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Share Your Patient’s CDH Story in 2022!

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Share Your Patient’s CDH Story in 2022!

Share your patient’s CDH story in 2022! Slots are filling up for the 2022 weekly featured kids. If you want to feature your child this year, you need to apply now! Please email us at cpab@cdhi.org to sign up for your week in 2022 and help us to raise CDH Awareness through your child’s journey with CDH.

Share your story once and we can use it many times to raise tons of Congenital Diaphragmatic Hernia Awareness:

  • CDH Radio Show
  • CDH Telethon
  • Weekly Featured Patient
  • Media Press Releases
  • Social Media
  • E-Mail News
  • Future Books on CDH

In order for CDHi to share your story, we must have:

  1. Your membership form. Join, for free! It just takes a few minutes
  2. Schedule an interview (this is done by zoom and we can edit as we need too) or record your own video of you sharing your child’s story. Please ask for guidelines on what needs to be included.
  3. 3-5 photos
  4. Answer the following questions at https://cdhi.org/shareyourstory/ or email your answers to cpab@cdhi.org.
  • Your email and phone number
  • Please tell us 5 interesting things about the patient.
  • How has CDH International helped you? (this might be quoted on our site, social media and/or a press release)
  • Are you presently holding a fundraiser or event that you would like us to promote? Please give us all information to share. (date, location, web site, etc)
  • Please write 1 paragraph (3 or 4 sentences) about your diagnosis and pregnancy. (this might be quoted on our site, social media and/or a press release)
  • Please write 1 paragraph (3 or 4 sentences) about surgery and NICU. (this might be quoted on our site, social media and/or a press release)
  • Please write 1 paragraph (3 or 4 sentences) about your present situation; coming home, current status, grief, etc. (this might be quoted on our site, social media and/or a press release)
  • Do you give us permission to use you / your child’s photo in publications, on social media and to share with the media?
  • Do you give us permission to use you / your child’s photo in other publications? (web site, yearbook, calendars, guides, etc)?

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