  • New CDH Mascot “Hope”
  • 2013 CDH Conference in Boston
  • Mass General CDH Genetic Lab Tour
  • New CHERUBS Web Site
  • $10,000 CDH Research Grant contest held in December
  • A total of over $50,000 in grants from Congenital Diaphragmatic Hernia Research granted by CHERUBS in 2013
  • Over 250 care packages sent to families through our CDH HOPE Totebag project
  • New Logo
  • 10 new videos made
  • 2 College Scholarships awarded at $1000 each
  • Financial Assistance to a dozen families
  • CDH families represented at the American Pediatric Surgical Association conference in San Marco, Florida
  • Participated in a meeting of DHREAMS participating research centers
  • Participated in Meet the Experts at the Fetal Research Center at CHOP
  • CDH families represented and speech given at Euro CDH Conference in the Netherlands
  • Our 2012 National Children’s Memorial Day tribute honored over 1000 cherubs
  • Texas Get-Together
  • California Get-Together
  • Ohio Picnic
  • UK Get-Together
  • Pennsylvania / NJ / Delaware Picnic
  • Denver Picnic
  • Indiana Get-Together
  • Utah Get-Together
  • Nevada Get-Together
  • Over 600 raffle tickets sold for the 50/50 CDH Research Raffle
  • Over 25,000 Facebook Fans reached
  • Average social media reach of 100,000 people weekly
  • Participated in televised Raleigh Christmas Parade
  • 5th Masquerading Angels Ball
  • UK Formal Charley’s Masquerade Ball
  • CDH Awareness Calendar featuring over 1600 CDH patients
  • Save the Cherubs CDH Awareness Calendar
  • Won the Emericon contest on Facebook
  • Groupon Totebag Fundraiser
  • Nominated for a WEGO Health Award
  • Participated in marathons in NYC, Baltimore, Blue Ridge of Virginia, Atlantic City, Pittsburg
  • Runs held in Canada, Ohio and North Carolina
  • Participated in a Color Me Rad Run
  • New Holiday Facebook Covers project started
  • Dozens of free CDH Awareness graphics made
  • Over 100 new Save the Cherubs posters created
  • Membership reaches over 4700 families in 60 countries
  • National Children’s Memorial Day memorial to over 1200 lost cherubs
  • Monthly medical expert speakers on the forums
  • Became an official #GivingTuesday charity
  • Given a Gold Seal by guidestar.com
  • Given a 5-star rating on greatnonprofits.com
  • Participated in Couture for a Cause fashion show
  • 4 television interviews
  • 1 short film
  • First CDH word clouds created
  • Over 2 dozen newspaper articles
  • 100’s of newspaper reprints of our press releases
  • Justcoz.org reach of over 50,000
  • Created first CDH Trolley Tokens
  • First charity to plan a Euro CDH Conference
  • First CDH Window display
  • T-fund T-shirt fundraiser
  • “A Fighter’s Lullaby” song fundraiser
  • CDH Jewelry Fundraiser
  • Indiana Car Show
  • Wine and Design Fundraiser
  • Members hold dozens of fundraisers in honor and in memory of cherubs

Newsletters and Publications

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