Join us in October for the Netherlands race! This Global CDH Awareness Race takes us to the Netherlands. The Race starts at Monster where the first CDH charity was founded …
The CDH Patient Registry is LIVE – Participate in Research!
CDH International is proud to introduce the new CDH Patient Registry! Our natural history study database has been updated to a REDCap server and our organization is working with The …
CDH International Registers as an NGO in Italy
Along with NGO registration in the United Kingdom in 2019, CDH International is excited to announce that our organization is also registering for NGO (charity) status in Italy. CDHi has …
CDHi Medical Advisory Board – Richard Keijzer, MD, PhD, MSc
Dr. Keijzer received his MD (with honours), PhD (Medicine) and MSc (Molecular Medicine) from ErasmusMC in Rotterdam, The Netherlands. Before starting his specialist training, he did a one-year research fellowship …
Congenital diaphragmatic hernia: a scientometric analysis of the global research activity and collaborative networks
Our President, Dawn Ireland, attended the EUPSA meeting in Paris over the summer. One of the posters presented at this European conference for Pediatric Surgeons reported on the research collaboration …
CDH International Visits the World Health Organization
On July 9, 2018, CDH International paid our first visit to the World Health Organization (WHO) in Geneva, Switzerland to speak with the Head of Surgery and to search for …
CDH International is the NIH Kids First DRP Featured Charity for July
This month’s foundation spotlight is CDH International. CHERUBS – Congenital Diaphragmatic Hernia Research, Awareness and Support, the support division of CDH International, focuses on promoting research, raising awareness, and providing …
CDH at the University of Zurich Rare Disease Summer School
Last week, our President, Dawn Ireland, represented CDH at the 2018 Rare Disease Summer School at the University of Zurich. The first non-scientist to attend the school (and on scholarship), …
CDHi Attends the 51st Annual Meeting of Pacific Association of Pediatric Surgeons
Last week, CDHi attended the 51st annual meeting of Pacific Association of Pediatric Surgeons in Sapporo, Japan. It was a wonderful opportunity to see some of our Medical Advisory Board …
RESEARCH: Treprostinil Improves Persistent Pulmonary Hypertension Associated with Congenital Diaphragmatic Hernia
We conducted a retrospective cohort study of infants with CDH-associated pulmonary hypertension treated with treprostinil from January 2011 to September 2016. Severity of pulmonary hypertension was assessed by echocardiogram and …
RESEARCH: Feasibility of non-invasive Neurally adjusted ventilator assist after congenital diaphragmatic hernia repair
The use of neurally adjusted ventilator assist (NAVA) in congenital diaphragmatic hernia (CDH) patients has been historically deemed unwise, since the trigger for breaths is the electromyographic activity of the …
CDHi Welcomes New Medical Advisory Board Member, Mauro Longoni
CDH International is very happy to welcome our long-time friend, Dr. Mauro Longoni, officially to our Medical Advisory Board. Dr. Longoni is part of the genetic research team at Boston …