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Adalynn’s Story – Make A Tax-Deductible Donation to Fight CDH

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Adalynn’s Story – Make A Tax-Deductible Donation to Fight CDH

Every year, 52,000 children are born with CDH. In Higher-Income Countries, 50% of these babies survive. In Lower-to-Middle-Income Countries, less than 1% survive their first week of life. Help CDH International give these children a fighting chance.

Make a one-time donation.

  • CDH International has a 9% overhead. This means that 91 cents of every dollars goes directly to fight CDH.
  • CDH International works diligently to help over 6500 member families in 74 countries on an annal budget of just $250,000.
  • CDH International is registered in 7 countries to better fight for these babies globally
  • CDH International undergos annual voluntary financial audits to show our commitment to transparency
  • CDH International shares not only annual financial statements, but our full 990 annual tax forms as well

Make an automated recurring pledge to help fight Congenital Diaphragmatic Hernia.

Our Family’s Battle Against Congenital Diaphragmatic Hernia

My name is Madison Carpenter, I am 21 years old! I found out I was pregnant around 8 weeks, I had my first ultrasound at 13 weeks then shortly after found out I was having a sweet baby girl! As a first time mom I was so excited, I have always dreamed of being a mom!

My excitement went away at my 21 week ultrasound.  I found out that my sweet girl had left CDH and her stomach and almost all of her bowel was in her chest. I was devastated. This was not how my pregnancy was supposed to go. I was only 20 years old, finding out all of this and not knowing anything about the condition.

The doctor gave Adalynn a 50-80% chance of survival, but also told me I could terminate the pregnancy, but I knew I had to be positive and give my girl a chance. After this appointment I spent most of my time going in for monthly ultrasounds, having an MRI, and all the scares of pregnancy.

January 9, 2021 Adalynn Lou made her arrival and started fighting for her life. We spent about 50 days in the NICU, but on February 26 Adalynn came home. Since then we have been dealing with heart problems, GI issues, and getting an ng tube.  

I am excited to get to meet people who have been through similar heartbreak and getting to help new moms navigate through the diagnosis and what is to come!

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Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby’s diaphragm (a thin sheet of muscle that separates the abdomen from the chest) fails to fully form, allowing abdominal organs to enter the chest cavity and prevent lung growth.

CDH occurs in approximately 1 in 2500 births, with over 1600 babies diagnosed each year in the United States alone. There is currently no known cause, but studies have suggested that it is likely due to a number of genetic and environmental factors.
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