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25 Years of CDH International – 2016


25 Years of CDH International – 2016

2016 was the year that ACDHO really grew with the Paris conference. For the first time, several leaders from CDH charities came together to form a deeper bond in our community. It was also our charity’s second family conference in Europe.

Our Research Dept. grew as well, awarding several grants, co-authoring a research poster and our began our work with the NIH.

CDH Medical World News for 2016

  • Canadian Congenital Diaphragmatic Hernia Collaborative created.

CDH International News for 2016

  • Published CDH Research Survey findings with Toronto Sick Kids at American Academy of Pediatrics
  • Reached over 6000 families and medical care providers in our membership
  • Awarded over $40,000 in CDH Research Grants
  • Sent out over 120 CDH HOPE Totebags
  • 2016 ACDHO CDH Conference in Paris bought together 5 charities
  • Congressman George Holding visits our office
  • Met with leader of the NICHD at the National Institutes of Health to discuss funding for CDH
  • Joined the Friends of NICHD charity alliance to further funding for child diseases and defects
  • Unanimous passing of resolution proclaiming April, 2016 Congenital Diaphragmatic Hernia Awareness Month in the U.S. Senate
  • Introduction of of resolution proclaiming April, 2016 Congenital Diaphragmatic Hernia Awareness Month into the U.S. House of Representatives
  • Gathered 48 state proclamations, bringing us to all 50 states proclaiming April 19th
  • Met with Congressmen on Capitol Hill
  • Dear Nicholas Sparks book published
  • Met with Nicholas Sparks
  • CHERUBS first book signing event
  • NFL NY Giants player Perry Williams visited our office
  • Bought on 2 new members of the Executive Board of Directors
  • Added 2 new members to the Medical Advisory Board
  • Represented CDH families at the 2016 American Pediatric Surgical Association Conference
  • Represented CDH families at the 2016 American Pediatric Surgical Nurses Association Conference
  • Represented CDH families at the 2016 Global Rare Disease Conference
  • Started research projects with 3 CDH Research Centers
  • Charity of the 2016 American Mustang Car Show in Indianapolis
  • 2016 Combined Federal Campaign charity
  • Gave our first Live Facebook Videos
  • Gave over 25 speeches locally on CDH
  • Held the 2016 Masquerading Angels Ball
  • Participated in Leesburg Christmas Parade
  • Participated in Yucca Valley Christmas Parade
  • 1 new office intern
  • Held the 2016 Chris Leith Golf Tournament for CHERUBS
  • Golf Tournament in Atlanta launched new CDH foundation
  • Awareness Walk in Ontario, Canada
  • Reached over 28,000 Facebook Fans
  • Reached 75,000 posts on the CDH Forums
  • Awarded 9 Financial Assistance Grants to Families
  • Awarded 3 CDH Scholarships
  • Participated in National Children’s Memorial Day
  • Participated in #GivingTuesday
  • 50/50 CDH Raffle for Research Contest
  • CHERUBS Vendor Event
  • April 19th – Congenital Diaphragmatic Hernia Action Day
  • Niagara Falls lit up for April 19th
  • Salt Lake Bees Baseball CDH Awareness Night
  • CDH Awareness Night with the Las Vegas 51’s
  • Christmas with Kasey Golf Classic in Colorado
  • Jessy’s Journey: 4th Annual CDH Walk/Bike/Run in Ohio
  • Lizzy’s 10k Annual Walk for CHERUBS in Ontario, Canada
  • Teen Vocal Talent Showcase in Mississippi
  • Canada CDH Action Day Gathering
  • CHERUBS Pacific NW Families Strike Back Against CDH
  • CDH Awareness Night with the Potomac Nationals
  • CDH Action Day in Missouri
  • CDH Awareness Day and Get-Together in Ohio
  • Creative Canvas Fundraiser
  • One Hope Wine Fundraiser
  • Clark County Sale Fundraiser
  • Texas Roadhouse CDH Fundraiser
  • FedEx Ohio Fundraiser
  • CDH Action Day in Arizona
  • Stickin Up for CDH Fundraiser
  • My Premier Designs Fundraisr
  • Pampered Chef Fundraiser
  • Tastefully Simple Fundraiser
  • Metal Momma Fundraiser
  • Beach Glass Jewelry Fundraiser
  • Usborne Book Fundraiser
  • Keep Collective with Marisa Fundraiser
  • DollarDays Contest Winner
  • PECO Crown Lights in Philadelphia lit up for April 19th
  • Terminal Tower in Cleveland lit up for April 19th
  • Saint Louis Science Center’s James S. McDonnell Planetarium lit up for April 19th
  • BC Place in British Columbia lit up for April 19th
  • Peace Bridge in Buffalo lit up for April 19th
  • Wells Fargo Duke Energy Center lit up for April 19th
  • Telus World of Science lit up for April 19th
  • Calgary Tower lit up for April 19th
  • CN Tower lit up for April 19th
  • WoodmenLife Tower lit up for April 19th
  • JL Tower in Anchorage lit up for April 19th
  • Brant Street Pier in Ontario lit up for April 19th
  • High Level Bridge in Edmonton lit up for April 19th
  • Eli’s Run in Wilmington, North Carolina
  • Kassidy’s Kause Fundraiser
  • Storybook Birthdays Annual Costume Party Fundraiser in Mississippi
  • Night of Dinner and Dancing Fundraiser in Pennsylvania
  • CHERUBS Annual Ohio Picnic
  • Nathaniel Cummings Fundraiser
  • Melaeuca Fundraiser
  • Brady Thomas Golf Tournament
  • Justyce for Kids Fundraiser
  • Paint Nite Fundraiser
  • Gateway Men’s Choir Benefit
  • Houston Spirit Night Fundraiser
  • Dress Down Fundraisers
  • Potomac Nationals Fundraiser
  • Dixie Direct Savings Guide Fundraiser in Utah
  • CHERUBS Utah Picnic
  • Bravelets Fundraiser
  • Making Stride for CDH Fundraiser
  • Virtual Candles & Snowflakes Fundraiser
  • Virtual CDH Ribbons Fundraiser
  • Fetin 4 a Cause Fundraiser
  • Won 2016 Top-Rated NonProfit Award from GreatNonprofits.com
  • Won 2016 GuideStar Gold charity award

Newsletters and Publications

2016 CDH News Archives (click Archives to view other weekly editions)

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