19 Feb New Product Available: 2019 CDH Awareness Day Dandelion T-Shirt!
Click below to see our newest additions to the CDH Awareness Shop! 2019 CDH Awareness Day Dandelion T-Shirt...
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19 Feb New Product Available: 2019 CDH Awareness Day Button T-Shirt!
Click below to see our newest additions to the CDH Awareness Shop! 2019 CDH Awareness Day Button T-Shirt...
18 Feb Featured CDHi Ambassador: Jaclyn Doell
To better serve families in the CDH community, CDH International and our CHERUBS division have instituted a new program. CDHi Ambassadors are new volunteer positions in each state and all 70+ countries that we serve. Our featured CDHi Ambassador this week is New Jersey Ambassador,...
29 Jan Featured Cherubs: Briella Grace and Lilly Ann Warnick
"I have 2 CDH little girls. An angel and survivor. Cherubs gave me hope when no one else did. They gave me comfort in a dark place. They connected with some of the best friends I’ll ever be “sad” to know. Forever grateful! Briella Grace,...
29 Jan 2019 Masquerading Angels Ball Tickets AVAILABLE NOW!
Click HERE to order your tickets! Join us for the 2019 Masquerading Angels Ball, our biggest and most glamorous event of the year! All proceeds from this event will go towards helping children who have been diagnosed with CDH and their families. We will be hosting this year's ball...
29 Jan Current Fundraisers: Week of January 29th
Here is a list of the current Facebook fundraisers benefiting CDH International and CHERUBS: In memory of my darling granddaughter Scarlett McKenzie Vidette's Birthday Fundraiser Gia's Birthday Fundraiser- we need more research Stephen's Birthday Fundraiser Princess's Birthday Fundraiser Tamara's Birthday Fundraiser Ericka's Birthday Fundraiser Rhonda's Birthday Fundraiser A huge thank you to all of...
29 Jan RESEARCH: “Variable phenotypic expression of Apert syndrome in monozygotic twins”
We report a second case of Apert syndrome in monozygotic twins affected by the same mutation but with different clinical characteristics. The typical malformations were identified for both fetuses. In addition, fetus A presented a congenital left diaphragmatic hernia and a cleft palate. Apert syndrome is...
29 Jan RESEARCH: “Development of the Pediatric Extracorporeal Membrane Oxygenation Prediction Model for Risk-Adjusting Mortality.”
OBJECTIVES: To develop a prognostic model for predicting mortality at time of extracorporeal membrane oxygenation initiation for children which is important for determining center-specific risk-adjusted outcomes. DESIGN: Multivariable logistic regression using a large national cohort of pediatric extracorporeal membrane oxygenation patients. SETTING: The ICUs of the eight...
29 Jan RESEARCH: “Long tail balloon as a new approach for fetoscopic tracheal occlusion for a treatment of severe congenital diaphragmatic hernia.”
Severe congenital diaphragmatic hernia (CDH) remains a significant challenge for neonatal specialists. In order to reduce complications during extraction of the surgical balloon after fetoscopic tracheal occlusion (FETO) CDH, we have developed a FETO with a 'long tail balloon' of 2.5 mL volume. Here we describe...
29 Jan RESEARCH: “Lung ultrasound findings in congenital diaphragmatic hernia.”
Congenital diaphragmatic hernia (CDH) occurs in approximately 1 in 2500 to 5000 infants. The use of lung ultrasound (LUS) for its diagnosis has been reported in only two case reports. The aim of this study was to report the LUS pattern of CDH in a...