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Research: “Prenatal intervention for the management of congenital diaphragmatic hernia”

Abstract Congenital diaphragmatic hernia (CDH) is the result of incomplete formation of the diaphragm that occurs during embryogenesis. The defect in the diaphragm permits the herniation of abdominal organs into the thoracic cavity contributing to the impairment of normal growth and development of the fetal lung. In addition to the hypoplastic lung, anomalies of the …

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Research: “A Case of Incarcerated Traumatic Diaphragmatic Hernia”

Abstract A 74-year-old woman was admitted to our hospital because of back pain and difficulty of breathing, which started the previous night. She had a history of multiple traumas caused by a traffic accident 4 months prior. She was developing a shock but showed no signs of peritonitis. A computed tomography scan showed dilation of …

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Research: “Treatment of rat congenital diaphragmatic hernia with sildenafil and NS-304, selexipag’s active compound, at the pseudoglandular stage improves lung vasculature.”

Patients with congenital diaphragmatic hernia (CDH) often suffer from severe pulmonary hypertension and the choice of current vasodilator therapy is mostly based on trial and error. Since pulmonary vascular abnormalities are already present early during development, we performed a study to modulate these pulmonary vascular changes at an early stage during gestation. Read more HERE.

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Research: “Rate and Risk Factors Associated with Autism Spectrum Disorder in Congenital Diaphragmatic Hernia”

To determine the rate and predictors of autism spectrum disorder (ASD) in congenital diaphragmatic hernia (CDH). Between 06/2004 and 09/2015 a total of 110 CDH survivors underwent neurodevelopmental (ND) testing and screening for ASD, followed by a full autism diagnostic evaluation if indicated at our institution. We found a 9 time higher rate of ASD …

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Research: “Characteristics of Infants With Congenital Diaphragmatic Hernia Who Need Follow-Up of Pulmonary Hypertension”

Pulmonary hypertension is one of the main causes of mortality and morbidity in patients with congenital diaphragmatic hernia. Currently, it is unknown whether pulmonary hypertension persists or recurs during the first year of life. Pulmonary hypertension was measured using¬†echocardiography¬†and electrocardiography at 6 and 12 months old. Characteristics of patients with persistent pulmonary hypertension were compared …

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CHERUBS Toronto Blue Jays Game and Family Gathering

Our wonderful Canada International Representive, Amanda Plakholm, organized a CHERUBS Get Together for families at the Toronto Blue Jays game last month that was a huge success! This was the 4th annual Cherubs Blue Jays Game gathering, where CDH families and friends are able to come together to raise CDH Awareness. Everyone enjoyed getting together …

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CDHi Lobbies in DC with Families and Board Members

The CDHi team, along with some of our beloved CHERUBS members, took on Washington DC at the end of April to lobby in Congress for an inquiry to the NIH in reference to the funding given for Congenital Diaphragmatic Hernia. We met with state and local representatives from North Carolina, Ohio, New York, Virginia, Utah, …

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CDHi Attends National Nurse Networking Event in DC

CDHi had the pleasure of attending the National Nurse Networking Event (NNE) in Washington DC last month, where we were able to spread awareness of CDH and make new connections throughout the medical community. The NNE boasted a conference hall filled with medical company representatives, nursing school programs, products for medical staff, and many other …

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CDH International Participates in the 2nd International Workshop on Intensive Care of the Newborn In Verona

CDH International was proud to be a part of the 2nd International Workshop on Intensive Care of the Newborn In Verona, Italy this week, working with neonatologists and pediatricians from around the globe to better help all babies born with acute medical conditions.    

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CDH International Participates in the International Congress of Research on Rare and Orphan Diseases in Bologna

We are in Bologna, Italy today to participate in the International Congress of Research on Rare and Orphan Diseases.   There seems to be a medical research data renaissance occurring across the globe. CDH International is very proud to be a part of this incredible progress towards better healthcare for all children.  

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CDH International Speaks at the International Congenital Diaphragmatic Hernia Study Group Conference

4 members of CDH International’s staff, as well as several members of our Medical Advisory Board, were in attendance at the 2017 CDH Study Group Conference in Liverpool, along with every CDH expert from around the globe.   Every new accomplishment in Congenital Diaphragmatic Hernia Research was announced, questioned, sometimes debated at the meeting.   …